Petition to Theresa May MP, Matthew Hancock MP
Defibrillators to be provided in all public places
Our son Tom Cooney died at the age of 28. He was playing rugby when his heart stopped beating. The post mortem showed that he suffered from an undiagnosed genetic heart condition, Arrythmogenic Right Ventricular Cardiomyopathy. Between 10 and 12 young people aged 18-35 die every week from this and other undiagnosed heart problems. Often such deaths occur when playing competitive sports. Tom’s friends tried to give him CPR but it didn’t work. In cases like these CPR is only effective in 6% of the time. Defibrillators are a device that can dramatically improve the chances of survival in this situation. Tom might still be alive today if there had been a defibrillator at the sports club he was playing at. Some schools and sports grounds have taken it upon themselves to get a defibrillator, but there is nothing that makes it compulsory in law. In 2017 a Bill was presented to Parliament which would have made Defibrillators compulsory in schools, leisure centres, sports centres and major public places, but due to the 2017 election the Defibrillator (Availability) Bill was tabled never became law. We don’t want Tom’s death to be meaningless, so we have started this petition for this Bill to come into effect - we want to make sure all major public places are required by ław to have a cardiac defibrillator. To avoid other families going through the heartbreak of the loss of a child, please sign this petition to introduce defibrillators in public places. Thank you Alison and Kevin Cooney.
Petition to UK Parliament
We demand Alder Hey to release Alfie Evans to a hospital of his parents' choice.
Alfie Evans is at Alder Hey Hospital in the PICU. He was born in May 2016 and has been hospitalised continuously since December 2016, dealing with chronic seizures of an undiagnosed disorder. Having given up on him as early as February 2017, and refusing to do a standard life-enhancing tracheostomy, the hospital has applied to the High Court to remove parental rights and withdraw ventilation to end Alfie’s life. Alfie was born healthy and on time. We were so happy to have him with us going home, our beautiful boy. He grew and fed well, but was exceptionally sleepy and didn't meet milestones. After a couple of weeks we noticed Alfie wasn't doing things he should be, like lifting his head up, grabbing his dummy, eating his hands, etc. We also noticed he was doing a jerking movement with his hands, arms and legs, and his eyes would roll up. Alfie often had his hands clenched into a fist. We took him to doctors three times, who said he was lazy and a late developer. Months went by and Alfie went backward instead of forwards. He started making more jerking movements and wasn't himself at all. Finally Alfie became agitated, crying inconsolably. Then Alfie got a chest infection and landed in the hospital. The infection led him to have a myoclonic jerking spasm, and Alfie struggled to breathe. This is when he was first put on life support, the worst nights of our lives. They told us in January 2016 that Alfie wasn't going to make it, so we had him christened. We thought we were going to lose our son and our hearts were desperate. But Alfie had other ideas, he managed to beat the infection and start breathing on his own again. He was moving and trying to open his eyes. Unfortunately, Alfie caught another infection and went back on the ventilator. Time and time again, despite not being diagnosed or treated for any suspected underlying disease, his seizures being somewhat controlled by a heavy cocktail of sedating drugs, Alfie has come back over and over from every infection and challenge. The hospital claims that Alfie is “insensate” and unaware of any stimulus or irritation, which is proven wrong in hundreds of videos, against the odds of a heavy cocktail of anti-seizure drugs with sedative effect. Daily, Alfie moves, stretches, yawns, responding to tickling and noise and cuddling. And yet even with all this, with loving parents (we are only 20 years old) who persevere through great strain and leave no stone unturned for Alfie, with support around the world, Alder Hey wants to turn his life support off. We have found another European hospital willing to help Alfie move forward, get a tracheostomy and PEG tube and get off heavy sedation, and to try to diagnose and treat him. We’ve been told several times by outside doctors that Alfie can even eventually be able to go home with a tracheostomy and direct stomach tube (PEG). Yet Alder Hey keeps moving the goalposts. They have gone from telling us they would allow transfer if a hospital was found, and putting us through a long process of proving our option was viable, to admitting they would not allow any such transfer. The pressure by the doctors to end Alfie's life has been unrelenting. Now they have resorted to legal force, to remove parental rights and end Alfie's life, going to court behind our backs when we were still willing to go through mediation to find a positive solution. We are relieved that after significant pressure was exerted by our legal team, the hospital backtracked and agreed to the fair mediation they denied us before going to court.Many people have seen Alfie's determination and strength as he battles through every single thing that is thrown at him. Alfie is a beautiful boy, growing big and solid, who is showing every possible sign that he could to tell us that he wants to get better and that he is still here to fight and live his life with whatever help we can give him. Doctors can’t explain away the signs Alfie gives of fighting on. Disabled and sick children deserve care, not a hastened death. We Alfie’s parents have the right and responsibility to make decisions to save him and move him to a hospital who will honour those decisions. Give Alfie his rightful chance at life!
