Topic

disability

124 petitions

Update posted 24 hours ago

Petition to Alan Joyce, Paul Scurrah, Gareth Evans

Make air travel inclusive for people with disability

My name is Noah, I live with quadriplegia cerebral palsy. Because of my disability, I cannot support or bear the weight of any part of my body. One of the most unnecessary challenges I face is traveling on planes. I think it’s time airlines stopped making air travel so demeaning and difficult for people with disabilities. I use an electric wheelchair that is specifically designed to support my full body weight, to ensure my safety and comfort. I cannot use the regular wheelchairs offered by airlines as they aren’t equipped to fully support me. I need to stay in my motorised wheelchair until the last possible moment. Australian airlines need to step up and allow dignified air travel for people with disability. Special motorised wheelchairs must be made available. My air travel experiences have been undignified and have compromised my safety. In the past, I have been lifted from my chair by a hydraulic lift while my carer precariously supports me. My carer has to carry me to my designated seat which is usually a fair way down the plane. It is awkward, demeaning and dangerous. Not only is it an OHS issue for my carer, but also unsafe for me to have my complete body weight on one person. Besides, it is absolutely inappropriate that a grown man like me is subjected to this degradation when instead airlines can start providing special motorised wheelchairs to support us. To continue the spectacle, planes don’t have capacity to store my chair because of its non-standard dimensions and weight. It is 2019 and people with disability are still not treated with the care and respect we deserve. Airlines need to assign special space for any such equipment that people with disability may necessarily carry. I am hoping eventually that laws may change in relation to travelling in an electric wheelchair and that one day I may be able to sit in my own chair on an aeroplane similar to what is currently allowed in a vehicle. I know that America is considering such options, and hopefully, other countries will follow. Please sign and share my petition to demand inclusive treatment for people with disability by Australian airlines. A one-size-fits-all approach is not enough.

Noah Callan
15,556 supporters
Update posted 6 days ago

Petition to Simon Harris, Charles Flanagan, Stephen Donnelly, Bernard Durkan, Michael Harty, Alan Kelly, Margaret Murphy O'Mahony, Kate O'Connell, Louise O'Reilly, Finian McGrath, Catherine Byrne, Marc MacSharry, Eugene Murphy, Caoimhghín Ó Caoláin, Gino Kenny, paul murphy, Thomas Pringle, Maureen O'Sullivan

Fibromyalgia to be recognised as an Official Disability in the Rep. Of Ireland

 Fibromyalgia. What is Fibromyalgia ? Fibromyalgia is a central nervous system disorder, and can be described as a central sensitization syndrome, caused by neurobiological abnormalities. This acts to produce physiological pain and cognitive impairments, as well as neuropsychological symptomatology. In simpler definition: Fibromyalgia is a chronic condition characterized by widespread pain in your muscles, nerves, ligaments and tendons, multiple tender points - places on your body where slight pressure causes pain, as well as very debilitating chronic fatigue and problems with mental processes, such as thinking and learning ( which is also called by nickname “Fibro fog”) Myofascial pain syndrome is a chronic form of muscle pain. The pain of Myofascial pain syndrome centers around sensitive points in your muscles called trigger points. The trigger points in your muscles can be painful when touched. And the pain can spread throughout the affected muscle. You may be asking,” Why did I start the Petition?” Well…. While Fibromyalgia is not rare diseases by the numbers, even though it is in the World Health Organisation listed as a neurological disease, we can feel it, by the rarity of research, understanding & treatment towards the chronically ill community. This is a life-changing and debilitating condition and we are often outcasted sufferer's of stigmatisation & marginalisation. This is classified as an "impairment" or a"long-term illness" rather than a disability. With these factors comes with sufferer's struggling with their mental health due to these impacts. It is estimated that 90,000 to 180,000 are affected by Fibromyalgia in Ireland. This illness, can have quite an insidious onset, that it just doesn’t start just suddenly, it starts as local pain, in one area of the body, then builds up gradually, with conditions unlikely to be resolved. We have been trying to highlight how this pain affects all areas of in the lives of sufferers'. An example would be the serious gaps in treatment care, from a social welfare and healthcare point of view, our occupations, school/college and etc.Fibro Ireland and Chronic Pain Ireland have been in contact with social welfare several times and no answer has been given. HSE told them that they would update the Fibromyalgia section on their page…but 7 years later, this still hasn’t happened. Protocol 6 is no longer available on the social welfare site. And so I want to stand/sit/lie in solidarity with my fellow Spoonies by starting this petition (on the 2nd March 2019), to help raise awareness of our reality & injustice on our invisible daily battles. (The spoon theory is a disability metaphor and neologism, used to explain the reduced amount of mental and physical energy available for activities of living and productive tasks that may result from disability or chronic illness.) We want better communication & updated understanding from the healthcare system. We deserve increased biomedical research funding, removal of ineffective treatments & instead care provided by medical professionals who are trained in the accurate diagnosis & appropriate treatment.  Do not just leave it up to these Charity sectors, such as FibroIreland and Chronic Pain Ireland and their support groups ( who have been beyond amazing in supporting and raising awareness on the sufferers' behalf). On 24 January 2007, the World Health Organisation definitively classified Fibromyalgia with the code M-79.7 in the International Classification of Diseases (Chapter XIII ‘Diseases of the musculoskeletal system and connective tissue’). In the United States, fibromyalgia is recognised as a disease which causes disability, and the Food and Drug Administration (FDA) has approved drugs to treat the disease. And after a historic debate in the UK, Westminster Hall, on Tuesday 15th January, MPs of all parties contributed to a debate on fibromyalgia, helping to raise awareness of the condition. They shared stories from their own lives, and those of their constituents, about its impact. The debate focussed on the impacts of fibromyalgia, the support available and how the healthcare and benefits systems could be improved for people living with condition. It followed a petition started by a person with the condition, Adrienne Lakin, that attracted over 115,000 signatures and called for fibromyalgia to be recognised as a disability under the Equalities Act 2010. Over 20 MPs turned up to speak in the debate. It was led by the Labour MP for Chesterfield, and in Westminster, Toby Perkins. We want the same in for the people of Ireland and not to be left behind! Even the European Parliament has signed a declaration, calling for the recognition of Fibromyalgia as a disease which causes disability with a right to claim exemption. But to date, nothing has been done, as regards to implementing the declaration here in the Republic of Ireland. Why? Fibromyalgia is still somewhat of a black box to the Irish medical community. It is a diagnosis of exclusion; in order to get the label, you must have pain in all four quadrants of the body for more than the recommended three months (most times this is not often the case though) Often, you have at least some of the 18 fibro “tender spots” on your body—on your legs, on your shoulders, on the back of your head—that trigger pain when pressed. So what are you waiting for? We want this to be respectfully recognised as a disability, according to the Disability Act 2005. Please listen to us and believe in us...by signing and sharing this :) Motto? Don't judge a disability by its visibility :) x

