Topic

disabled rights

31 petitions

Started 4 weeks ago

Petition to Edinboro University

Save the Attendant Care Program

My email written to Interim President Hannan of Edinboro University: This email is being written in regards to the rash decision made by executive staff at Edinboro University. First, I would like to give you a little background information about myself. My name is Alyssa Briglio, I’m 20 years old, and I’m attending Edinboro University to complete my bachelors degree in biology. I am slightly different than traditional college students since I am wheelchair bound due to a progressive form of muscular dystrophy. I’ve required extensive personal care my whole life and will continue to require it as my disease progresses. Yet, the one thing unaffected by my disease is my brain and I hope to put it to the test by becoming a pediatric neurologist. Edinboro University, for at least the past 30 years, has been known around the country for their 24/7 personal care staff and other disability related services. This service is vital to my success as a student, and if nothing else, to my existence. Yet beginning in the 2019-2020 school year, this service will be terminated. We will be left with an outside agency to cover around 36 students needs. I can say from personal experience that this is not effective. This decision was made without the input from the students and senior staff members directly involved in the program. Edinboro University should realize that taking this program away is equivalent to taking the students’ independence away. They should realize that there is no correlation between the functionality of our legs and the functionality of our brains. They should realize that although we may need to be lifted out of bed, or need help picking something up off the floor, or need medication placed on our tongues because we simply can’t reach our mouths, we deserve a fair chance at getting an education in a place where we feel safe. If Edinboro prides themselves on their diverse campus and numerous disability services, why would they want to abolish it? I live with 35 students who fear that their degrees will never be completed because of this change. I know staff who have put in 30+ years of work into this program and got handed their notices while on duty today. I know Edinboro University is better than this and I will not give up until my voice and all of the other affected voices are heard. Help us keep the ability to attend college without worry of being stranded in bed. Sincerely, Alyssa Briglio

Alyssa Briglio
5,793 supporters
Started 3 months ago

Petition to Disability Activists, disability

Real estate attorney taking family home from his disabled brother

Hi my name is Marcus Forman. I am a disabled adult living in my family home of 40 years. I'm writing this with the assistance of my direct support staff but all thoughts are my own.  My parents have always planned to support me to remain in the house for the rest of my life and pass this house to their grandchildren after I die. Suddenly, under the influence of my brother Jason (who is a real estate attorney), my father Stuart filed to take the house away and force the sale of the house through divorce action after over 50 years of marriage. My father would never do this to me on his own. My father is 75 years old and has self admitted to not being able to make his own decisions. I know he still loves me and would never allow me to be homeless and I know he would not want my mother to be homeless either but my brother is manipulating my father for ownership of the house. My mother and I will be kicked out of our home based on the decision made on August 7th by Judge Smith because if my mother and father don't come to an agreement on their own then Maryland law requires sale of the house. My brother Jason is forbidding my father to come to an agreement. My father wants to sign an agreement to allow us to stay in the house but he is afraid he will be kicked out of my brother's condo, where he now stays rent free at the beach, if he signs the agreement. My brother wants the money from the house for himself. I have been estranged and afraid of my brother for years and have not talked to him since then. He would never support me after my mother dies and does not care for my well being. In fact he would just hurt me. My mother's plans to afford to keep me in the house for the rest of my life will be ruined if the judge forces the sale of the house. I'm not capable of living on my own because of my disabilities, social and medical, and without a home to live in I will lose the support staff provided through my Medicaid waiver disability program. Due to my intrusive behaviors I cannot live in an apartment or townhouse community so I must have my support staff with me 1:1 at all times to protect me from being victimized and to make sure I don't bother people too much with my silly questions and attention seeking behaviors. Also, my support staff drives me around because I have a seizure disorder and cannot drive. I cannot go anywhere successfully on my own.  Without my family home or support staff I cannot continue my non-profit landscaping that I've been doing for 25 years. If I don't have any work to do to make people's houses look pretty I will, in addition to losing my home, also lose my job and have no more funding from my disability program to pay for my support staff. What am I going to do with myself? I hope you can help me in keeping me in my family home so I can have the safety of the police who know me, my neighbors who are accepting of me, the doctors who treat me with respect, the hospitals who take me in when my chest pains become unbearable, and most importantly the security of my house so I can live and play all year long without threat of being victimized from strangers. Please help stop me from becoming homeless by signing my petition. Your signature could help save my life. Thank you.  

Marcus Forman
234 supporters