Topic

Disability Rights

541 petitions

Update posted 5 days ago

Petition to Movie Theaters

Movie Theaters - Open Captions (Subtitles) Are Healthier for Everyone!

What are open captions (subtitles, OC)? OC is on-screen text dialogue. OC lets  deaf and hard of hearing people enjoy movies the same way as hearing people do. Closed captions (CC) require use of equipment. Given a choice, most CC equipment users will choose open captions because CC equipment has multiple issues, so many (including discomfort) that we put the list at the bottom of this petition.** (AFTER SIGNING -- PLEASE SHARE!!) OPEN CAPTIONS ARE FOR EVERYONE! Captions also benefit many others, such as kids learning to read and people learning English as a second language (longer list at bottom***), as discussed in the research article "Video Captions Are for Everyone." Plus, many people who do not have hearing loss enjoy watching streamed movies and TV with the subtitles on. The majority of people who use captions are NOT deaf or hard of hearing. These hearing people are very receptive to the idea of OC in movie theaters. Also, OC is HEALTHIER for everyone because of no-contact accessibility! CC  equipment requires TOUCHING. Users must touch either captioning glasses, or seat-mounted equipment. With OC, there is no touching! LIMITED AVAILABILITY OF OPEN CAPTIONS While a growing number of theaters are willing to offer OC, usually only poorly attended time slots are offered. (Then the OC may be blamed for the low attendance without considering the times and dates.)  Theaters resist offering OC during higher attendance times like Friday and Saturday nights, at a time when demand for subtitles is growing among young moviegoers. Your signature demonstrates to both theaters and legislators how much demand and support there is for OC in movie theaters! Legislation is STILL needed even though some theaters are voluntarily offering OC. Voluntary means just that, voluntary. There's nothing to prevent theaters from deciding to cut back or drop OC altogether. Only legislative requirements can protect access to OC permanently. Voluntary is not good enough! Because of public health risks, and growing demand from people without hearing loss as well as those with hearing loss, movie theaters need to give OC a real chance with better dates and times. Normalize OC and make them a standard option alongside CC. Most importantly, we call on movie theaters to stop looking at OC as being only for deaf and hard of hearing people, and start looking at OC as being for everyone! Want to experience OC? Check the list to see if there is a theater near you possibly offering OC: https://www.facebook.com/ocmoviesnow --------------------------------------------------- ** List of Problems and Complaints About Closed Caption Devices: often uncomfortable may cause eyestrain dizziness headaches malfunctions drop lines show the wrong captions may repeat lines batteries die may not have been recharged between users may be unsanitary theater staff may not know what to do with equipment can't stay in place without being held have to move it into position (seat-mounted devices) may bring unwanted attention to the user due to looking "different" can not be used by some people due to vision impairment. *** List of people who benefit and benefits of captioning Kids learning to read (1) Kids learning to read (2) Autism (neurodivergent) Learning English as a second language Improves general literacy Auditory processing disorder or issues, such as auditory neuropathy Sensitivity to noise (hyperacusis), tinnitus, or meniere's Attention deficit disorder (ADD) or attention deficit hyperactivity disorder (ADHD) Down syndrome (1), Down Syndrome (2) Starting to lose their hearing Traumatic brain injury Veterans with battle-acquired hearing loss Difficulty understanding dialogue when there is noise, mumbling, whispering, or accents.  Roommates or parents with young children Dyslexia Learning disabilities Wrist injuries that prevent them from being able to position a closed caption device Watching video content on personal electronic devices with the mute on

Jamie Berke
25,411 supporters
Update posted 1 week ago

Petition to Tennessee State House, Tennessee Governor, Tennessee State Senate

Change conservatorship laws! Let me visit my son!

I have an Autistic son that I raised for 19 years. In 2019 his paternal grandmother picked him up from Georgia for a visit and took him to Tennessee. They never bought him home. That summer his father and paternal grandmother filed for conservatorship over my son. I retained an attorney who advised me that the judge did not have jurisdiction over this case because my son wasn’t a resident of the state of Tennessee. At the court hearing  Chancellor L McMillan granted their request simply  because My family was in the process of a move to Germany and a therapist that had treated my son in TN stated that she did not believe there would be autism services available in Germany. It’s been 2.5 years and I now have no rights to my son. He is currently experiencing a mental health  crisis and has regressed significantly but his father “the conservator” is refusing to allow me to visit him. I flew from Germany to Clarksville just to visit my son. I have contacted attorney after attorney in Clarksville only to be told there is nothing I can do. My son has always stated that he doesn’t want to live with his father. His conservator helped him obtain a driving permit. If they believe he is he is capable Of driving a vehicle, he should be capable of choosing where he wants to live. No one is advocating for him and what he wants.  There is no oversight once a person is placed in conservatorship other than the court system. There should be an oversight committee or agency. In 2019 I was forced to accept that I could not take my son to Germany with me and I did my best to live with the Judges decision but I refuse to allow anyone to keep me from my son forever. I will not stop fighting for the right to have access to my loved one. I hope that no one else has to endure a situation like this.  After continued research to try to advocate for my son, I have found that the issue of visitation for people placed under conservatorship has already been addressed by Senator Rusty Crowe of Tennessee. Senator Crowe introduced the “Campbell/Falk Act," which addresses visitation rights for people under conservatorship. I am incredibly thankful that this law exists. The fact remains that there is still no oversight, and violations of this law continue to happen. There is no easy way to report violations, and depending on the severity of the situation hiring an attorney that is familiar with this law and waiting for a hearing to take place could be costly and cause undue stress to both the family and the respondent. I hope this campaign continues to gain attention and a change is made to address these concerns so that no other family has to deal with this. 

