Petition to Justin Trudeau, Jane Philpott, Eric Hoskins
We need treatment for all SMA Types - Fast-track approval for SPINRAZA in CANADA ASAP
Our Sofia.. Our Sofia is a beautiful little girl, she loves painting her toes teal, reading books and watching Peppa Pig. But unlike other little boys and girls she's unable to run, she can’t dance, she needs help picking up her favourite dolls ... and she needs your help to stop this disease before it get worse. Sofia has SMA 3. We need your help to have the Canadian government hear our voice and fast track approval for all children and adults, of all SMA types, to receive treatment and at an affordable price. You can watch Sofia's story here: http://www.citynews.ca/video/2017/03/02/video-family-fights-for-access-to-life-changing-but-prohibitively-expensive-drug/ Why we need you to sign this petition: Just before Christmas Eve, the FDA approved the first treatment ever for SMA; a drug, SPINRAZA (from Biogen). This drug gives families/caregivers and those with SMA hope, however, this is only available in the US and at a price of over $750 000USD for the first year and $350 000USD every year after. Please join me in signing this petition and let our government know that people are in urgent need. We do NOT have time on our side and need treatment urgently to help this debilitating disease, we need to fast track this treatment in Canada. What is SMA?“SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. SMA is caused by a mutation in the survival motor neuron gene 1 (SMN1). In a healthy person, this gene produces a protein that is critical to the function of the nerves that control our muscles. Without it, those nerve cells cannot properly function and eventually die, leading to debilitating and often fatal muscle weakness. SMA affects approximately 1 in 10,000 babies, and about 1 in every 50 Americans is a genetic carrier. SMA can affect any race or gender. There are four primary types of SMA—I, II, III, and IV—based on age of onset and highest physical milestone achieved. Individuals with SMA have difficulty performing the basic functions of life, like breathing and swallowing. However, SMA does not affect a person’s ability to think, learn, and build relationships with others” (CureSMA.org). What else you can do.. There is strength in numbers, you can write to the following decision makers, asking them to help fastrack approval for Spinraza in Canada, and help those in need afford it. Eric Hoskins firstname.lastname@example.org Jane Philpott Jane.Philpott@parl.gc.ca BCANS_Enquiries@hc-sc.gc.ca Pleas add your own stories in your emails, below is a quick template you can use to get started: Subject line: URGENT Need to Fast track Treatment for ALL SMA Types in Canada Dear ______, Families are in urgent need of treatment, please help fast track SPINRAZA approval for all SMA types in Canada. Those with SMA do not have time on their side and need your help. Your Name + phone THANK YOU FOR THOSE WHO SIGN THIS PETITION, I will add updates throughout, our family truly thanks you and our Sofia needs you.
Petition to Mayor Naheed Nenshi, Southland Leisure Centre
Stop February 11 and future Nude Waterslides Events with Adults & Children in Calgary!
https://calgarynuderecreation.ca/events/ Our goal is to protect the children from perverted events such as this one! Children must be PROTECTED! These people are very determined to shove their perversion down our throats. The organizers of these sick events want to make this a monthly event (next one they are planning for February 11, 2018) Can you imagine your/our children being exposed to such perversion on a monthly basis? Please let's unite and stop this insanity! Having naked children around a bunch of naked adults is never a good idea for any reason. Realistically there is a lot of mental illness out there that this event could trigger/effect.- Children with previous sexual abuse traumas will be heavily effected if they attend the event. - Sexual predators will be on the prowl - having an event like that is just like Christmas to them. - Extremely high chance of photos and videos being taken without consent, considered child pornography The cancellation of the January Nude Waterslide Adults and Children Event at Calgary Leisure Centre by Calgary Nude Recreation by City of Calgary Recreation was due to ‘security reasons.’ In fact, there was huge public outrage at the violation of basic social norms at the time (23k petition) when Media is reporting on child sexual abuse cases is almost a daily occurrence. Both the City Recreation and Mayor Nenshi have expressed disappointment in the cancellation, boiled it down to mere mob action, and vow to reschedule it as soon as possible. Despite a few unfortunate threatening remarks, thousands of Calgarians are deeply upset that the City would approve such a shot gunned invitation to strangers to participate in an event when nude children would also be present. Nature ‘in its rawest expression’ & Naked ‘because it’s fun’ are not the Naturist standards of a bygone era. The sole spokesperson, “Naked Jeff” has not even the conviction to use his real name locally. (Signed as Jeff Clark in a Globe and Mail article.) He repeated on @Newtalk770 radio that Southland Leisure Centre would be the only preferred venue, and that future events are expected to include much larger numbers than the initial 100 tickets sold in January. Nude Swim Events in Public City facilities, desensitize the staff to nudity, ‘raw’ aroused or erotic behavior & emissions are hard to govern or expel, and complicate cleanup and purification standards. Their website on Jan. 19th advertises Sunday, February 11th as the next scheduled swim, with the number up to 193 attendees confirmed, although ticket sales are on hold pending approval of the City. Monthly Events are to follow. A check with Alberta registries confirms that Calgary Nude Recreation is in no way a legal entity, that no board of directors are capable of signing liability insurance or governing the existing waiver form.Other groups in Calgary are required to be registered non-profit organizations and to obtain up to two million in liability insurance to hold events far less risky than water sliding. This unregistered group has a GoFundMe page and have raised some $2600 towards a $10k legal fund. ‘Naked Jeff’ & Unknowns, are also directly fundraising thru Paypal. Stop the City of Calgary Parks and Recreation from renting any public City facilities to such non registered, unaccountable groups. Stop the February 11th Naked WaterSlide Event by Calgary Nude Recreation! Please, let's protect our children! Pastor Artur Pawlowski
Petition to Subcommittee on International Human Rights
Help stop Canada's child labour problem
Each time you make a purchase, you could be buying products made by child labour and you wouldn’t even know it! Every year, Canadian companies import billions of dollars worth of everyday products made by children as young as six - including fashion, fruit, coffee, and body lotion. As a mother of two, I want to know that the things that I buy for my kids and myself weren't made by other young children working in dangerous conditions. I'm frustrated that the government has been doing nothing to prevent this — but together we can change that. No child should be for sale. Right now, there’s a Parliamentary committee studying Canada's ties to child labour. They could make recommendations for legislation to call on corporations to be more transparent about how they address child labour in their supply chains - but, according to World Vision Canada, it's unlikely that the committee will recommend this unless they start hearing that everyday people care about this issue. We need to show that we care if the products that we buy put children's lives at risk. Help me call on the committee to recommend strong corporate transparency laws that will force companies to be more open about their supply chains. Please show your support for the victims of child labour by telling the Government of Canada you care - sign and share this petition. The committee is writing their report right now - we have to act fast!
