Petition to Simon Stevens, Jeremy Hunt
Don't stop funding only drug for pancreatic cancer on the CDF
Pancreatic cancer took my husband in 2009, at the age of 48, leaving me and our son behind to face a future without him. I felt distraught to lose him, just a few days more would have meant the world to me, our son and the rest of our family. Back then there was no drug that could give us that, but now there is. Abraxane is the ONLY drug for pancreatic cancer on the Cancer Drugs Fund. It can offer a person an extra few months and sometimes even years. But, from 4 November 2015 this drug will lose its funding. Pancreatic cancer is a disease which has made hardly any progress in over 40 years. Despite pancreatic cancer being the 5th highest cancer killer in the UK, it receives less than 1.5% of the research spend. This cancer has been overlooked for way too long. Abraxane represents the greatest improvement in survival for pancreatic cancer in almost 20 years – when used in combination with the standard chemotherapy for pancreatic cancer it has been found to extend patients’ lives. Taking the one glimmer of hope away from a cancer that has very little hope associated with it is wrong. The average metastatic pancreatic cancer patient is given between 2-6 months. When your life is cut this short, any amount of time is significant. What Abraxane offers if invaluable -- time to make memories, to tell loved ones how much you care for them, to do a favourite thing one last time. The drug isn’t being removed in Scotland, Northern Ireland, Wales or most of Europe. To disadvantage pancreatic cancer patients just because they are based in England is outrageous. Please help us to raise the profile of this injustice by adding your name to our petition. Last year 106,000 signed our petition on funding for pancreatic cancer, and we managed to force a debate in Parliament. Petitions have helped us to win support for this disease before, let’s use public pressure again to help people who deserve more time. Please help us to get this petition heard by adding your name and sharing so that we can get Abraxane reinstated on the Cancer Drugs Fund. Thank you
Petition to Maureen Watt MSP minster for Mental Health in Scotland
Ensure all mentally Ill people have a designated contact to help them
My name is Ross Ogilvie, I was diagnosed with aspergers at 11, I am now 36.I have spent my life battling crippling anxiety, worsening depression, and an increasingly shrinking world, battles made significantly harder because I have received no support, no help knowing what is available, no guidance or encouragement. I had for a span a support worker, but I fell though the cracks when she changed jobs. When I tried to reconnect, I was asked without knowing, what help I could get, what I wanted... this quickly fell apart. I am asking you to sign this petition in order to ask that the Scottish government ensure each mentally ill person in Scotland has a designated contact there to help them navigate the benefits system, engage with mental health services, and manage their condition so that they can live better, more fulfilling lives. While some of us are fortunate enough to have families, its rare for those families to have a proficient grasp of all these issues. Living with a mental illness and on disability benefits is isolating enough, we need help to participate in society fully but in ways with which we can cope. I am asking you to sign this petition in order to ask that the Scottish government ensure each mentally ill person in Scotland has a designated contact there to help them navigate the benefits system, engage with mental health services, and manage their condition so that they can live better, more fulfilling lives. While some of us are fortunate enough to have families, its rare for those families to have a proficient grasp of all these issues. Living with a mental illness and on disability benefits is isolating enough, we need help to participate in society fully but in ways with which we can cope.
Petition to ARLENE FOSTER, FIRST MINISTER
Campaign for a Commissioner for Mental Health and Disability NI
As recent news bulletins have highlighted and in my own personal experience (just recovered from depression; fought to get transition support for my brother with learning disability moving into supported living after 50 years with my parents; currently helping my 12 year old with OCD and increasing awareness of this; and an ongoing fight for justice for my best friend's daughter with Cerebral Palsy), the needs of those with mental health and disability are not being fully met. We have a Commissioner for Children and a Commissioner for the Elderly but WE DO NOT have a Commissioner for Mental Health and Disability. Charities often act as a voice for these groups but resource is often limited and services disjointed. We need an independent voice, a dedicated resource. Please sign this petition for a Commissioner for Mental Health and Disability in Northern Ireland. Spread the word among those in need and their families who may have already battled to be heard. Shout out and please LIKE and SHARE the Facebook page "Commissioner for Mental Health and Disability NI".
Petition to Theresa May MP
Theresa May - Protect our Elderly, Disabled and Vulnerable #Budget2017 is a disgrace!
