Petition to The Rt Hon Jeremy Hunt MP, Prof Dame Sally Davies, Dr Duncan Selbie
Provide tests for Group B Strep to prevent any more avoidable deaths of newborn babies
My partner Scott and I should have been sharing our son Edward Gili’s first birthday last month. But instead of having that exciting first year to celebrate and many more to look forward to, we had just 9 precious days to spend with our beautiful son. Edward was cruelly taken from us as a result of contracting group B Strep infection at birth. On average, one newborn baby a day in the UK develops group B Strep infection. One baby a week dies from group B Strep infection. One baby a fortnight who survives the infection is left with long-term disabilities - physical, mental or both. It is the UK’s most common cause of severe bacterial infection in newborn babies, and of meningitis in babies under 3 months. Group B Strep is a normal bacterium carried by around 1/4 women, without symptoms and usually unknowingly. It can be passed from mother to baby around birth with potentially devastating consequences for the baby. But these consequences are usually preventable and that’s why I’ve started this petition with the charity Group B Strep Support. Unlike many other developed countries including Germany and Spain, the UK does not routinely offer tests to pregnant women specifically to check for Group B Strep carriage during late pregnancy. If doctors know a mum is carrying GBS, they can administer simple antibiotics during labour to prevent the infection - over 80% of these infections could be prevented. However the GBS-specific ECM (enriched culture medium) test is rarely available through the NHS. Since 2003, the UK has used ‘risk factors’ to guess which pregnant women might be at risk. Risk factors are poor at predicting which babies will develop the infection -- the number of babies infected is growing, we need to stop guessing and start testing. The ECM test costs the NHS £11 each and the antibiotics used in labour (usually penicillin) cost the NHS pennies. Had we had ECM tests in place, Edward Gili could be here today for us to see his first steps and hear his first words. We can’t afford to lose any more lives, we can’t afford not to do this.
Petition to UK Parliament
We demand Alder Hey to release Alfie Evans to a hospital of his parents' choice.
Alfie Evans is at Alder Hey Hospital in the PICU. He was born in May 2016 and has been hospitalised continuously since December 2016, dealing with chronic seizures of an undiagnosed disorder. Having given up on him as early as February 2017, and refusing to do a standard life-enhancing tracheostomy, the hospital has applied to the High Court to remove parental rights and withdraw ventilation to end Alfie’s life. Alfie was born healthy and on time. We were so happy to have him with us going home, our beautiful boy. He grew and fed well, but was exceptionally sleepy and didn't meet milestones. After a couple of weeks we noticed Alfie wasn't doing things he should be, like lifting his head up, grabbing his dummy, eating his hands, etc. We also noticed he was doing a jerking movement with his hands, arms and legs, and his eyes would roll up. Alfie often had his hands clenched into a fist. We took him to doctors three times, who said he was lazy and a late developer. Months went by and Alfie went backward instead of forwards. He started making more jerking movements and wasn't himself at all. Finally Alfie became agitated, crying inconsolably. Then Alfie got a chest infection and landed in the hospital. The infection led him to have a myoclonic jerking spasm, and Alfie struggled to breathe. This is when he was first put on life support, the worst nights of our lives. They told us in January 2016 that Alfie wasn't going to make it, so we had him christened. We thought we were going to lose our son and our hearts were desperate. But Alfie had other ideas, he managed to beat the infection and start breathing on his own again. He was moving and trying to open his eyes. Unfortunately, Alfie caught another infection and went back on the ventilator. Time and time again, despite not being diagnosed or treated for any suspected underlying disease, his seizures being somewhat controlled by a heavy cocktail of sedating drugs, Alfie has come back over and over from every infection and challenge. The hospital claims that Alfie is “insensate” and unaware of any stimulus or irritation, which is proven wrong in hundreds of videos, against the odds of a heavy cocktail of anti-seizure drugs with sedative effect. Daily, Alfie moves, stretches, yawns, responding to tickling and noise and cuddling. And yet even with all this, with loving parents (we are only 20 years old) who persevere through great strain and leave no stone unturned for Alfie, with support around the world, Alder Hey wants to turn his life support off. We have found another European hospital willing to help Alfie move forward, get a tracheostomy and PEG tube and get off heavy sedation, and to try to diagnose and treat him. We’ve been told several times by outside doctors that Alfie can even eventually be able to go home with a tracheostomy and direct stomach tube (PEG). Yet Alder Hey keeps moving the goalposts. They have gone from telling us they would allow transfer if a hospital was found, and putting us through a long process of proving our option was viable, to admitting they would not allow any such transfer. The pressure by the doctors to end Alfie's life has been unrelenting. Now they have resorted to legal force, to remove parental rights and end Alfie's life, going to court behind our backs when we were still willing to go through mediation to find a positive solution. We are relieved that after significant pressure was exerted by our legal team, the hospital backtracked and agreed to the fair mediation they denied us before going to court.Many people have seen Alfie's determination and strength as he battles through every single thing that is thrown at him. Alfie is a beautiful boy, growing big and solid, who is showing every possible sign that he could to tell us that he wants to get better and that he is still here to fight and live his life with whatever help we can give him. Doctors can’t explain away the signs Alfie gives of fighting on. Disabled and sick children deserve care, not a hastened death. We Alfie’s parents have the right and responsibility to make decisions to save him and move him to a hospital who will honour those decisions. Give Alfie his rightful chance at life!
