Petition to Phil Ramos, Philip M. "Phil" Boyle, Andrew M. Cuomo
Help us end child marriage in New York State
We are the Naila Amin Foundation. Naila Amin, our founder, is a New Yorker who was forced by her parents to marry her first cousin when she was just 14. The first petition for her marriage was approved by the USCIS (United States Citizenship and Immigration Services). Her ex-husband was 13 years older than her ( at 26 years old) at the time of the Nikah Islamic ceremony, and she was then forced to go overseas to live with him at age 15, where she was abused. All of this, however, was enabled by legal child marriage in New York State. Naila hopes to enact legislation to ban the exceptions that lead to her suffering and prevent others from having to endure the same. We seek to create a bill, very similar in style and content to the one recently passed in New Jersey. Child marriage occurs legally through loopholes and exceptions. In New York State, a person can be married as young as 17 with judicial review. This does not protect 17 year olds. Lets raise the age to 18 with no exceptions. If a 17 year old is married off and decides he/she is not happy, they have to wait to turn 18 to file for divorce, trapping them in abusive marriages and a shelter wont take anyone under 18. This is just a recipe for disaster. However often times, parents are the ones forcing the marriages rather than consenting to them. In fact, abuse, honor killings, or being disowned are the repercussions of refusal on the part of children. Because these victims are underage, abuse is inherent in these marriages. Since 2000, more than 200,000 youths have been legally married in the US. In the summer of 2017, NY changed its child marriage age from 14 to 17, this is not enough. Lets protect everyone under 18.
Petition to Collaborative Medicinal Development, ALSA
Allow people with ALS access to the drug "CuATSM" under FDA Compassionate Use
IMMEDIATE MEDICAL BREAKTHROUGH ALERT: "ALS" (aka Amytrophic Lateral Sclerosis, aka "Lou Gherig's Disease") is a terminal, progressive, and utterly devastating disease that eventually causes death in 100% of diagnosed cases, occurring on average between 3 to 5 years after diagnosis. About 6 in every 100,000 people contract the disease across the world. ALS causes the motor neurons in the human body to fail completely, thus leaving sufferers 100% paralyzed, unable to care for themselves, and immobile until death. For the first time in history, a compound exists that has shown "remarkable" progress in halting progression of this evil, insidious disease. In 2014, a currently available drug that has already been proven to be safe in humans, and which is already FDA approved and used as a "contrast dye" in PET scans called "CuATSM" was theorized for use as a treatment in ALS by amateur biologist Dr. Joseph Beckman from the Linus Pauling Institue (LPI). The reason that CuATSM works so well to treat ALS is because it has the unique ability to pass the "blood brain barrier" in several minutes, which heretofore had been the major obstacle in treating ALS and other neurological disorders. "CuATSM" delivers a missing copper molecule directly to misfolded proteins right where the help is needed- in the spinal canal and the brain. More recently, and after further investigations over the last 3 years, a company in Australia just completed a traditional, devastatingly slow "double blind placebo" Phase one "safety study" on CuATSM as a treatment for ALS in humans, and to determine appropriate dosing levels. Needless to say, these results were labeled as a "remarkable breakthrough" by everybody involved with the compound. In fact, the compound CuATSM worked so well in this first study that it was able to demonstrate a remarkable 70% reduction in the speed of progression of ALS symptoms. Needless to say, this potential result is BEYOND incredible, and represents the first time in history that any drug or treatment for ALS has shown such promise. Therefore: We the people afflicted with ALS hereby request immediate access to the currently available drug "CuATSM", within the guidelines of current FDA "compassionate use" laws. We the people who are suffering from ALS will not stand idly by and die quietly for two more years while irreplaceable time is wasted by more unethical, cruel, "placebo"based trials that employ human beings like test animals – when a drug exists right now that could literally change the world! There is simply no time to waste. We must force people with access to the drug to do the right thing. People currently afflicted with ALS are already "terminal" in nature, have nothing to lose, are in VAST agreement in this effort, and the fact that a currently FDA approved drug that IS ALREADY AVAILABLE IN THE USA means that people in dire need of help could slow down the progression of their disease- TODAY. PLEASE JOIN ME IN THIS CRUCIAL FIGHT. For the very first time in history, a drug exists that has shown a REMARKABLE ability to slow ALS. It also holds great promise for Parkinson's, Alzheimers, and other "incurable" neurological conditions. WE DEMAND THE RIGHT TO TRY THIS DRUG IMMEDIATELY, WITHOUT DELAY.
Petition to Bill Galvano
Help Tin Huu Pham stays with his family in USA. Deportation would be a travesty.