Blessing Dada
19,166 supporters
Update posted 1 week ago

Petition to Amit Shah, Rajesh Ranjan, Dr. Anil Pandey

Sensitivity Training CISF Staff at Indian Airports to Manage People with Disability

“What do you mean you cannot walk? You have to stand up for security check. Stop doing drama!” I use a wheelchair, and this is not the first time I have taken a flight to travel. On 9th September, I was travelling to Mumbai from Delhi’s T3 terminal, where I surrendered my wheelchair at the check-in counter. I specifically told them staff that I cannot walk or stand due to a spinal cord injury that happened in 2006. They were understanding and assigned a porter all the way to my seat on the flight. When I reached security, one of the CISF women started forcing me to stand up for security checking. When I told her I couldn’t walk or stand, she started making a scene. After being told incessantly to stand, she refused to believe me. “That girl is so melodramatic, she’s unnecessarily doing drama. She can obviously stand.” This is the second time the CISF has been insensitive towards me and my disability. Even the porter that was assigned to me was trying to explain that I cannot walk or stand and she was being rude. Is this how you treat people with disabilities? There is an urgent need for the CISF staff to undergo sensitivity training on how to interact with people with disabilities. When I wrote to the CISF about this, I received a positive response from them on the idea of these sensitivity training sessions. CISF personnel has already been given training last year in soft skill, that is on how to speak and behave with passengers at the airport. This additional sensitivity training will be a great step towards inclusion and sensitivity at airports Sign my petition asking CISF to conduct sensitivity training for all CISF staff at Indian Airports to manage people with disabilities. Join me in making our airports inclusive for all. Let us all travel with dignity and encourage CISF sensitivity so we can #FlyWithDignity.

Virali Modi
22,540 supporters
Started 1 month ago

Petition to The Irish Government

Irish State can secretly REMOVE ALL OF YOUR RIGHTS with archaic 1871 law

YOUR RIGHTS CAN BE ABOLISHED AT THE STROKE OF A PEN: THE 1871 ARCHAIC WARD OF COURT LAW still in effect in Ireland today. If you have an accident, maybe a car accident, a fall, a stroke, or an illness and go into a HSE hospital, you could end up being a Ward of Court. A HSE psychiatrist comes along and declares you a 'lunatic', there is no standard whatsoever of assessment required. They just have to say that they declare you to be of 'unsound mind and unable to manage their personal affairs'. Orders can then be made to remove you to ANY LOCATION and remove ALL contact with YOUR FAMILY and FRIENDS, and place all your assets with the court. There is already an outstanding issue in the Wards of Court, people's funds have been lost and nobody is answerable for this. HIDDEN & UNKNOWN but disastrous when it is applied to you in a Court where you become ANONYMOUS. Nobody is allowed to mention your name in public EVER AGAIN. The UN CRPD does not create any new human rights. Instead, it states that all existing human rights apply equally to people with disabilities.  There are thousands of people who are Wards of Court. They are not allowed to choose where they live, what they eat, what they wear or refuse medical treatment (any operations and medications are given against your will). Please stop psychiatrists using this archaic law. To make decisions for yourself is WHAT IT MEANS TO BE HUMAN. Help the Irish people remove the medieval Ward of Court System in this country now by making the government COMMENCE the long overdue ASSISTED DECISION MAKING ACT.  The Assisted Decision Making (Capacity) Act will remove the 1871 Ward of Court Legislation and will comply with the UNCRPD. BUT IT STILL HAS NOT BEEN COMMENCED! See links to further information below: 1) Origin of Ward of Court Legislation https://en.m.wikipedia.org/wiki/Court_of_Wards_and_Liveries  2) RELATE: Citizens Information Ireland Social Policy Update 2018 https://www.google.com/url?sa=t&source=web&rct=j&url=http://www.citizensinformationboard.ie/downloads/relate/relate_2018_04.pdf&ved=2ahUKEwiSlK6C8erlAhVRY8AKHQnpDbwQFjAAegQIAxAB&usg=AOvVaw3NQITHLvm1FGtmNcyD3utI 3) Review of Wardship in Ireland SAGE 2017 https://www.sageadvocacy.ie/media/1153/review-of-current-practice-in-the-use-of-wardship_dec-2017.pdf

Tom Murphy
43 supporters