Petition to Mr. Anthony Ojukwu
IMPLEMENTATION OF CHILD MARRIAGE LAWS IN NIGERIA
In Nigeria (Northern Nigeria) young girls below the age of 18 are being given away to grown men for marriage. According to Wikipedia, many girls are married before the age of 15, some as young as 7. As of 2006, 15–20% of school dropouts in Nigeria were the result of child marriage. In northern states over 50% of the girls marry before the age of 15. Child marriage leads to teenage pregnancy and most importantly violates the rights of children. This petition is to put an end to this by pressuring the legislative and executive bodies of Nigeria to make and enforce the laws that discourage child marriage. I strongly believe we will eventually provide a place that is safer for the young girls and boys f Nigeria. Please sign this petition to show your support to stop the denial of the rights of our children. Every signature counts. Thank you.
Petition to Jeremy Hunt, Jon Ashworth, Amber Rudd MP
Please save my son Alfie by allowing him to legally use medical cannabis!
My six year old son Alfie has a very rare genetic epilepsy condition called PCDH19. It causes clusters of seizures which are unresponsive to almost any medications. He can have up to 30 violent seizures a day. It’s so severe that he had 3000 seizures in one year and ended up in hospital 48 times.The only legal medication in the UK that helps are steroids. But they are toxic to the body, especially when used regularly. If we continue giving them to Alfie there is a high likelihood he will develop psychosis or his organs will fail. Last year, in desperation, we travelled to Holland where doctors treated him with cannabis oil. Miraculously, with a dose of three drops a day, Alfie didn’t have a seizure for 27 days. He's only had 2 seizures in the last two months. Dutch doctors say that cannabis oil could get his seizures down from 30 a day to twenty a year. My baby went from a death sentence, to the prospect of a normal life, with school, friends and fun. But that prospect could be taken away now we are back in the UK because here the use of medical cannabis is illegal. I don’t want to have to break the law so I am pleading with the UK Government to make an exception for Alfie and grant his doctor license to prescribe medical cannabis so Alfie can live life carefree, without constant seizures and ploughing of steroids. Making an exception for Alfie doesn't have to open the floodgates - Alfie is the only boy in the UK that has this condition. We are working with End Our Pain (https://endourpain.org/ to get a better life for Alfie and hope this will lead to help for other children who need to try this medication. To legalise the use of medical cannabis would enable the quality and consistency of products to be properly controlled, would create a new industry and more jobs, raise taxes, lower crime rates and result in fewer people struggling in hospitals to be well, or being preyed on by unscrupulous online sellers. We assess the saving to the NHS from Alfie’s case alone to be over £100,000 and up to 150 paediatric bed days. It’s a no-brainer! Getting Alfie treatment could be the first step to making medical cannabis accessible to others in need. We urgently need the public to make noise to make that happen. Alfie has been through more than most people go through in a lifetime. He deserves to have a wonderful life full of joy. I just want Amber Rudd and Jeremy Hunt to understand this isn’t about the wholesale legalisation of Cannabis. This is about weekly trips to A&E, watching my son have seizures, watching him turn purple, and praying that he lives to see another day. Please sign and share this petition and help me make our family’s only wish come true. And please like our Facebook page Alfie's Hope for all updates on Alfie's journey. Thank you x
Petition to The Home Office, Amber Rudd MP
Help Brian White remain in the UK to take his place at Oxford University
My friend Brian White moved to the UK aged 15 with his adoptive family after his British father, Peter White, decided to move back home. He has overcome so much adversity but now faces the risk of being returned to Zimbabwe instead of being allowed to take up his place at Oxford University.Having been abandoned as a baby, Brian lived in a Zimbabwean orphanage until the age of 6. The White family fostered, and later adopted Brian. Brian joined the family in Wolverhampton when he was 15 and given permission to enter the UK. At this point, he should have been granted Indefinite Leave to Remain by the Home Office, but was instead given Limited Leave to Remain. Brian's current difficulties stem from the handling of this decision. This only came to light as an issue when Brian's application to become a British Citizen by naturalisation was rejected, leaving any potential university applications in doubt. Immigration expert Louis MacWilliam has said to the press “On reviewing his papers it seems he should have been granted indefinite leave to enter at first instance and it is not clear why this did not happen.”Despite this, Brian carried on, studying for both his GCSEs and A-Levels at Highfields School. Although his A-Level results were outstanding (A*A*A*A), Brian