"After six years of unprecedented budget reductions, the number of people aged over 65 accessing publicly funded social care has fallen by 26 percent. This is placing an unacceptable burden on families and carers and leaving increasing numbers of older people who have basic activities of daily living without any support " - as documented and researched by the Kings Fund (2016). Health and Social Care does not only focus on our elderly, we need to protect individuals with disabilities needing support through care providers, charities and organisations. "All staff should understand and apply the principles of mental capacity laws" - Mencap "Getting it right"(2010). "Make sure every eligible person with a learning disability can have an annual health check " - "Getting it right charter", Mencap 2010 "November 2015 is the twentieth anniversary of the passage of the Disability Discrimination Act " Scope Charity Disability Rights Campaigners are currently fighting for the rights of the disabled and vulnerable living in the U.K. It is now time for the UK government to recognise the support given by all CARE givers in attaining these goals and supporting these charters. CARE should be tailor made to suit the individuals needs, training should be adequate to enable care givers to provide the best standards and Health and Social care givers should have their careers recognised by the government, furthermore individuals needing Health and Social Care should be able to relax in the knowledge that their carers are trained to a national level of acceptable care . The Care Quality Commission need to set a definitive ratio of individuals needing care to the amount of carers provided especially in residential care and nursing home settings. All employers need to recognise that their staff have wellbeing needs too and all employers and the government should recognise the hard work and dedication of staff working above and beyond their employers "Code of Conduct". At present there are no definite ratios given by the Cqc who state in regulation 18 (staffing, 2016) "Providers must not act in a way that prevents, limits or would result in staff not meeting requirements required by professional regulators" It is time that the government pushes for us to be registered in the same way that nurses, doctors and healthcare professionals are registered. Many of us are administering life saving medication without three years of university training and are carrying out tasks to fulfil individuals needs with basic training. We are frontline staff trying to provide best standards of care for those needing it and need recognition and a pay increase. In basic terms it is strongly believed and suggested that all care providers "sing from the same sheet" and that national standards are set for all care givers. A "National Living Wage" of £7.50 per hour does not support us in our own daily lives. Funding of £2 billion over three years (budget 2017) will not protect those requiring social care and it will impact on employers providing care that need to pay dedicated and experienced staff. The elderly are living longer but it is well documented that too many elderly people are living in poor health. "There is evidence of worsening health for many older people in some parts of the country " - Professor Danny Dorling, (Oxford University) 2016. The Government need to recognise that tragic events such as the "Winterbourne View" scandal screened by Panorama in 2011 should never happen again. All staff should receive adequate nationally recognised and supported training and updates on training to ensure that incidents of abuse do not happen. The Health and Social Care Act 2012 states that "Demand is growing rapidly as the population ages and long-term conditions become more common" "Power will be transferred from Ministers to Parliament. In the current system Ministers are able to set up new organisations, create permanent quangos and change the responsibilities of existing bodies through directions which are not subject to the control or scrutiny of Parliament " - Health and Social Care Act 2012. Therefore I am contacting you the Prime Minister to ensure that you do exactly what your goverment's legislation states. "Older people are not recognised explicitly under human rights laws" - Alison Fenney, evidence paper for Age U.K. (2012) and it is not very well known but is understood and believed that if an act of Parliament breaches the convention rights of the Human Rights Act (HRA, 1998) then the courts can decide and declare that an act of legislation is no longer compatible. At local level we are seeing an increase in our council tax payments and it is advised that we are paying towards health and social care provision in an already fragile system. With care "rapidly becoming little more than a threadbare safety net for the poorest and most needy older people" - the Kings Fund as reported by Barbara Keeley in The Guardian 7/3/ 2017. Multidisciplinary team collaboration is vital in providing care that involves individuals "best interests" now maybe the government should look after ours? The UK unemployment rate held at an 11- year low of 4.8 percent during the period of October and December 2016 (trading economics) maybe you could look into putting care provision back on an urgent agenda and ensure that those of us that are already employed within the health and social care sector receive the recognition and support that we deserve? Thank You for Reading
Petition to BioMarin Pharmaceutical, Jeremy Corbyn MP, Donald Trump, Barack Obama, Michelle Obama, Nick Clegg MP, Boris Johnson MP, David Cameron MP, U.S. House of Representatives, NORML UK, Sir Richard Branson
LEGALISE THE CURE FOR CANCER! #KASABIAN'S LAW