Jasmin Tracey
693 supporters
Update posted 1 week ago

Petition to U.S. Senate, Dan Brown, Kathy J. Byron, Lee Ware, Mike Cunningham, Timothy Hugo, Bill Eigel, Jason Holsman, Daniel Marshall, III, Jacob W Hummel, Robert B. Bell, Israel D. O'Quinn, Jamilah Nasheed, Bob Onder, Ron Richard, David E. Yancey, John Joseph Rizzo, Caleb Rowden, Margaret B. Ransone, Dave Schatz, Scott Sifton, Wayne Wallingford, Michael J. Webert, Paul Wieland, Tony O. Wilt, Christopher T. Head, Jeion A. Ward, Mark L. Keam, Eileen Filler-Corn, Kaye Kory, Joseph C. Lindsey, Lamont Bagby, David J. Toscano, Steve E. Heretick, Michael P. Mullin, Jeffrey M. Bourne, President of the United States, Maria Chappelle-Nadal, U.S. House of Representatives

Stop Forcing Mail-Order Pharmacy as the Only Option of Coverage

Patients' lives depend on choice. **Since starting the petition, I have realized that there are many issues other than temperatures with forced mail-order pharmacy.  Mail-order pharmacy is very loosely regulated. There are life-threatening delays, lack of face-to-face relationships with pharmacists for people with chronic conditions, and rapid closures of our independent pharmacies; although, a recent study showed people prefer independent pharmacy (2018, Gill).  *************Our Story************* Our son received a life-saving liver transplant at the age of 2 from a 3-year-old little girl. His life depends on the potency and effectiveness of chemotherapy or immune suppression medications every 12 hours to prevent his body's immune system from fighting off his transplanted liver. In the past mail-order pharmacy delivered his liquid oral medications in nothing but a plastic envelope on a 102-degree day on a hot enclosed non-temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail-order pharmacy. Recently, we were mandated or forced to only use mail-order pharmacy in order to receive coverage for his life-saving medications.  The package arrived in only a bag on a hot day without an ice pack. I now know that the hot non-temperature controlled enclosed delivery truck and mailboxes can reach temperatures up to 120-170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who performs the testing, who informed me that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could both result in lower potency.  I contacted the mail-order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes guidelines for storage, and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. Again, the trucks reach up to 170 degrees which is much hotter than 104.  I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe. Since the mail-order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA, there was nothing that the FDA could do.  I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote an appeal and his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged.  I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail-order of prescription drugs should be a choice, not the only option of coverage.  Mail-order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationships are crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Only allowing mail-order pharmacy for coverage is unethical and irresponsible. I share stories on my social media sites every day of patients who are suffering from a lack of choice.  We need your help to make mandatory mail-order an option, not a mandate.  YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!! WE APPRECIATE ALL OF THE SUPPORTERS, CAREGIVERS, & PATIENTS.  Thank you,  Loretta Boesing, Founder of Unite for Safe Medications You may make a tax-deductible contribution to support our advocacy here Email: loretta@uniteforsafemeds.com Facebook Page: Issues with Mail Order Pharmacy @justamomwholovesherson Twitter: @BoesingLoretta The greatest way that you can help is by sharing this petition & gathering 2-3 people in your community who are having issues and speak to your legislatures.    Reference: Gill, Lisa L. “Consumers Still Prefer Independent Pharmacies, CR's Ratings Show.” Product Reviews and Ratings - Consumer Reports, 7 Dec. 2018, www.consumerreports.org/pharmacies/consumers-still-prefer-independent-pharmacies-consumer-reports-ratings-show/

Loretta Boesing
177,863 supporters
Update posted 1 week ago

Petition to Florida State University, Florida Governor

Demand Dr George Rust to resign immediately or atone for abusing his autistic nephew

Dr. George S Rust is an unethical doctor and medical professor who assisted other doctors into committing pharmaceutical malpractice against his autistic nephew for 10 years that he was granted custody of when his parents were unable to care for him but instead of providing his nephew the love and support in guidance he needed he turned pharmaceuticals to pacify him.  Unfortunately these pharmaceuticals had a horrible side effects that greviously injured his nephew and instead of apologizing to his nephew Dr. Rust threw him away like a literal piece of trash and left him to die around the same time Florida State University offered him a job.  Now his autistic nephew struggles to make ends meet and is constantly dodging homelessness and starvation and even been denied disability benefits four times in spite of the enormous health problems the pharmaceutical industry gave him with the help of Dr. Rust.  All while Dr. Rust goes on luxury cruises and enjoys lavish benefits as a medical professor at Florida State University.  It is shameful that Dr Rust goes on luxury cruises like the one in this picture while his autistic nephew he threw away like a literal piece of trash struggles to make ends meet and frequently goes without basic needs despite his best efforts.  Dr. Rust should either resign or atone for all of the unjust and unnecessary suffering he’s brought upon his autistic nephew

Matthew Boswell
577 supporters