was unable to take his place at Oxford because if you don’t have indefinite leave to remain you aren’t eligible to receive student finance. However, Oxford University, in recognition of Brian's achievements in the face of constant adversity, have kindly kept his place open for him. I have had the personal pleasure of knowing Brian since the start of 2013, having met him at school and quickly developing a close friendship with him. He is possibly the hardest working person I have ever met, but it is his enthusiasm to help those around him that I am inspired by each and every day. If Brian is not granted Indefinite Leave to Remain, the United Kingdom would not only be losing a potentially valuable future worker, it would also be losing a fantastic person who is just as much a part of British culture and society as you and I. Please help Brian's situation by signing and sharing this petition, in the hope that the Home Office see just how many people consider Brian a fitting and valued member of the United Kingdom. #GetBrianToOxford
Petition to Social Services chaddesley house, burnley
All important evidence filed by parent was hidden at the court and court went ahead anyway
I have wrote to the house of lordsDear Lord Greaves, I am writing to you in hope that you can help put something right, my children were removed from me just over a year ago, I'm told my daughter will be in foster care until she is eighteen, she is now 7 years old. My son became severely autistic due to MMR. I had a hard life with my son but it has changed who I am.When I became pregnant with my daughter, my self and my partner was assessed to weather we could live together. The junior social worker told me she was supporting our application to the court . She was given a choice support me in court, or promotion, she was made Area Manager, I go to court for fraud, so Socail Services where required to prepare a plan to look after my children in case I lost my liberty. I was made clear that my children were made a part of a care order to support me raise my children, the word Neglect was removed from the threshold document, and the judge wanted to make an order to help me that didn't mean I wa neglectful, provisions were ordered by the judge and promised by LCC, such as epilepsy monitor, so I could sleep at night as my son had nocturnal epilepsy, qualified carers, so I could spend time with my daughter, help attending appointments etc. I did not receive any of this support, in fact I have evidence stating that a meeting was held the morning before the court case, Socail Services descided that no matter what the judge ordered that the was still going to attain a reason to remove.My sons school falsely reported me for cigarette burning my son, when he was at respite ( they didn't check that) but even then I was still looking at both my children going into protective custody, that day. This just happened to be three days before I was in court against my father for a life time of rape, when I arrived in court I was informed that the court was aware that I was being investigated for a non accidental injury of my severely disabled son. I lost my case and had no ability to appeal the ruling. I was proven to be innocent of hurting my son, but it stayed on file as inconclusive, My sons school made false reports that where held on my daughters file in another school regarding neglect and to watch my daughter for the same neglect. This has been proven also to be a false assumption. Since my sons Medication changed, he is not soiled and is in my better mood. I was told my son was constipated by the social worker, he actually had diarrhoea constantly since he was three, which is because my sons bowels where damaged by the MMR. My son was put on laxatives, I protested by was told I had to comply, comply I did, and my son soiled more at school, then the same Socail Worker phoned my sons doctor , it is forever logged on his medical file, she logged issues with my care, that did not exist, they kept returning my son to laxatives to cure his constipation, which he still had never suffered from, but I was told I had to comply and that I was wrong about his constant diarrhoea. The school has failed to provided a suitable education as he was much more advanced at the age of six at his previous school. This soiling issue was logged every day at my sons school and it was assumed that every soiled day was because I hadn't preformed proper care when I sent his to school that morning, even when the log was made at 11.30 am it was still reported as being my fault. The fault was the sodium-valproate that my son was prescribed, I told the doctors, the social worker, the school, that this caused my sons diarrhoea, but I was told he had constipation, it was like trying to explain a unknown feature, I knew what the problem was, i evidence this, I was met with disrespect and ignorance, that I being just mum could appose. a incontinence nurse, a specialist, she must be right. My son is the real victim of this behaviour, he hated laxatives, he just poo everywhere unstoppable, then when I challenged again she doubled the laxative dose, I was being supervised by carers, who were employed to care for my