I am writing to ask you to help Tin Huu Pham and his family. We cannot take away from the reality of the devastating fear, pain, and suffering that the Pham family is experiencing during this traumatic time as is true for 9,000 Southeast Asian community members facing deportation. Knowing that the trauma of separation is real, with your help we want to hold this beautiful and loving example of what an American family should be together. We, as a community see the treatment of Tin Huu Pham and his family as unethical, improper, unjust and unacceptable. Tin Huu Pham and his family have been rooted in this community for 15 years. He has become a very productive and prominent member of the Bradenton community with a thriving business that supports 9 employees and their families. His wife, Cindy, is an educator for the Manatee School district where she coaches and supports classroom teachers. Tin pays taxes, donates to various Manatee Community fundraisers, belongs to his church and some small group ministries, works to feed the homeless, and just recently volunteered to clean up our waterways during the Red Tide crisis. Please sir, we ask for your consideration in this critical life-saving matter for Tin, his wife and his 4-year old daughter. We trust in your leadership and judgement to make the right decision that will impact not just the Pham family but their extended families, friends and communities that love and support them. This is our impassioned hopeful plea to your Heart; Faith; Love of man; and kindness. It is obvious Tin has paid his dues. Deportation would be a travesty. Thank you for your time and consideration.
Petition to Dianne Feinstein, Kamala D. Harris, Gavin Newsom, Boeing, Senator Henry Stern, Barbara Lee, Mohsen Nazemi, Julia Brownley
No more kids with cancer: clean up the Santa Susana Field Lab
When my daughter Grace Ellen was diagnosed with a very rare form of cancer, at age four, I thought that our family had the worst, most devastating luck. But after spending months in the hospital with her, we learned that she was one of over 50 children who may have been poisoned by one of the worst nuclear meltdowns in America. Sign to demand that incoming governor Gavin Newsom push the Department of Toxic Substances Control (DTSC) to completely clean the Santa Susana Field Lab and prevent any more children from getting cancer. Grace Ellen’s form of cancer was incredibly aggressive. At age four she was put on several clinical trials, had ten times the normal amount of chemotherapy, and spent two years fighting her cancer. A year and a half later her cancer came back. She’s been addicted to morphine, unable to eat or drink, and had to fight for her life in the hospital isolation floor. Her childhood was stolen from her, and it haunts me to know her cancer might have been avoidable. She, like the other 50 children, grew up within 20 miles the Santa Susana Field Lab, land which was developed in the 1940s to conduct nuclear research. In 1959 an uncontained partial meltdown of a sodium reactor caused such a devastating radiation leak that many consider it to be the worst nuclear disaster in U.S. history – and it was completely covered up for years. Our community has up to 60% higher cancer rates, 20% higher invasive breast cancer rates, we have the reports to prove it. It is the Department of Toxic Substance Control’s job to clean up this mess. They know our children are sick and dying, but they aren’t taking any meaningful action against those who own the land – Boeing, NASA and the DOE. I will protect my children even if I have to tear down mountains with my bare hands – and I am one of many parents fighting for our kids. To win this, we need our future governor to push the corrupt Department of Toxic Substances to clean up this disaster once and for all. Will you join us?
Petition to United States Department of Health and Human Services, Billy Long, Roy Blunt, Mike Parson
Medicare: Stop Denying Medically Necessary Treatment.
Medicare currently denies many medically necessary treatments regarding our health. But “Medicare” does not treat us – our doctors do. As many people know our elderly and disabled people are put on Medicare. Our low income families receive Medicaid. We have paid into this program from working, our taxes, and many other forms of payments we have to make to the government. We should demand coverage for medically necessary treatment – deemed medically necessary by our doctors – NOT by Medicare! They will pay thousands of dollars once your health fails but will not cover preventative treatment? We as Americans deserve better than this. We deserve adequate, dignified and compassionate healthcare especially when we pay them. How can they know each individuals needs based on a one-size-fits-all approach? Personally, I have been denied oral nutrition for life sustaining care because I’m not tube fed, YET. Yes, you really have to be on the verge of death. I have been denied IV hydration because it’s not drug-related. I’ve been referred to a palliative care doctor who in his notes states "if these things are not rectified it will lead to my death". This is where everyone can get involved because at some point everyone will experience this government healthcare. I'm advocating for better healthcare coverage for ALL on Medicare and Medicaid. Our lives matter. Demand Medicare and Medicaid cover your medical needs – medically necessary, life sustaining treatments. You deserve it. We deserve it. Demand Medicare pay for medically necessary, life sustaining treatment!
