20 petitions

Update posted 4 weeks ago

Petition to Pennsylvania State House, Pennsylvania State Senate, Pennsylvania Governor

Price cap on insulin in Pennsylvania

In Pennsylvania, insulin costs $270 a vial - a prohibitively expensive price for many diabetics. This vial lasts a month at most for many diabetics. Others require three or more vials per month, skyrocketing the price up to $1000 a month for something they need to survive. However, pricing elsewhere shows that this high cost is not necessary. Canada’s price for insulin is $90, and Colorado recently passed an insulin price cap of $100 per month. It's time for Pennsylvania to join Colorado in passing a price cap on this life-saving drug. Sign and share this petition today to ask Pennsylvania state legislators to take a stand for those with diabetes by instituting an insulin price cap. Because of the incredibly high cost of insulin and other expensive supplies to handle their diabetes, many diabetics are forced into dire situations. Many diabetics have resorted to rationing insulin, risking their lives every day because they can’t afford to pay for their next vial. People are forced to choose between the insulin they need to survive, and keeping a roof over their head and food on the table for their families. I know firsthand how stressful paying for insulin can be. My girlfriend has Type 1 diabetes, and worries constantly about whether her insurance will continue to cover the costs of her insulin and related supplies. People’s lives shouldn’t be put at risk because the insulin they require to live isn’t deemed “necessary” by insurance. The insulin price cap in Colorado has shown that it’s possible for states to take control of outrageous insulin pricing and as a result, to save lives. It’s time for Pennsylvania to join them in protecting Pennsylvanians with diabetes from avoidable health risks. Please sign this petition to urge Pennsylvania state legislators to save lives with an insulin price cap.

Christian Luciano
75,935 supporters
This petition won 2 months ago

Petition to Colorado General Assembly, Kerry Donovan, Dylan Roberts, Kevin Priola

Insulin Costs $500 a Month. A Bill in Colorado Wants to Change That.

Ten percent of the American population has diabetes. And yet, insulin, the medication needed for those with diabetes to stay alive, has skyrocketed to unaffordable levels over the last few years. Because of this, 25 percent of patients with diabetes "self-ration" their insulin because the costs are too high.  An exciting bill in Colorado's legislature, HB19-1216, hopes to change this. This law would place the responsibility on carriers to pass along rebates to consumers. There would be a $100 cap on cost to consumers for each monthly supply of insulin drugs, which will provide immediate relief to families and consumers who are hurting. Self-rationing of insulin can result in life-threatening conditions, such as blindness, kidney failure, loss of limbs, and even death. But sadly, this practice is becoming even more common as insulin prices increasingly rise, reaching $500 a month this year. This piece of legislation is so important for the hundreds of thousands of Coloradans with diabetes. But we need your support to make sure it gets through the final hurdle. The United States has the highest prescription drug costs in the world. These overwhelming prices are forcing Coloradans to choose between taking the necessary medicine need, and putting food on the table. This is not just or humane, and needs to stop. Join us in urging our legislators to fight the incredibly high insulin costs by supporting HB19-1216, a bipartisan bill that will give support to patients who sorely need it. We need your help: share this petition so we can let our legislators know Coloradans demand they support this crucial piece of legislation.

Healthier Colorado
156,220 supporters
Started 5 months ago

Petition to United States Department of Health and Human Services, President of the United States