son but had no skills relevant to my sons needs, and it was like I was training them myself to manage my son, all the time that they attended my home. They were supposed to make life easier, instead I was forced to be in twice a day, had to be as the LCC said if I did not let them in twice a day to check my children that fourteen days notice would be issued. There was no reason to check my children's safety, but it was infurred that this would be a role of the carers, the judge ordered proper respite for my son, so I could spend quality time with my daughter, it was not to be enforced with threats to remove, I would get a call, and a care would say, they had to changed the rota, because of staffing issues, and I had to return home immediately, it was like a prison sentence, for no reason. I made a complaint regarding improper conduct of a member of staff, I had video evidence of the carer acting improper with my son, I complained straight away to the company and to Socail Services, I did not get a reply and sent many requests for updates on the situation. I received a report a year later stating . Miss Critchley has taken her father to court regarding a sexual matter and my father was acquitted, so basically they was ignoring my complaint and assuming I was making it up. Nothing was done. .This is just the start of my devastation, which ended with my children being taken into care, I was served the bundle with the main evidence against me was missing. The was a blank threshold document page, the LCC used the previous threshold which was completely edited by the judge to reflect his intention to help, he wished me well and said I was a exemplary mother. This was not provided to the court as the documents that had been ordered by the previous judge to be available for the court hearing on the 18 Aug, so there was a push by the LCC to finish the hearing on the 17. I depended on these vital documents, I filed my own case as I represented myself, approx 400 documents did not arrive in court, no one had seen my bundle, the judge had ordered the LCC to serve my documents once I had filed them to the other party's.They did not. Then they left the court with the judge to find my evidence which was properly filed on time over thirty days before. I had told the LCC that I had filed and that they could serve my documents on the other party's. They did not complete this requirement. The main evidence was provided by a new social worker who was a bully, and didn't have sufficient experience to be the lead Socail worker on a case that was going to try and adopt my daughter out. The first time I met this social worker it was the day before the previous court case, she greeted me with a booklet, she handed me the booklet and told me I should take it home to show my daughter her new mum and dad. Then said she hadn't said that. She made double appointments for me not telling me about on while she attended it with no explanation that she had sent me to another appointment, I was contacted and asked the dates for my sons respite. I provided them and then the social worker arranged medical appointments for my son which he missed because I was ordered by court to send him to respite. She made reports regarding sexual abuse in my family and said it was a multi generation problem. And said I locked my daughter in her room with strange men, no men was ever in my house only the carers they sent, she banned my uncle from visiting because he was the only male that ever visited she stated that she had to police check him, the next day all his info was provided by him directly to the social services, she said this didn't happen. She arranged to do home visits, come a hour late, two hours late, or not at all. On one occasion I had to leave to attend a regular contact session with my children's father, I left a note at social services regarding not being able to wait for her. After talking to my daughter dentist for nearly an hour, and removing my child from school to take her to the dentist , over an hour before her appointment, the dentist being almost next door to the school. My daughter may of needed a tooth out because it had broke but it was going to be a wait and see issue as the tooth was already loose, after taking to the social worker it was stated that my daughter needed nine teeth out, I questioned the normal procedure from the dental regulators, as the dentist stated all teeth with even little holes would routinely be taken out, and this is how it is. The dental regulators state this is not the normal procedure, and an investigation for fitness to practice is underway. I also have the same type investigation ongoing regarding the social worker. She made false claims in the SWET document used ! Relating previous court cases, false admissions that I had harmed a child and been charged in court, never ever happen, the SWET document was referred to in court and it was missing from my file the social worker lied and said she had emailed me the document, she emailed me something completely different, I only saw the document because when I left court I mistakenly picked up the solicitors file and took it home. I am a good mum, I love my children, I properly looked