Topic

Disability Rights

328 petitions

Started 2 days ago

Petition to Board of Education

Better Handicap Accessibility In Our School Systems And Sporting Events

My husband was badly crushed while working in the coal mines in 2014. He is T12/L1 incomplete paraplegic. He spent two weeks at UK hospital and another four of extensive rehabilitation in Atlanta at The Shepherd Center. This was a tremendous change for us and our family. We had three kids at the time, and now we have four blessings. Now that it has been a little over five years after the accident we have adjusted pretty well and have our home handicap accessible for all of his needs. We have two boys and two girls. Our oldest plays football and baseball. Our middle aged boy plays baseball, and our five year old does cheer and gymnastics. After a few years of not playing football our oldest decided to play again this year. Well, after we went to a few of his games we started noticing that a lot of these places in our school system is not handicap accessible, to which I was very shocked. So this really upset me. Why isn’t our sporting facilities equipped so EVERYONE  can watch their child play out on the field. My husband has had to sit in no mans land to watch our boy play, which isn’t fair. He should be able to sit where everyone else sits. And another issue is no handicap restrooms. It’s absolutely not acceptable that my husband has to stay home sometimes because their is no restroom to accommodate the disabled people. These issues are not only for our people in a wheelchair, but older people and younger people that may have disabilities. This needs to change. Our girls are 5 years old and 7 months. When they get older and start having to go to these games and cheer or whatever else, is it fair for my husband to miss out on these events? Absolutely not. Something needs to be done. I’m asking u to sign this petition in hopes we can get this issue resolved!! 

Erika Gunter
376 supporters
Update posted 3 days ago

Petition to Ohio State Medical Board, Ohio State House, Ohio Pharmacy Board, Ohio State Senate

Grant access to medical cannabis to those diagnosed with Autism Spectrum Disorder in Ohio.

We are parents of children with Autism who are interested in legally pursuing medicinal cannabis as a safe, effective and therapeutic treatment option for our chronically ill children. To that end, we are here to advocate for the legalization of therapeutic cannabis, to educate families, doctors, legislators and the general public about its many benefits. We exist to give help and hope to parents interested in its medicinal application. We believe in our right to legally access the all-natural plant cannabis in its entirety and in all its various medicinal forms. We advocate qualifying conditions for cannabis therapeutics include a diagnosis of autism and co-morbid conditions.  We believe there is strong and substantial scientific evidence that supports the use of medical cannabis as a safe viable treatment for autism spectrum disorder. There are several Ohio physicians and scientists who agree and have provided expert testimony on the matter. Moreover, a bevy of states, seventeen in total, including Colorado, Delaware, Georgia, Iowa, Louisiana, Michigan, Missouri, Maine, Minnesota, Nevada, New Mexico, North Dakota, Pennsylvania, Rhode Island, Utah, Texas, Illinois and the territory of Puerto Rico have all permitted autism as a qualifying condition for their medical cannabis programs, pediatric patients included.And an additional seven other states such as California, Florida, Oklahoma, Oregon, Maryland, Massachusetts, and Washington DC all also recognize autism as a debilitating condition and allow doctors to recommend medical cannabis.With more states expected soon, due to strong scientific evidence. A vote against adding this condition would restrict chronically ill patients in severe need from even discussing this as an option with their doctor. Please vote with a majority of the experts, and support the addition of autism as a qualifying condition.I urge you to consider the evidence and will of Ohioans to add Autism Spectrum Disorder to the qualifying condition list. Tiffany Carwile  Ohio State Chapter Director www.mammausa.org Mothers Advocating Medical Marijuana for Autism autismallianceofohio@gmail.com to share your success stories with #cannabis4autism

Tiffany Carwile
1,244 supporters
Update posted 6 days ago

Petition to U.S. Senate, Dan Brown, Kathy J. Byron, Lee Ware, Mike Cunningham, Timothy Hugo, Bill Eigel, Jason Holsman, Daniel Marshall, III, Jacob W Hummel, Robert B. Bell, Israel D. O'Quinn, Jamilah Nasheed, Bob Onder, Ron Richard, David E. Yancey, John Joseph Rizzo, Caleb Rowden, Margaret B. Ransone, Dave Schatz, Scott Sifton, Wayne Wallingford, Michael J. Webert, Paul Wieland, Tony O. Wilt, Christopher T. Head, Jeion A. Ward, Mark L. Keam, Eileen Filler-Corn, Kaye Kory, Joseph C. Lindsey, Lamont Bagby, David J. Toscano, Steve E. Heretick, Michael P. Mullin, Jeffrey M. Bourne, President of the United States, Maria Chappelle-Nadal, U.S. House of Representatives

Stop Forcing Mail-Order Pharmacy as the Only Option of Coverage

Patients' lives depend on choice. **Since starting the petition, I have realized that there are many issues other than temperatures with forced mail-order pharmacy.  Mail-order pharmacy is very loosely regulated. There are life-threatening delays, lack of face-to-face relationship with pharmacists for people with chronic conditions, and rapid closures of our independent pharmacies; although, a recent study showed people prefer independent pharmacy (2018, Gill).    *************Our Story************* Our son, received a life-saving liver transplant at the age of 2 from a 3-year-old little girl. His life depends on the potency and effectiveness of chemotherapy/immune suppression medications every 12 hours to prevent his body's immune system from fighting off his transplanted liver. In the past mail-order delivered his liquid oral medications in nothing but a plastic envelope on a 102-degree day on a hot enclosed not temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail order pharmacy. Recently, we were mandated/forced to only use mail-order pharmacy in order to receive coverage for his life-saving medications.  The package arrived in only a bag on a hot day without an ice pack. The hot non-temperature controlled enclosed delivery truck can reach temperatures up to 170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who performs the testing stated that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could both result in lower potency. Liquid medication is the most harmed by the mishandling of medications outside of the manufactures temperature storage guidelines.  I contacted the mail-order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes guidelines for storage, and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. Again, the trucks reach up to 170 degrees which is much hotter than 104.  I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe..However, since the mail-order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA there was nothing that the FDA could do.  I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote a note/appeal as his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged.  I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail-order of prescription drugs should be a choice, not the only option of coverage.  Mail-order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationship is crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Another important fact. Mandatory mail-order programs are discriminatory. It is estimated that 40% of the homeless are disabled. How is mandatory mail order fair and working for them as they may not have an address and not even know where they will be from day to day? Only allowing mail-order pharmacy for coverage is unethical and irresponsible. I share stories on my social media sites every day of patients who are suffering from lack of choice.  We need your help to make mandatory mail-order an option, not a mandate.  YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!! WE APPRECIATE ALL OF THE SUPPORTERS, CAREGIVERS, & PATIENTS.  Thank you,  Loretta Boesing, Founder of Unite for Safe Medications You may make a tax-deductible contribution to support our advocacy here Email: loretta@uniteforsafemeds.com Facebook Page: Issues with Mail Order Pharmacy @justamomwholovesherson Twitter: @BoesingLoretta The greatest way that you can help is by sharing this petition & gathering 2-3 people in your community who are having issues and speak to your legislatures.                  Reference: Gill, Lisa L. “Consumers Still Prefer Independent Pharmacies, CR's Ratings Show.” Product Reviews and Ratings - Consumer Reports, 7 Dec. 2018, www.consumerreports.org/pharmacies/consumers-still-prefer-independent-pharmacies-consumer-reports-ratings-show/

Loretta Boesing
156,798 supporters