chronic pain

27 petitions

Update posted 3 weeks ago

Petition to Donald J. Trump, Donald J. Trump, Brenda Fitzgerald, Tom Price, Linda Rosenberg, Donald Trump

Stop punishing chronic pain patients for the opioid epidemic

With opioid overdoses in the news lately, I am scared. I am not alone. Groups such as "The" and Facebook groups such as "dear fibromyalgia", are filled with stories of people who are scared.  For many of us, pain medicines keep us semi-active. We understand that complete pain relief isn't the goal, it's relieving enough so that we can have an improvement in quality of life. Imagine having the flu, with muscle aches and dizziness, and at the same time, your whole body is sunburned. Add random sharp pains (as if a tack or nail is being hammered into random parts of your body), muscle spasms, and feeling spiders on your skin (then scratch or swat that sunburn). Imagine that all of your senses are intensified. Imagine that your clothes are two sizes too small, and someone keeps moving the thermostat. This is my fibromyalgia.  Sometimes the symptoms are less severe, and some days, I don't understand why my body doesn't shut down. Fibromyalgia also makes my other physical issues more painful. I can't remember the last time that I was comfortable, let alone without pain. I live in pain. Every day. I cannot take the non-opioid medications due to adverse reactions. I take oxycodone. I have taken Percocet,  Vicodin,  etc. off and on since 1997, daily since 2015. My doctors have seen me when I didn't have any meds for over a month (when I have moved). I have never had withdrawl symptoms,  just pain. I have never misused, or shared, my medicine.  This is the brutal, honest truth. If I were unable to have opoids, I would kill myself. I already have days where I can't imagine living the rest of my life...this is the best I am ever going to feel. I have two adult kids who are the reason for not taking my life on the days I don't want to be alive. I would like the officials who are making these decisions to get an adjoining hotel room with me for a week. I will stop taking my opoids. Maybe then, they will have some idea of the realities for those with daily chronic pain. Maybe they will spend some of the resources on finding a better way to control pain instead of taking away the only thing that provides relief. I take opoids so that I can go to church and my church groups, take walks and do my physical therapy, make healthy meals. Please break up the statistics to show how many deaths are caused by people without a prescription, people who bought their meds off of the street, how many kill themselves because the pain is too much, etc. Make decisions based on this information. Share this information with the public. Do the research. Find alternative forms of pain relief. Have insurance cover things such as massage therapy, chiropractors, accupuncture, vitamins, and other alternative forms of pain relief. There are ways for pharmaceutical companies to continue making money..they can do more research on vitamins, absorption, combinations, etc. Allow the vitamins to be sold by these companies with FDA oversight (guarantee the amount of the actual mineral or vitamin in the pills, let them compete to find the best absorption rate, etc.)  Realize that the systems in place, when enforced, work. I go to a pain clinic. Once a month I am drug tested, and my pills are counted. I know that they can call me at any time for a random pill count. My doctor is trained to look for signs of overuse and addiction. Don't make me pay for others' misuse. You will see an increase in suicides. I guarantee it.  ***UPDATE: Trumps Speech 10/26/2017 Wow, watching this speech, and am surprised by some of his plans. Spending money to find non-addictive pain relievers, fighting the illegal use and importation of drugs. Increasing access to treatment is great, if the addicts WANT treatment. Also, the Guardian angels, same as the treatment systems, However, companies limiting meds to 7 days? So does that mean I have to see my pain doctor once a week? Even if they will take the 30 day script, I will still have to get to the pharmacy weekly. I don't drive. Many of us don't. Spending money for commercials? That's just silly. Drug addicts don't care about commercials, or that they are funding the bad guys.

Christina Wilson
2,075 supporters
Update posted 5 months ago

Petition to Drug Enforcement Administration, United States Drug Enforcement, united states drug enforcement administration, Food and Drug Administration, Barack Obama, President of the United States, Centers for Disease Control and Prevention, United States Department of Health and Human Services, Senator Dick Durban, Senator Sharrod Brown, Senator Edward Markey, Senator Amy Klobuchar, Angus S. King Jr., Joe Manchin III, U.S. Senate, California State Senate, Edmund G. Brown Jr., Barbara Boxer, Dianne Feinstein, Elizabeth Warren, Massachusetts State Senate, Massachusetts State House, California State House, Lois Capps, Sam Farr, Mark Takano, Lucille Roybal-Allard