after them in a warm loving home with lots of stimulation and the guardian had referred to my home as a children's wonderland.I did a victory dance on the previous court case as they were questioning my care and the judge called me an exemplary parent. It seemed like war from them at that point.Schools have provided false documents to court that paint the picture of my daughter being special needs as a report from nursery was used, she was 6 not 3. I had asked for the document to be updated. I think it was not an error, the same social workers name is signed on it.I think she purposely put this document to court to paint a picture of a little girl who was only functioning at a toddlers level, she was top of her class , very bright, very involved in learning, wanting to be involved in everything in class, false attendance numbers that fall in the warning of possible neglect. I have two reports from the same time period one I had asked for to put in my court bundle, the one that ticks all the neglect boxes. And a proper report with 99% attendance and good learning shown.Can you please help it's been a year and a week, it's been accepted that my sons medication caused diarrhoea, and that he was soiling on the way to school. And I can have unsupervised contact with my severely son, but not my able bodied, well spoken little girl, they tell her she's not coming home until she is eighteen, Last week she made a wish at townley hall, there's a wishing tree and without any encouragement my daughter put a coin on the tree and wished out loud to come home. The social worker changed the cut off levels for a hair strand test , and the test was unpassable by anyone, I have 1007 pages of evidence that I filed at the court of appeals, which was thrown out within 3 hours of the judge receiving it, so he couldn't of given each page the required 90 seconds to read. He said I blame others for the things that I cause.I asked him to please clarify what he was referring to as when I gave a reason I provided many pieces of evidence to prove each point. The social worker spent all of her time working with me, intimidating, belittling, bulling, threatening, making my life hell, turning up the day before a meeting to my home, having the meeting and with the pretence that this was the right appointments time, I'm just getting it wrong. She after telling me I was wrong, rang my mum a cancelled the appointment that was the next day, she was trying to show me as dizzy, stupid, memory loss, incapable, The same social worker lied and said I told my daughter to keep a secret, I was raped by my father all my childhood, I don't like the word secret, I would never use it. Yours sincerely, Sent from my iPad
Petition to Amanda Medler
End British Army Sponsorship of Girlguiding Leadership Activities for Girls
Girlguiding has announced that it has gone into partnership with the British Army and received their support to develop a Leadership Skills Builder (part of the programme delivered through staged activities to all young members aged 4-18). This means that the main leadership focused activities within the new Girlguiding programme are all associated with the British Army. This is announced at: https://www.girlguiding.org.uk/about-us/our-partners-and-supporters/the-british-army/ This runs counter to Girlguiding’s international and peace-orientated membership of WAGGGS, which is regularly promoted as a global family. It also contradicts Girlguiding’s stance that girls should not participate in war-games or shoot at human shaped targets as part of an activity within the organisation. This partnership is the short-sighted acceptance of money without thought given to how this partnership aligns with the organisations values, nor does it respect or pay attention to the interests of our sibling guides and scouts around the world. This petition calls on Girlguiding to cease this partnership immediately and to consult with young members before entering into such partnerships going forward.
Petition to home office
HOME OFFICE ARE ABOUT TO DEPORT MY THREE BRITISH BORN GRAND CHILDREN.
My three grandchildren are British born ages from 9, 5, and 3 years old, they have never been outside England and they have all their family life here in England. Now the Home Office is in the process of deporting them and their mother back to Africa because the mother was staying here illegally. However I as the grandmother I am British, I’m leaving in a four bedroom house privately rented and I’m not on any benefit’s at all and, I’m ready to accommodate all of them free until whenever. I have 2 jobs and I’m earning well to accommodate all of them. To the best of their interest, these boys have no future back in Africa, and if I am ready to take up their responsibility I see no reason why I cannot do so. The appeal is on right now but we all know it can go either ways. These boys have no family back home all their families are in England, I believe that these boys deserve a better place here in England at their best interest and base on their fundamental human rights, a crying grandmother is appealing to the public for help, I do not want to be separated from my family, thank you all in advance for signing.