Rename Type 1 Diabetes to Beta Cell Deficiency Disease

On September 24, 2018, our 9 year old son was diagnosed with Type 1 Diabetes. Suddenly we were members of a global community fighting a disease that we didn't understand and knew nothing about. Like most of our friends and family, our extent of knowledge about diabetes was limited to what we knew of our grandparents’ generation of diabetics who could no longer enjoy sugar. We were not aware that the blanket term of “diabetes” was being used for two VERY DIFFERENT Diseases: Type 1 Diabetes and Type 2 Diabetes. The number of people with DIABETES has risen to 430 million people globally in 2019. Of those 430 million people, 90% suffer from Type 2 diabetes, while only 10% are affected by Type 1 Diabetes.   Type 1 diabetes Type 1 diabetes (previously known as insulin-dependent, juvenile or childhood-onset) is an AUTO IMMUNE DISEASE characterized by the destruction of the beta cells of the pancreas resulting in deficient insulin production.  Type 1 diabetes is a CHRONIC DISEASE that requires daily administration of insulin.  The cause of type 1 diabetes is not known. Type 1 Diabetes is NOT PREVENTABLE and it is NOT CURABLE with current knowledge. Type 2 diabetes Type 2 diabetes (formerly called non-insulin-dependent, or adult-onset) is a METOBOLIC CONDITION characterized by the body’s ineffective use of insulin. Type 2 diabetes comprises the majority of people with diabetes around the world is and is largely the result of excess body weight and physical inactivity. Type 2 Diabetes IS PREVENTABLE and IS CURABLE (REVERSIBLE) with current knowledge. Until recently, this type of diabetes was seen only in adults but it is now also occurring increasingly frequently in children. It is with our son's future, and the futures of all of the children and adults in this community, in mind that we file this petition to bring clarity to two very different diseases - Type 1 and Type 2 Diabetes.  The facts surrounding both of these conditions are increasingly confused by the media. Revising the name of Type 1 Diabetes to AutoImmune Beta Cell Deficiency Disease to more accurately reflect the nature and onset of Type 1 Diabetes would alleviate the confusion and would not only benefit those living with both diseases, but it would allow for correct awareness. We hope that you will join us in this effort. Thank you, Maria and Eric Kaplan Type 1 Diabetes and Type 2 Diabetes are two very different conditions; yet their names are only distinguished by a number. Their 'type' is rarely, if ever, clarified when discussed by the media or the public. This leads to widespread confusion surrounding the differences between these two forms of Diabetes.  Our petition addresses this issue within three primary goals: 1. To end the widespread misconceptions regarding Type 1 & Type 2 Diabetes 2. To allow advocates of both diseases to properly educate the public and bring awareness to their unique form of Diabetes. 3. To facilitate more effective fundraising to meet the specific goals of each type of Diabetes (ie. Prevention for Type 2 and a CURE for Type 1) The misconceptions regarding Type 1 and Type 2 Diabetes start with using numbers rather than distinct names.  This is compounded by the surge of Type 2 diabetes in both children and adults, and the onslaught of media coverage that fails to clarify the 'type'. While the well-publicized coverage is improving the lives of both those living with Type 2, and those on the path to developing the disease, it in no way relates to Type 1. For example, diabetes is frequently the subject of television shows, such as "The Biggest Loser" and "Dr. Oz". It is also the subject of school education programs, general news programs, and tabloid papers which tout how to “cure” diabetes with a healthy diet and exercise, but with no mention of the specific 'Type', the public believes that Type 1 and Type 2 are one in the same.  This misconception is especially dangerous for those with Type 1 when teachers, coaches, medics, nurses, friends and family share the same misconceptions as the general public.  Dismissing Type 1 Diabetes as less than a critical condition could result in a life-threatening situation in a matter of minutes. Unfortunately, the incidence of Type 1 is also on the rise; but the public has NO IDEA because they think they know all there is to know about Diabetes. Their child is not overweight or eating too much sugar so they couldn’t possibly have diabetes! As a result, Type 1 diabetes symptoms are brushed off as the flu, stomach virus, ear infection, growth spurt, or any number of innocuous things by parents and the medical community alike, resulting in serious illness or even death.    Tragic stories are making the news on a regular basis, but the media is MISSING THE OPPORTUNITY to educate the public on signs and symptoms of Type 1. Historically, the confusion between Type 1 and Type 2 did not exist.   If you were diagnosed as a child, you had Type 1, thus the previous name of Juvenile Diabetes.  If you were diagnosed as an adult, you had Type 2. Unfortunately, the lines have been blurred by the increase in children being diagnosed with Type 2 diabetes (due to poor diet and lack of exercise) and the increase in adults being diagnosed with Type 1 diabetes (due to reasons unknown, but likely linked to environment and/or genetics).  While the terms Juvenile Diabetes and Adult-Onset Diabetes are now outdated, the general public has held tight to the misconceptions surrounding them.  For example, many people still believe that a Type 1 (Juvenile) Diabetic can OUTGROW a diabetes diagnosis, which, of course is not true. They also believe that a Type 1 Diabetics got diabetes from “eating too much sugar” or “not exercising enough”, both also, untrue.    Untrue, and hurtful.   There ARE other forms of Diabetes with names that more accurately reflect their nature, such as Gestational Diabetes, Maturity-Onset Diabetes of the Young (MODY)and Latent Autoimmune Diabetes in Adults (LADA). What nature does Type 1 and Type 2 indicate? They are the most common forms of Diabetes, yet their names remain the most generic and are easily confused.   Type 1 Diabetes and Type 2 Diabetes very different in their risk factors, their onset, and their treatment and management intensity. Type 2 Diabetes is a metabolic disorder in which the pancreas is still capable of producing insulin; however, the cells of the body have become insulin resistant. It accounts for more than 90% of those currently living with diabetes. While it is not always the case, Type 2 is most often caused by a combination of lifestyle and genetic factors.  Type 2 Diabetes is initially managed through modification of diet and exercise; however, oral medication and insulin may become necessary as the disease progresses. The onset of Type 2 is gradual and in many cases, early intervention can delay onset, alleviate symptoms, or even prevent its development altogether. Type 1 Diabetes is a chronic, autoimmune disease in which the body's immune system destroys the insulin producing beta cells in the pancreas. Type 1 is never caused by diet or lifestyle, the onset is rapid and it cannot be prevented or cured. All children and adults with Type 1 require insulin every hour of every day and night, by means of multiple daily injections or infusion through a pump, to stay alive. Their blood sugar is impacted by everything in their daily lives, such as exercise, mental activity, stress, excitement, and food. Type 1 Diabetes is intensely emotional for the diabetic patient, their families and caretakers. It strips the person of their spontaneity as every bite must be calculated and every move must be monitored. It thrusts caretakers into the roll of doctor and robs parents of their sense of security. Will my child go blind or suffer kidney failure from prolonged high blood sugars? Will they suffer a seizure or die in their sleep from a sudden low blood sugar? The day to day, hour by hour, minute by minute management of this disease is serious and intense. It warrants AWARENESS and it demands a CURE.   Public education and awareness is crucial for both 'types' of Diabetes. Each disease has a different message that needs to be delivered to the public in order to properly treat those affected by it. In addition, the fundraising goals of Type 1 and Type 2 have a different focus. Fundraising For Type 2 Diabetes is often allocated to early intervention and life-style education while fundraising for Type 1 Diabetes is allocated to developing new products to help ease the burden of the T1 (constant glucose monitors, pumps, artificial pancreas, etc.) until a CURE can be found.   A name change that more accurately reflects the nature of each disease would alleviate the confusion and allow advocates of both groups to communicate their personal message and focus on their unique fundraising goals. Type 2 Diabetes will continue to garner media exposure regardless of the name it bears so a name change is welcome, but not entirely necessary, however a new name for Type 1 Diabetes is CRITICAL as it will ensure the unique identity that it urgently needs to promote awareness and advocate for a cure. It is time for a new name to end to misconceptions, uniquely focused advocacy and goal directed fundraising of Type 1 Diabetes.  We are not requesting a significant disease reclassification. We are simply requesting a new name that properly reflects the nature and onset of Type 1 Diabetes. The medical community should determine an appropriate name, but as an example, the nature and onset for Type 1 would be better reflected in a name such as  Beta Cell Deficiency Disease (BCD).   A name change is not a monumental task. It has been done before. The time has come to do it again.

