Topic

Diabetes awareness

9 petitions

Update posted 6 days ago

Petition to Bill Lee, Mark Green, Marsha Blackburn, Bill Powers, Jason Hodges, Jay D. Reedy, Richard Briggs, Curtis G. Johnson

Make Life Saving Insulin More Affordable

It's time for all Tennesseeans to have affordable insulin! My son, Trevon was diagnosed with diabetes at the age of 4. We are fortunate enough to have good health insurance to cover the expensive cost of insulin and other diabetic related supplies.  Diabetics that are unable to afford their insulin run the risk of many health problems: Blindness, kidney failure, nerve damage, limb loss, depression, and death. Although diabetes has been around for centuries along with insulin, drug manufactures continue to raise the costs for this medicine versus developing a cure. I believe that families shouldn't have to worry about how they will buy life-sustaining medication while giant pharmaceutical companies rake in record-setting profits. This petition is not asking for free insulin. It is asking for fair pricing for medications that are needed to sustain life. Only we, the people of the United States of America can change things. Only we, are able to make our voices heard, raise awareness, and put a cap on what a diabetic has to spend monthly on a medication that they need to live and be a functional member of society.  Canada’s price for insulin is $90, and Colorado recently passed an insulin price cap of $100 per month. It's time for Tennessee to join Colorado in passing a price cap on this life-saving drug. The insulin price cap in Colorado has shown that it’s possible for states to take control of outrageous insulin pricing and as a result, to save lives. It’s time for Tennessee to join them in protecting Tennesseans with diabetes from avoidable health risks. I urge you to look into the legislation that Colorado passed as a potential example for Tennessee to follow.

Richard Garrett
13,559 supporters
Started 10 months ago

Petition to United States Department of Health and Human Services, President of the United States