Stop the Reduction of Opioid Supply

I am 27 and I am a chronic pain sufferer, I know chronic pain sufferers of all ages. We all depend on our opioid medications to function. We are not addicts, however addicts also suffer from lack of compassion and resources to HELP with their illness. It seems that chronic pain whatever the cause is being overlooked and under-treated. At the rate prescribed our medications are barely treating the pain we have but we have taken what we could get without complaint. Why? Because the moment we complain that our dosage is too low we are black labeled by the media, the DEA, CDC and sometimes, saddest of all, our doctors. The doctors who are being pressured to lower or even cut off our medication supply by the DEA. Pain Management doctors who are supposed treat and manage pain, yet they can't do their job when being bullied by people in administrative positions, who don't have the training needed to understand Chronic Pain or the many illnesses that go along with it. You wouldn't deny insulin to a diabetic, or chemo to a cancer patient. This is life or death for millions of Chronic Pain sufferers. Without these medications we cannot, spend time with family, eat meals, shower, have sex, have any hope of getting out of bed at all. Instead we are confined to our beds day in and day out with the pain so loud nothing can penetrate it. We lose relationships, we lose hope, we stop wishing for cures, we stop wishing for tomorrow and unfortunately without these medications some do stop tomorrow from coming.   Please stand with the 100 Million Chronic Pain sufferers in the US alone and tell the DEA and the CDC that this is NOT OKAY! We must not let them take Millions of lives by restricting and/or taking away our medication!   #ReducePainNotMedication   DEA Cutting Opioid Supply in 2017 October 04, 2016By Pat Anson, Editor It’s going to get even harder for chronic pain patients in the United States to get prescriptions refilled for hydrocodone, oxycodone, morphine and other opioids classified as Schedule II controlled substances. The Drug Enforcement Administration has announced plans to reduce the amount of almost every Schedule II opioid pain medication manufactured in the U.S. by 25 percent or more. The 2017 quota for hydrocodone, which is sold under brand names like Vicodin, Lortab and Lorcet, is being reduced by a third. The DEA’s order, which is being published in the Federal Register, comes just seven months after the Centers for Disease Control and Prevention released guidelines that discourage primary care physicians from prescribing opioids from chronic pain. The guidelines have had a chilling effect on many patients and their doctors, who have reduced opioid doses or stopped prescribing them altogether.Opioid prescribing was falling years before the CDC and DEA acted. According to IMS Health, hydrocodone prescriptions in the U.S. plunged by 22 percent from nearly 120 million in 2014 to 93.5 million in 2015. The “established quota” for hydrocodone in 2017 is being reduced to 58.4 million prescriptions under the DEA order. “The purpose of quotas are to provide for the adequate and uninterrupted supply for legitimate medical need of the types of schedule I and II controlled substances that have a potential for abuse, while limiting the amounts available to prevent diversion,” the DEA said in a press release. “Once the aggregate quota is set, DEA allocates individual manufacturing and procurement quotas to those companies that apply for it.  DEA may revise a company’s quota at any time during the year if change is warranted due to increased sales or exports; new manufacturers entering the market; new product development; or product recalls.” The DEA has been under growing political pressure to reduce the supply of opioids. A group of U.S. senators sent a letter to the agency this summer demanding that opioid quotas be reduced. “We urge DEA to utilize its existing quota setting authority, to the fullest extent possible, to combat this epidemic,” said the letter from Senators Dick Durbin (D-IL) Sherrod Brown (D-OH), Edward Markey (D-MA), Amy Klobuchar (D-MN), Angus King (I-ME), and Joe Manchin (D-WV). “Fourteen billion opioid pills are now dispensed annually in the United States – enough for every adult American to have a bottle of pills. Certainly, the pharmaceutical industry is at fault for decades of misleading information about their products and the medical community bears responsibility for its role in over-prescribing these dangerous and addictive drugs, but we remain deeply troubled by the sheer volume of opioids available – volumes that are approved by DEA.” Although opioid pain medication is routinely blamed by politicians, federal agencies and the media for the nation’s so-called opioid epidemic, recent studies in several states have found that most drug overdoses are actually caused by illegal opioids such as heroin and bootleg fentanyl. There are also increasing signs that pain patients unable to get opioids legally are turning to pain medication sold on the streets, some of it counterfeit and laced with fentanyl. Efforts to restrict the supply of opioids may only be making things worse. Law enforcement agencies in West Virginia recently said a federal crackdown on opioids – dubbed the Bluefield Pill Initiative -- may have contributed to a recent spike in heroin cases, according to the Bluefield Daily Telegraph. “We are seeing an increase in heroin because pills are in fewer quantity,” said Sgt. J.S. McCarty, who heads a local crime task force. “Without pills an opioid addict’s only choice is heroin.”  

Chronic Pain Sufferers for Relief
1,529 supporters