Petition to Kelly Tolhurst
Extend maternity leave for mothers of premature babies
When my first son was born ten weeks early, I had no idea that maternity leave would begin the very next day, months before we would bring him home. Born too soon, the reality of life in neonatal care is very different from what a mother would usually expect from the early days of maternity leave. Lines, monitors, life support machines and recovery from what is often a traumatic birth. Mothers wait days, if not weeks to hold their babies for the first time and face the agonising journey home without their baby each day. It broke my heart leaving my tiny baby every day and he spent the first months of my maternity leave in hospital. The very real cost of premature birth is not only measured in terms of financial pressures placed on families, most recent studies suggest it costs in excess of £2,000 for an average NICU stay, but also upon the long term health implications for the mother, with 40% of NICU mums developing postnatal depression following neonatal intensive care and more than half experiencing anxiety and symptoms of post-traumatic stress disorder. As a mother I needed time to bond with my tiny baby, time to recover from our traumatic journey and time at home for my baby to grow and develop before I could return to work. Extending statutory maternity leave and pay would give mothers the emotional and financial support needed at a time of great stress and trauma - in turn leading to better postnatal health, a more positive return to work and better outcomes for babies development. We call on Kelly Tolhurst MP and Government colleagues to recognise the significant and unique needs of families with children born prematurely and to extend statutory leave accordingly.
Petition to Jeremy Hunt, Steve Barclay, Lord Prior, Nicola Blackwood MP, Nadine Dorries, Jeremy Corbyn MP
The NMC and it's subtle destruction of the nursing profession
Nursing must have a regulator. However as we have seen in recent media coverage the current system is failing miserably. It is neither protecting the public or the registrants and ultimately is putting both group's lives at risk.The current systems leaves it wide open to abuse by vexatious managers or colleagues with a grudge. Many registrants are referred on allegations that are not evidenced based and even if the NMC finds no case to answer at the end of their investigation the damage has already been done. The NMC decisions affects nurses who have previously had no issues raised and unblemished careers, many for a number of decades. The profession is struggling to retain experienced nurses and midwives. Recent figures show up to 45% increase in nurses leaving the profession than joining it. The current Ftp process has resulted in nearly 10,000 registrants being removed from the register since 2008 and currently a registrant has a 1 in 20 chance of being struck off. Many who go through the FtP leave the profession as a result. In a small survey we conducted has found: - 62% of respondents stated that their mental health was the most affected by referral to NMC- 64% stated they did not know where to go for support- 100% stated having difficulty sleeping- 90 % stated poor self confidence- 80% stated difficult trusting people- 77% stated they had feelings of paranoia More than half admitted to having some suicidal thoughts and all stated that they were never the same as prior to referral. The current system creates fear and a lack of transparency as nurses are in fear of their regulator. A process of luck and decent employer determines whether you are called in-front of the NMC. Some moves have been made with the Morecambe Bay Investigation and the PSA report into it https://www.professionalstandards.org.uk/docs/default-source/publications/nmc-lessons-learned-review-may-2018a0851bf761926971a151ff000072e7a6.pdf?sfvrsn=6177220_0 however so far nothing has changed in the process and daily between 30 & 80 registrants ( nurses and midwives ) undergo hearings at the NMC at a cost of £13,000 per case. We need 100,000 signatures for this to be raised in Parliament and taken seriously as an issue affecting and destroying our profession. PLEASE sign and share and share and let's get it changed for the better as ultimately the only people who will suffer are our patients.