Maria Kaplan
493 supporters
Update posted 9 months ago

Petition to Pharmaceutical Companies

Lower Insulin Costs

I’ve questioned so many times “why me?” in regards to having Type 1 Diabetes. After losing health insurance recently and having to pay out of pocket, I get it. One goal of insulin costs $300. One bottle. $300. That’s insane!!!! A life sustaining medication should NOT be that costly. For anyone, anywhere. And that’s just the insulin. I’m going to start a petition to demand that pharmaceutical’s lower the cost. Then I’m going to meet with the JDRF people in hopes of going to Washington. My goal? Go to Washington, DC. Use my voice, share my story. Have changes made, for all Diabetics. For Diabetics, this is not a choice. We HAVE to have this to survive. Insulin is a life-sustaining medication. Insulin dependent Diabetics must take insulin to live. There is no choice in this. We have to maintain a constant amount of insulin in our bodies to live. Without insulin, Diabetics will die. There is no other option but to take insulin. I recently had to purchase a vial of insulin for $300. That will last me a week, maybe. There are no generics for any insulin. Pharmaceutical companies need to lower the price or release the patent to allow for generics. And that price is JUST for a vial of insulin. Then there are the supplies that are needed.  No life-sustaining medication should be this costly. Ever. Our lives depend on this. We cannot live without it. Please, help me bring attention to this and make changes!

Jennifer Scheuerman
41,434 supporters