Topic

family

62 petitions

Update posted 2 days ago

Petition to Jeremy Hunt, Jon Ashworth, Amber Rudd MP

Please save my son Alfie by allowing him to legally use medical cannabis!

My six year old son Alfie has a very rare genetic epilepsy condition called PCDH19. It causes clusters of seizures which are unresponsive to almost any medications. He can have up to 30 violent seizures a day. It’s so severe that he had 3000 seizures in one year and ended up in hospital 48 times.The only legal medication in the UK that helps are steroids. But they are toxic to the body, especially when used regularly. If we continue giving them to Alfie there is a high likelihood he will develop psychosis or his organs will fail. Last year, in desperation, we travelled to Holland where doctors treated him with cannabis oil. Miraculously, with a dose of three drops a day, Alfie didn’t have a seizure for 27 days. He's only had 2 seizures in the last two months. Dutch doctors say that cannabis oil could get his seizures down from 30 a day to twenty a year. My baby went from a death sentence, to the prospect of a normal life, with school, friends and fun. But that prospect could be taken away now we are back in the UK because here the use of medical cannabis is illegal. I don’t want to have to break the law so I am pleading with the UK Government to make an exception for Alfie and grant his doctor license to prescribe medical cannabis so Alfie can live life carefree, without constant seizures and ploughing of steroids. Making an exception for Alfie doesn't have to open the floodgates - Alfie is the only boy in the UK that has this condition. We are working with End Our Pain (https://endourpain.org/ to get a better life for Alfie and hope this will lead to help for other children who need to try this medication. To legalise the use of medical cannabis would enable the quality and consistency of products to be properly controlled, would create a new industry and more jobs, raise taxes, lower crime rates and result in fewer people struggling in hospitals to be well, or being preyed on by unscrupulous online sellers. We assess the saving to the NHS from Alfie’s case alone to be over £100,000 and up to 150 paediatric bed days. It’s a no-brainer! Getting Alfie treatment could be the first step to making medical cannabis accessible to others in need. We urgently need the public to make noise to make that happen. Alfie has been through more than most people go through in a lifetime. He deserves to have a wonderful life full of joy. I just want Amber Rudd and Jeremy Hunt to understand this isn’t about the wholesale legalisation of Cannabis. This is about weekly trips to A&E, watching my son have seizures, watching him turn purple, and praying that he lives to see another day. Please sign and share this petition and help me make our family’s only wish come true. And please like our Facebook page Alfie's Hope for all updates on Alfie's journey. Thank you x

Hannah Deacon
259,044 supporters
Update posted 3 days ago

Petition to Human Rights Campaign, Theresa May MP, Jeremy Corbyn MP, Birmingham City Council

Let my son be with his family

Where to begin. First and foremost Birmingham Children's Services have themselves stated my son has NEVER come to ANY harm in the care of his mother/myself. My son was placed on a child protection register at birth due to me having convictions for violence 4 years previous, he was kept on child protection aged 3 months due to the fact he was "a very advanced baby" and this "may have led his mother to expect to much of him which might cause significant emotional harm". From July 2014-September 2014 my son , his mother and myself lived a happy peaceful life the days were spent loving,nurturing and enjoying our cheery,happy perfect baby ,however we made the grave error of reporting the fact social worker NADINE REDSHAW was turning up clearly intoxicated and had pictures on her Facebook of her friends babies drinking cans of carling, after that Children's Services embarked upon a smear campaign with the aim of stealing our son for adoption. We were branded "bizarre and paranoid" for refusing to strip our son naked in front of a room full of 10/12 strangers, his mother was labelled as "having a learning difficulty she struggled with" - she has genius level IQ (Children's services declined her offer to take an IQ test), we were branded "tremendously defiant" for refusing to sign our son over to my abusive mother , his mother simply asking for the law to be adhered to meant she had "personality difficulties" and quiet unbelievably our next door neighbours were asked to sign a statement "telling a little white lie" - the "little white lie" being that my son's mother had gone out and left our son in the house unsupervised. Back in December 2014 my son was illegally and viciously seperated from his mother by Birmingham Children's Services and my own mother who has a history of abusing children. 2 days before Christmas his mother went to collect him only to have my own mother refuse to hand him over whilst screaming PPO (police protection order) at my son's mother so his mother rung the police to retrieve our son only for the social worker SYEDA TAHERAH AHMED to lie to the police and claim my mother had custody. The reason Social Services gave for so brazenly breaking the law was "the child may be harmed" due to the fact that his mother and myself had had a verbal disagreement when our son wasnt in our care. His mother wanted to take our son to her fathers home in a different city without me. She kept trying to get our son back for the same thing to keep happening until we were taken to court. My mother made up a pack of lies to try and keep our son for herself. Social Services advocated for her relentlessly and the courts put our son in the care of this woman despite the fact at the time she was under police investigation for serious child abuse allegations perpetrated against her own children (me). Thankfully an independent social worker highlighted what a danger this woman was and my son was removed. Me and his mother PASSED a parenting assessment, we proved all allegations against us to be lies and his mother offered to take our son upon him being returned to her care to live at her fathers home away from myself (the "problem"). However Children's services decided to press for adoption due to facts we are still unsure of. At the Final Hearing the social worker was proven to have lied repeatedly about his mother and so had the guardian ELAINE BENNETT. After a 5 day hearing and a 2 week wait we were told our son would be placed for adoption due to the fact his mother had "drawn a malicious picture" of the social worker and because his mother had asked the social worker SYEDA TAHERAH AHMED and manager RUTH EVELYN HILL to apologise for the fact she had been told she could not care for him as a vunerable single parent. Barbara Carter of Barbara Carter Solicitors was the judge behind this scandalous decision she made findings on things his mother was not even questioned about,falsely claimed my sons mother accepted threshold and felt it appropriate to describe him as 'a very attractive baby to adopters' (one of the reasons the order was given according to Barbara Carter). Legal Aid solicitors CARTWRIGHT KING and BLAIR ALLISON colluded with BCS to remove our son for 'potential risk of emotional harm'. My son has until March to be rescued from the clutches of strangers, strangers who follow a completely different religion to him, strangers who are ripping a child from a loving mother to help fill a void in there own lives. My son is not your baby to have, He has a family who love and want him, he is the centre of the whole family and without him it is pointless. His mother says her home feels like someone has died without him in it. He doesn't deserve to be punished for my actions, his mother doesn't deserve to be punished because of my actions and he definitely doesn't need ripping from his family until he is 18 for things his mother "may or may not do" based on MY past. His mother due to Birmingham Family Courts decision to refuse to process her appeals for some unknown reason now has to wait to oppose the adoption order. Enough signatures will get my son's voice heard and just maybe if his voice is heard loud enough he might just might be returned to where he belongs and the courts might stop ignoring applications put before them and see justice done. If the family courts weren't secret he would have NEVER been removed. I quote Paul Pennington-Wilson (independent social worker) : "The parents present as loving parents who's lives revolve around their son" and finally i quote judge Barbara Carter "the mother is clearly a very bright,intelligent,engaging and fiesty young woman with much to offer those around her including her son." Tom Latimer

Tom Latimer Snr
7,329 supporters