Petition to Biogen Idec, Michel Vounatsos, Biogen
Without Spinraza, Zahra will die
By signing this petition, you are literally saving Zahra’s life. Zahra, a 6 years old girl, has been diagnosed with a rare disease called Spinal Muscular Atrophy ("SMA"), which is a terminal, degenerative disease, that takes away a child’s ability to walk, stand, sit, eat, breathe, and even swallow. HOWEVER, a new medication, SPINRAZA™ (nusinersen), not only can stop the disease, it will restore the previous degeneration. Unfortunately, Spinraza is VERY expensive, costing $750,000 USD! Zahra's story published on the Wall Street Journal: https://on.wsj.com/2FMo3PA All you have to do in order to help Zahra is to simply sign this petition requesting Biogen, the company which makes SPINRAZA™, to ease Zahra's access to this medication by either reducing the price or any other way possible to save her life. Please follow Zahra on Twitter: https://twitter.com/SaveZahraD #SaveZahra Dear Biogen company, please gift Zahra the compassionate use of SPINRAZA™ (nusinersen) or at lower prices before it is too late. Please support Zahra's family so that this little girl can start her treatment as soon as possible. No kid in this world deserves to be left to gradually or eventually die. Please help saving Zahra's life.
Petition to Thomas Webb, Sergei Chernikov, Erin Culbert, Dan Bishop, Jeff Jackson, Vickie Sawyer, Jeff Tarte, Joyce Waddell, Natasha Marcus, Kelly Alexander, John Autry, Chaz Beasley, Mary Belk, John Bradford, Bill Brawley, Becky Carney, Carla Cunningham, Andy Dulin, Beverly Earle, John Fraley, Rodney Moore, Paige Sheehan, Bill Norton, Lynn Good, Cara Brooks, Jordan Martin, M Atkins, Roy Cooper, Michael Regan, Mitchell Setzer, Andy Wells, Rusty Knox, WT Washam, J Aneralla, board , elected officials, J Pope, J Pierson, R Gaither, LaShonda Hart, Shiela Holman, John Risgaard, Andrew Pitner, Brandy Costner, Mike North, Alexandra Russell
CLEAN UP COAL ASH ON LAKE NORMAN, NC
At Marshall Steam Station on Lake Norman, Duke Energy stores millions of tons of coal ash on the banks of the lake in an unlined leaking pit that pollutes the groundwater and the lake. In November, Duke Energy was required to make public filings under national coal ash storage standards that showed that Duke Energy’s coal ash storage is failing those standards. Under the North Carolina Coal Ash Management Act, The North Carolina Department of Environmental Quality (DEQ) will decide in April whether Duke Energy will be required to clean up the Lake Norman site and move the coal ash to safe, dry, lined storage. Duke Energy has proposed to leave the coal ash in the unlined pit on the banks of Lake Norman and put a synthetic cover and soil on top (so-called cap in place). Local community and conservation groups have been urging Duke Energy to move its coal ash to safe, dry, lined storage away from the lake and out of the groundwater (“clean closure”). Duke Energy is now required to remove its coal ash from unlined pits at 8 other sites in North Carolina, but Duke Energy wants to leave its coal ash in an unlined pit at Lake Norman. In South Carolina, all the coal ash is being removed from every unlined coal ash lagoon in the state, but Duke Energy wants to leave coal ash in unlined waterfront pits in North Carolina, including on Lake Norman. Tell The North Carolina Department of Environmental Quality (DEQ) and Duke Energy to clean up the coal ash mess at Lake Norman by moving the ash out of the unlined pit to safe dry, lined storage – as Duke Energy is required to do at 8 other sites in North Carolina, and as is happening at every coal ash lagoon in South Carolina. Lake Norman and the surrounding community deserve the same protections! And It’s important for NC DEQ and DE leave a lasting legacy of caring for the community, by correctly and properly cleaning up the coal ash on Lake Norman.
Petition to Department of Homeland Security
Demand DHS bring back FBI background checks for staff working with immigrant kids
Not only are these kids being separated from their families, the Department of Homeland Security (DHS) just waived FBI background checks for caregivers working at the Tornillo detention center. Right now, there are over 2,000 teens being held in Tornillo - apart from their families. With no guardian, these kids are left in the hands of DHS staff who could possibly have a colored past, that could even involve child endangerment or abuse. If it’s not ok for American children in public schools, it’s not ok for kids being held against their will by DHS. Tell DHS to reinstate background checks for all staff at Tornillo. The 2,100 staff at Tornillo haven’t had to undergo FBI background checks or fingerprinting, something anyone working at a daycare would have to do. Instead, DHS is outsourcing background screening to private contractors who have limited access to criminal records. Tell DHS to reinstate FBI background checks for Tornillo staff. Tornillo started holding children in June. As a ‘temporary facility’, it started holding 360 kids separated from their families. Now it looks like this facility will become permanent. Over 1,300 teens were sent to Tornillo since the end of October alone. Now it holds 2,324 13-17 year olds in tents. For comparison, more people are detained in Tornillo than in all but one of America’s 204 federal prisons. In terms of economic price, Tornillo will cost taxpayers $430 million this year. It’s bad enough that DHS has torn these kids from their families, the least they can do is ensure that kids in detention centers like Tornillo are not put into contact with criminals. If DHS gets away with waiving FBI background checks for staff dealing with minors, countless kids could be put at risk. Tell DHS to bring back FBI background checks for all staff at Tornillo.