developmental disability

15 petitions

Update posted 2 months ago

Petition to Jay Inslee, Donald J. Trump

We want telehealth on all platforms mandated to be covered by all insurance companies.

With the current public health crisis patients across the country, particularly those with developmental challenges are being denied coverage for telehealth services. Without access to these services, patients are subject to increases in self-harm, losing skills essential to their daily living, increased stress and increased likelihood of mental health issues. Without coverage for telehealth services, families around the country are left with the financial burden of paying to access care out of their own pockets, creating additional strain and burden during fragile economic times. Health care providers are in-network with a number of insurance carriers and are advocating for the services of their patients to continue. However, without a mandate requiring all insurances to cover telehealth, providers are left with the choice of seeing patients in person (something we have all been guided to avoid) or abandoning their patients.  There is a simple solution to this problem. We have providers in a number of insurance networks, credentialed and available to provide these needed services.  Additionally, there are a number of platforms available and used today to provide telehealth services. Is this possible? Yes! We have already seen a mandate passed that allows providers to serve patients on Medicare via any virtual communication platform. We need to have our local and federal government mandate coverage and payment for all services provided via telehealth without licensure restrictions across state lines.  Together we can help those in need. We appreciate your support!

2,115 supporters
Update posted 1 year ago

Petition to Richard Pan, Joaquin Arambula, Jacqui Irwin, Gavin Newsom

Eliminate FCPP and Increase Daycare Funding for Kids with Special Needs in CA

Families eligible for Regional Center services in the State of CA need increased  daycare funding and elimination of the Family Cost Participation Program (FCPP) this year. We need a legislative champion. Please sign our petition and add your own story to encourage our Legislators to take action this year! We've waited long enough. We are asking Governor Newsom to fully restore the Lanterman Act by overturning the FCPP, which continues to harm special needs families, when the State is not even tracking the savings.  The Great Recession is over, yet families are still only offered 2008 rates for supplemental daycare funding! In Ventura County, considered a high cost-of-living county in CA, the State only allows Tri-Counties Regional Center (TCRC) to pay $3.33/hour (the lowest "median rate" in CA) for daycare funding for special needs families, while families in LA get $12/hour through North Los Angeles County Regional Center! This must end, along with FCPP. The goal of the Statewide Rate Survey, conducted by Burns & Assoc., is to come up with a new rate model for services. Their recommendations are under review by DDS and the CA Legislature, yet their process entirely ignored daycare rates - WHY??? Families need help now. The median rate system needs to end, along with the harmful, antiquated, and unproven Family Cost Participation Program (FCPP) established in 2005. In 2017, our organization sent a public records request to DDS for data regarding cost savings that has been realized through FCPP. They told us "The department is no longer publishing the report due to fiscal constraints; therefore it is no longer produced." This is not a DDS issue - it is a legislative one, as even DDS is not properly-funded to run reports for the legislators. The FCPP program is an attack on the Lanterman Act's core tenants that regardless of a family's income or ethnic status that their child's needs will be funded across his/her lifespan by the State if they qualify for Regional Center (RC) services - this is not happening. Families who need daycare and respite are required to submit paystubs or tax returns to be inspected by the RC to determine their "share of cost." If they make over a certain threshold, the RC then reduces the family's daycare and respite services under the belief that the family can afford to privately pay for the extra they need - they can't and don't. Additionally, families who refuse to submit the info due to privacy (and even immigration) concerns, are assessed 100%, which means that ALL of their needed daycare and respite care funding are cancelled. Much work needs to be done by our legislative champions to eliminate the FCPP program, which the State cannot prove continues to be fiscally needed. For anyone who cares to champion this important issue with us, here is the legislative reference the State is out of compliance with:   (n) By April 1, 2005, and annually thereafter, the department shall report to the appropriate fiscal and policy committees of the Legislature on the status of the implementation of the Family Cost Participation Program established under this section. On and after April 1, 2006, the report shall contain all of the following: (1) The annual total purchase of services savings attributable to the program per regional center. (2) The annual costs to the department and each regional center to administer the program. (3) The number of families assessed a cost participation per regional center. (4) The number of cost participation adjustments granted pursuant to paragraph (5) of subdivision (g) per regional center. (5) The number of appeals filed pursuant to subdivision (k) and the number of those appeals granted, modified, or denied. ******************Please join me in signing this petition,Sharon M. Francis, CEOChannel Islands Social 

Channel Islands Social Services
424 supporters
Started 1 year ago

Petition to New Jersey State House, New Jersey Department of Developmental Disabilities, New Jersey Ombudsman for People with Disabilities

Strike Down the Peeping Tom Proposal

Listen up! People with disabilities need your support. There is a proposal apparently being supported by the New Jersey Ombudsman for People with Disabilities that would see the installation of invasive security cameras in group homes and supervised apartments across the state. This proposal is currently being trial-ballooned by certain legislators in the state assembly. Helping Hands president Gary Rubin, an outspoken self -advocate, feels people with different abilities need to take urgent action on the "Peeping Tom" proposal.  “The New Jersey Ombudsman for People with Developmental and Intellectual Disabilities is allegedly pushing legislation that would see the installation of invasive security cameras in group homes and supervised apartments across the state. This proposal is being made with complete disregard to the wishes of people with different abilities and is a violation of our right to privacy. We need to tell the Ombudsman and the world that people with different abilities deserve choice and privacy in their own homes.” By signing this petition you are stating "As a concerned citizen I am urging those in leadership to act now to prevent a bill requiring cameras within the homes of those with different abilities (Intellectual and Developmental Disabilities). I assert that is a violation of the basic human right to privacy. This action would not serve to improve safety within the community of those with disabilities or ensure quality services. Instead I am urging that a focus group of advocates, support professionals, and families be established to provide input as to what is needed to support this community." Please consider supporting our petition to prevent this proposal from being drafted and protect the rights of people with disabilities. Thank you for your support!

New American Movement for People with Disabilities
624 supporters