Petition to Honourable Kathleen Ganley, Mr. David Shepherd, Honourable Lori Sigurdson
End discrimination against children and their caregivers in condominium and rental housing
THE PROBLEM Alberta is the only province in Canada that does not explicitly protect children and their caregivers from discrimination in condominium and rental housing. That puts our province--one that prides itself in being progressive and modern--literally behind nearly every developed jurisdiction when it comes to the children's right to housing. That in a province with escalating housing prices and the youngest average population in Canada currently experiencing a generational baby boom. Although age is a protected ground in Canada's Charter on Rights and Freedoms, and family status protected under the Alberta's Human Rights Act, Alberta continues to allow landlords and condo boards to discriminate against families and evict pregnant women. The Child Friendly Housing Coalition of Alberta is a growing coalition of concerned parents and advocates who are refusing to stand by while families suffer the impacts of this human rights violation. The coalition is advocating for changes to provincial legislation to respond to the many stories of discrimination against children and their caregivers who struggle to find safe and affordable housing simply because they have children. Read other families stories here: http://bit.ly/2lzcAdL BACKGROUND Currently, the Alberta Human Rights Act, RSA 2000, c A-25.5, only protects against age discrimination in the areas of publications and notices (section 3), employment practices and advertisements (sections 7 and 8), and membership in a trade union, employers’ organization or occupational association (section 9). Age is not a protected ground in relation to the provision of goods, services, accommodation or facilities customarily available to the public (section 4), or in relation to tenancies (section 5). The Alberta government is required to expand the Alberta Human Rights Act to include age as a protected ground under sections 4 and 5, by January 2018. This development was prompted by an application brought in March 2016 by Ruth Maria Adria under section 15 of the Charter, the constitutional equality rights guarantee, to have the omission of age declared unconstitutional and to have age added to these sections. However, in the Act, ‘age’ is currently defined as 18+ and there is no guarantee that the upcoming amendments will protect minors from continued discrimination. Given that--by the estimates of organizations on both sides of the debate--nearly 50% of multi-unit residential buildings in Alberta do not allow children, it is imperative that the Act include provisions that explicitly provide protection for children and their caregivers in condominium and rental housing. CALL TO ACTION We need to hear your voice to ensure children are protected from housing discrimination in Alberta! To add your voice select the Petition Letter below and choose OK. Thanks for your support of children and their caregivers! IN THE NEWS Here is some of the news coverage so far: Kids and condos still don’t mix in Alberta http://business.financialpost.com/personal-finance/kids-and-condos-still-dont-mix-in-alberta-brewing-fight-looms-over-legal-age-discrimination Time to rethink the rights of landlords to ban children http://edmontonjournal.com/business/commercial-real-estate/paula-simons-time-to-rethink-the-rights-of-landlords-to-ban-children What about the children http://www.metronews.ca/news/edmonton/2017/04/06/parent-group-calls-for-end-to-adults-only-buildings-.html Parents call for family-friendly housing in Edmonton’s core https://globalnews.ca/news/3366461/parents-call-for-family-friendly-housing-in-edmontons-core/
Petition to NDP, Parents, Gaurdians , teachers union, Children rights, Parents Rights, Canadian Civil Liberties Assocaition, Human Rights, Canadian Government
Stop Mandatory Vaccinations in Alberta Public Schools
Yesterday, April 18, 2017, Marilyn Bergstra, a trustee for the Edmonton Catholic school board, introduced a motion to have mandatory vaccines. Trustees with Edmonton Catholic Schools voted unanimously Tuesday to ask the Alberta School Boards Association to join them as they lobby the government to make the legislative change. Please join us in stopping this motion. Let the school board and the Alberta government know that this is a choice that the parents get to make.It is our parental right to make decisions on our children's health, it is not a schools place to force a child to be vaccinated. Not only does this go against our parental rights, it also goes against our fundamental rights that are protected by the Charter of Rights and Freedoms. 2 (b) freedom of thought, belief, opinion and expression, including freedom of the press and other media of communication; It also can infringe on our freedom of religion if parents decide not to vaccinate due to religious reasons. This also can set a very dangerous precedent to allow Schools to take away our choices as parents, especially when the health of our children are concerned. This Motion not only takes away a parents choice, it goes against our rights and freedoms, and needs to be stopped! Please sign to show that we will not stand, and to stop this from going any further than it already has. http://www.cbc.ca/news/canada/edmonton/ecsd-vaccinations-sex-education-religion-1.4075067 http://laws-lois.justice.gc.ca/eng/Const/page-15.html