I have a story to tell you about our very own superhero, Kasabian Newton-Smith & his extraordinary family. I actually know this family and of course Kasabian personally and can easily class them as friends.I met Kay (Kas's Mum) 9 yrs ago, when by chance she walked into my hair salon, instantly I saw that she was a friendly, happy, honest, & genuine person and we clicked straight away. I also classed her as a friend straight away! Kasabian wasn't born then but not long after he made a appearance. Even though Kay and I don't txt or speak everyday, nothing changes when we do actually get time! Kay is such a beautiful person, so kind hearted and never judges, she's always there for others, and always sees the best in people.When Kasabian was first diagnosed with Ewings Sarcoma when he was 2 years old, he was only given two weeks to live then! So, To save their child the Newton-Smith family and friends rallied round, to raise funds to pay for his treatment in America. I was asked if I would help out and it was a honour to do the first ever head shave on Kay herself in 2009. Kasabian has relentlessly battled his cancers for 7 years, had more chemotherapy sessions & radiotherapy sessions that a grown adult can cope with, and In total Kas had more than 900 procedures in the 7yrs of his battle. He lost his hair three times through the treatment & he's been in remission twice, Even through all of that Kasabian was just like his mum - So very Kind Hearted, Selfless and Very resilient! He set himself goals by raising money for other charities, and once he'd sets himself a target, you can bet you're life that he'll smash it! In 2015 sadly more cancers had invaded his body - simply just way too many, and he had received all the treatment that was/had been available, which ment that treatment options were nil.He was then heartbreakingly deemed as terminal - Devastating! But the fearless youngster decided to kick start the fundraising campaign for PACT charity and did himself a 5k walk in Hillsborough Park June 2015, raising a staggering amount! I was proudly at Kasabian's walk in Hillsborough Park last year, I also arranged a suprise "minion" & "Buzz Lightyear" to walk alongside! And I was really privileged but very saddened to help at the most recent fundraiser at the Wadsley bridge club shaving more heads Nov 2016 .(Actually raising funds for Kasabians funeral) Even though I only class myself as the local hairdresser I used to make regular out of hours trips to Kays to cut Kas's hair, as he knew that I wouldn't hurt him due to his scar on his head, which was a Complete Honour! I love the Newton-Smith family so much, I've been so fortunate and lucky enough to meet and know such a amazing phenomenon of a young man and family! But Unfortunately witnessed his life in full circle. I will never ever meet anyone like Kasabian in my lifetime again! Simply because - There is only ONE of Kas! Sadly Kasabian Newton-Smith passed away peacefully on Saturday 10th December 2016. It was his 9th Birthday on Thursday 15th December - his first Angel Birthday. A entire community are mourning the passing of a very brave & amazing little boy. 'KEEP SMILING YOU NEVER KNOW WHO YOUR INSPIRING '- Kas - Warrior/Legend End the bigotry and educate. We don't need to find a cure for cancer, we need to legalise it. #KASABIANSLAW #WARRIOR #LEGEND #1lastsmile4kasabian What if I told you there were MULTIPLE CURES for CANCER but are suppressed because cancer is worth over £200 BILLION a year ... we don't need to find a cure for cancer, we need to legalise it! Cannabis HAS BEEN PROVEN to have many more benifits to 'OUR' HEALTH, INDUSTRY AND ECONOMY! "KEEP SMILING YOU NEVER KNOW WHO YOUR INSPIRING" - Kasabian Newton-Smith / Warrior & Legend #KASABIANSLAW #REVOLUTION
Petition to Scott mann
Reduce the pollution in Camelford
As a community our lives are being blighted by the volume of traffic that is passing through our town,day and night. On 1st December 2004 everything was agreed after many years of wrangling to build a bypass around the town, but due to several blunders the monies were never forthcoming from government and the road was never built. This has never stopped us trying to get the bypass built but to date it seems to fall on deaf ears. Air quality has been monitored since 2010 to see how levels of NO2 compare to those set out in EU Regulations. When levels reach 40ug/m3 there is cause for concern, when levels reach 60ug/m3 there is "serious risk". The levels in our town are currently 62.1. We need as much help as we can get to have the bypass built to protect our health, our children's health, the environment, and our homes. We have several historic buildings in the town and the vibration from commercial vehicles is causing damage! So please lend us your support to protect our historic town.
Petition to Department of Health
To ensure a coordinated package of aftercare for all families following the loss of a baby/child, which will involve Midwives, GPs and full support networks.
In December 2012 we lost Charlie Arthur Curtis to Potters Syndrome after 19 minutes of life. Whilst in hospital the care we received was excellent, however once we stepped outside the hospital doors we found that there was little or no support out there for bereaved/grieving families. The support we received fell well below any standard a grieving family should receive. We want our experience to help improve the support available to other parents and families in the future. In Leeds alone there are 32,000 people awaiting bereavement counselling. The wait for counselling can be anything from 6 - 18 months. Surely this cannot be right. Bereaved families need support as soon as they leave the hospital. If each family were to be given a carefully coordinated personalised aftercare package their journey through grief could be made easier. We need your support to help get the Health Department to change their bereavement services throughout the UK. We know we can make a difference with your support. Already we have been able to generate much discussion within the NHS in Leeds.
Petition to Mr Donald Yamamoto, Mr Rory Stewart, Mr Donald Tusk
USA, UK and EU Must Now Lift Crippling Sanctions on Zimbabwe.
Citizens of Zimbabwe desperately cry to the USA, UK and EU for crippling sanctions to be removed. It’s no coincidence that Zimbabwe has the world's highest number of orphans per capita. Zimbabwean hospitals have become a death trap with no drugs and equipment. Easily preventable diseases like Cholera and Typhoid are killing thousands of children. Industries have virtually collapsed leaving 95% unemployed. Zimbabweans wants to be part of a global community and carve their own niche. We beg those few in high offices, scores of decision makers in the USA, UK and EU to listen to voices of millions and do the right and humanitarian thing of ending Zimbabwe's misery. Please note, for the decision makers to consider lifting these devastating sanctions, sign the petition. Please share it via Whatsapp and Facebook. Let's reach at least 1 000 000 signatures before we deliver the Petition. #nomoreSanctions