Rename Type 1 Diabetes to Beta Cell Deficiency Disease

On September 24, 2018, our 9 year old son was diagnosed with Type 1 Diabetes. Suddenly we were members of a global community fighting a disease that we didn't understand and knew nothing about. Like most of our friends and family, our extent of knowledge about diabetes was limited to what we knew of our grandparents’ generation of diabetics who could no longer enjoy sugar. We were not aware that the blanket term of “diabetes” was being used for two VERY DIFFERENT Diseases: Type 1 Diabetes and Type 2 Diabetes. The number of people with DIABETES has risen to 430 million people globally in 2019. Of those 430 million people, 90% suffer from Type 2 diabetes, while only 10% are affected by Type 1 Diabetes.   Type 1 diabetes Type 1 diabetes (previously known as insulin-dependent, juvenile or childhood-onset) is an AUTO IMMUNE DISEASE characterized by the destruction of the beta cells of the pancreas resulting in deficient insulin production.  Type 1 diabetes is a CHRONIC DISEASE that requires daily administration of insulin.  The cause of type 1 diabetes is not known. Type 1 Diabetes is NOT PREVENTABLE and it is NOT CURABLE with current knowledge. Type 2 diabetes Type 2 diabetes (formerly called non-insulin-dependent, or adult-onset) is a METOBOLIC CONDITION characterized by the body’s ineffective use of insulin. Type 2 diabetes comprises the majority of people with diabetes around the world is and is largely the result of excess body weight and physical inactivity. Type 2 Diabetes IS PREVENTABLE and IS CURABLE (REVERSIBLE) with current knowledge. Until recently, this type of diabetes was seen only in adults but it is now also occurring increasingly frequently in children. It is with our son's future, and the futures of all of the children and adults in this community, in mind that we file this petition to bring clarity to two very different diseases - Type 1 and Type 2 Diabetes.  The facts surrounding both of these conditions are increasingly confused by the media. Revising the name of Type 1 Diabetes to AutoImmune Beta Cell Deficiency Disease to more accurately reflect the nature and onset of Type 1 Diabetes would alleviate the confusion and would not only benefit those living with both diseases, but it would allow for correct awareness. We hope that you will join us in this effort. Thank you, Maria and Eric Kaplan Type 1 Diabetes and Type 2 Diabetes are two very different conditions; yet their names are only distinguished by a number. Their 'type' is rarely, if ever, clarified when discussed by the media or the public. This leads to widespread confusion surrounding the differences between these two forms of Diabetes.  Our petition addresses this issue within three primary goals: 1. To end the widespread misconceptions regarding Type 1 & Type 2 Diabetes 2. To allow advocates of both diseases to properly educate the public and bring awareness to their unique form of Diabetes. 3. To facilitate more effective fundraising to meet the specific goals of each type of Diabetes (ie. Prevention for Type 2 and a CURE for Type 1) The misconceptions regarding Type 1 and Type 2 Diabetes start with using numbers rather than distinct names.  This is compounded by the surge of Type 2 diabetes in both children and adults, and the onslaught of media coverage that fails to clarify the 'type'. While the well-publicized coverage is improving the lives of both those living with Type 2, and those on the path to developing the disease, it in no way relates to Type 1. For example, diabetes is frequently the subject of television shows, such as "The Biggest Loser" and "Dr. Oz". It is also the subject of school education programs, general news programs, and tabloid papers which tout how to “cure” diabetes with a healthy diet and exercise, but with no mention of the specific 'Type', the public believes that Type 1 and Type 2 are one in the same.  This misconception is especially dangerous for those with Type 1 when teachers, coaches, medics, nurses, friends and family share the same misconceptions as the general public.  Dismissing Type 1 Diabetes as less than a critical condition could result in a life-threatening situation in a matter of minutes. Unfortunately, the incidence of Type 1 is also on the rise; but the public has NO IDEA because they think they know all there is to know about Diabetes. Their child is not overweight or eating too much sugar so they couldn’t possibly have diabetes! As a result, Type 1 diabetes symptoms are brushed off as the flu, stomach virus, ear infection, growth spurt, or any number of innocuous things by parents and the medical community alike, resulting in serious illness or even death.    Tragic stories are making the news on a regular basis, but the media is MISSING THE OPPORTUNITY to educate the public on signs and symptoms of Type 1. Historically, the confusion between Type 1 and Type 2 did not exist.   If you were diagnosed as a child, you had Type 1, thus the previous name of Juvenile Diabetes.  If you were diagnosed as an adult, you had Type 2. Unfortunately, the lines have been blurred by the increase in children being diagnosed with Type 2 diabetes (due to poor diet and lack of exercise) and the increase in adults being diagnosed with Type 1 diabetes (due to reasons unknown, but likely linked to environment and/or genetics).  While the terms Juvenile Diabetes and Adult-Onset Diabetes are now outdated, the general public has held tight to the misconceptions surrounding them.  For example, many people still believe that a Type 1 (Juvenile) Diabetic can OUTGROW a diabetes diagnosis, which, of course is not true. They also believe that a Type 1 Diabetics got diabetes from “eating too much sugar” or “not exercising enough”, both also, untrue.    Untrue, and hurtful.   There ARE other forms of Diabetes with names that more accurately reflect their nature, such as Gestational Diabetes, Maturity-Onset Diabetes of the Young (MODY)and Latent Autoimmune Diabetes in Adults (LADA). What nature does Type 1 and Type 2 indicate? They are the most common forms of Diabetes, yet their names remain the most generic and are easily confused.   Type 1 Diabetes and Type 2 Diabetes very different in their risk factors, their onset, and their treatment and management intensity. Type 2 Diabetes is a metabolic disorder in which the pancreas is still capable of producing insulin; however, the cells of the body have become insulin resistant. It accounts for more than 90% of those currently living with diabetes. While it is not always the case, Type 2 is most often caused by a combination of lifestyle and genetic factors.  Type 2 Diabetes is initially managed through modification of diet and exercise; however, oral medication and insulin may become necessary as the disease progresses. The onset of Type 2 is gradual and in many cases, early intervention can delay onset, alleviate symptoms, or even prevent its development altogether. Type 1 Diabetes is a chronic, autoimmune disease in which the body's immune system destroys the insulin producing beta cells in the pancreas. Type 1 is never caused by diet or lifestyle, the onset is rapid and it cannot be prevented or cured. All children and adults with Type 1 require insulin every hour of every day and night, by means of multiple daily injections or infusion through a pump, to stay alive. Their blood sugar is impacted by everything in their daily lives, such as exercise, mental activity, stress, excitement, and food. Type 1 Diabetes is intensely emotional for the diabetic patient, their families and caretakers. It strips the person of their spontaneity as every bite must be calculated and every move must be monitored. It thrusts caretakers into the roll of doctor and robs parents of their sense of security. Will my child go blind or suffer kidney failure from prolonged high blood sugars? Will they suffer a seizure or die in their sleep from a sudden low blood sugar? The day to day, hour by hour, minute by minute management of this disease is serious and intense. It warrants AWARENESS and it demands a CURE.   Public education and awareness is crucial for both 'types' of Diabetes. Each disease has a different message that needs to be delivered to the public in order to properly treat those affected by it. In addition, the fundraising goals of Type 1 and Type 2 have a different focus. Fundraising For Type 2 Diabetes is often allocated to early intervention and life-style education while fundraising for Type 1 Diabetes is allocated to developing new products to help ease the burden of the T1 (constant glucose monitors, pumps, artificial pancreas, etc.) until a CURE can be found.   A name change that more accurately reflects the nature of each disease would alleviate the confusion and allow advocates of both groups to communicate their personal message and focus on their unique fundraising goals. Type 2 Diabetes will continue to garner media exposure regardless of the name it bears so a name change is welcome, but not entirely necessary, however a new name for Type 1 Diabetes is CRITICAL as it will ensure the unique identity that it urgently needs to promote awareness and advocate for a cure. It is time for a new name to end to misconceptions, uniquely focused advocacy and goal directed fundraising of Type 1 Diabetes.  We are not requesting a significant disease reclassification. We are simply requesting a new name that properly reflects the nature and onset of Type 1 Diabetes. The medical community should determine an appropriate name, but as an example, the nature and onset for Type 1 would be better reflected in a name such as  Beta Cell Deficiency Disease (BCD).   A name change is not a monumental task. It has been done before. The time has come to do it again.

Maria Kaplan
669 supporters