Petition to Jeremy Hunt, UK Health Secretary
Introduce HPV vaccination for boys to stop many preventable cancers
HPV (human papilloma virus) is very common and most men and women get HPV at some time in their lives. HPV usually never causes any health problems but, for some people, infection with HPV can lead to the development of certain cancers (cervical, vulval, vaginal, penile, anal, head and neck) as well as genital warts. About 5% of all cancers are caused by HPV infection. HPV vaccination at the age of 12/13 can significantly reduce the risk of developing disease and vaccinating both sexes provides the highest level of protection. In the UK currently, only girls are vaccinated through a national programme generally delivered in schools. Australia, Austria, Bermuda, Brazil, Canada, Italy, New Zealand and the United States have already started (or will soon start) to vaccinate both boys and girls. Boys should now be included in the UK vaccination programme: · To protect as many women as possible from cervical cancer. · To protect both men and women from other HPV-related cancers. · To protect both sexes from genital warts. It is unethical to exclude males from a straightforward, risk-free and relatively low-cost health programme that would prevent cancers and improve sexual health. This petition has been organised by HPV Action, a partnership of 45 patient and professional organisations that all believe both boys and girls should be vaccinated. For more information about HPV Action: www.hpvaction.org. Twitter: @HPVAction Donations to support HPV Action's work are very welcome and can be made via JustGiving: www.justgiving.com/HPVAction
Petition to Sarah Newton
Make it compulsory to have a mental health first aider at work #wheresyourheadat
When I was 10 I started having panic attacks. Not knowing what was happening, I went to the doctor and was wrongly diagnosed with asthma. They had overlooked that my symptoms could be caused by something mental rather than something physical. I didn’t truly get the help I needed until I was in my thirties – and in the meantime, I developed toxic coping strategies including an eating disorder which lasted 7 years. I think a big part of the problem was that the people around me - doctors, teachers, family and employers - didn't know how to respond or care for me as they would have done if my illness had been physical. I don’t want other people to suffer in silence as long as I did, so ever since I have been fighting to change our relationship with mental health - I’m a campaigner for better mental health support - and now I’ve joined forces in partnership with some of your favorite brands, from Heat magazine, Grazia and Empire, to Kiss FM, Magic Radio and Absolute Radio, to start this petition calling for all businesses and colleges to introduce mental health first aiders. The workplace is where we spend most of our adult lives but unfortunately it’s also a place that, in my experience, mental well-being is the most neglected. We feel the need to soldier on when we are struggling with mental illness in a way we never would if we had the flu or broken a leg. And this is reflected in our laws. Under the Health and Safety at work act, most workplaces have to train someone in medical first aid - it means if we come to work and end up getting hurt or sick, there’s someone that knows what to do. Unfortunately, despite statistics showing 1 in 4 of us struggle with mental health every year, most workplaces don’t have anyone on hand that knows how to help. Evidence shows the earlier a mental health issue - like stress, anxiety or depression - is detected the easier it is to manage and treat. By making it easier for people to talk about their mental health at work & and by training colleagues on site who know where to point people to get the help, we could dramatically improve the mental well-being of the country. Mental Health First Aid courses are available, and whilst most organisations don’t have them, those that do (like Unilever and Ford) have found them to be transformative. Please join me in calling on Sarah Newton, the Minister of State for Disabled People, Health and Work to commit to updating the Health and Safety At Work Act to ensure that businesses have the same obligation to provide mental health first aiders as they do medical first aiders.
Petition to H. E. Joseph Muscat, Hon. Christopher Fearne, Honourable Members of the Maltese Parliament
Organise Night Shifts for pharmacies in Malta and Gozo
What do you when it's 1AM and your child is complaining because he/she is in pain and you go to the hospital to be told give them painkillers as the pharmacies are closed until tomorrow morning. An adult may wait, a child no! And this is not ok. We call upon the Prime Minister, the Minister of Health and the Honourable Members of the Maltese Parliament to enforce a night shift 365 days a year to pharmacies based on the rotation of these. We believe that AT LEAST one pharmacy in Malta and one in Gozo should be available at night. The year is 2018, access to healthcare shouldn't be that difficult at night!