Topic

children

147 petitions

Update posted 13 hours ago

Petition to Jeremy Hunt, Jon Ashworth, Amber Rudd MP

Please save my son Alfie by allowing him to legally use medical cannabis!

My six year old son Alfie has a very rare genetic epilepsy condition called PCDH19. It causes clusters of seizures which are unresponsive to almost any medications. He can have up to 30 violent seizures a day. It’s so severe that he had 3000 seizures in one year and ended up in hospital 48 times.The only legal medication in the UK that helps are steroids. But they are toxic to the body, especially when used regularly. If we continue giving them to Alfie there is a high likelihood he will develop psychosis or his organs will fail. Last year, in desperation, we travelled to Holland where doctors treated him with cannabis oil. Miraculously, with a dose of three drops a day, Alfie didn’t have a seizure for 27 days. He's only had 2 seizures in the last two months. Dutch doctors say that cannabis oil could get his seizures down from 30 a day to twenty a year. My baby went from a death sentence, to the prospect of a normal life, with school, friends and fun. But that prospect could be taken away now we are back in the UK because here the use of medical cannabis is illegal. I don’t want to have to break the law so I am pleading with the UK Government to make an exception for Alfie and grant his doctor license to prescribe medical cannabis so Alfie can live life carefree, without constant seizures and ploughing of steroids. Making an exception for Alfie doesn't have to open the floodgates - Alfie is the only boy in the UK that has this condition. We are working with End Our Pain (https://endourpain.org/ to get a better life for Alfie and hope this will lead to help for other children who need to try this medication. To legalise the use of medical cannabis would enable the quality and consistency of products to be properly controlled, would create a new industry and more jobs, raise taxes, lower crime rates and result in fewer people struggling in hospitals to be well, or being preyed on by unscrupulous online sellers. We assess the saving to the NHS from Alfie’s case alone to be over £100,000 and up to 150 paediatric bed days. It’s a no-brainer! Getting Alfie treatment could be the first step to making medical cannabis accessible to others in need. We urgently need the public to make noise to make that happen. Alfie has been through more than most people go through in a lifetime. He deserves to have a wonderful life full of joy. I just want Amber Rudd and Jeremy Hunt to understand this isn’t about the wholesale legalisation of Cannabis. This is about weekly trips to A&E, watching my son have seizures, watching him turn purple, and praying that he lives to see another day. Please sign and share this petition and help me make our family’s only wish come true. And please like our Facebook page Alfie's Hope for all updates on Alfie's journey. Thank you x

Hannah Deacon
703,675 supporters
Update posted 3 days ago

Petition to The National Autistic Society

Children euthanized by Nazi's for being autistic: let's rename Asperger's Syndrome

I am a year 11 student with ASD (Autistic Spectrum Disorder) who wants to make a moral correction. In light of the new information that has been released about Hans Asperger (of whom Asperger's Syndrome is named after) I want the NAS (National Autistic Society) to rename Asperger's Syndrome to ASD (Autistic Spectrum Disorder). Hans Asperger was an Austrian Pediatrician who actively worked with the Nazi Eugenics Programme and studied autistic psychopathy. He then later diagnosed high-functioning autistic children with Asperger's Syndrome and sent them off to Am Spiegelgrund Clinic to be euthanized.  The Nazi ideology was to have a genetically 'pure' society and children who were in any means considered disabled were a burden to their family. Hence these children were deemed unworthy of life. Almost 800 children were sent to Am Spiegelgrund and were killed via the lethal injection, or were so malnourished that they died of starvation. Autism in the present is presented in such a positive light. Some of us know someone on the autistic spectrum and consider them a joy to know. There's a few that could tell us a million things about their favourite subject off the back of their hand, while others need help constantly to perform basic tasks. Then there's characters representing us in the film industry like Drax out of Guardians of the Galaxy, who doesn't understand metaphors. We believe that we are worthy of life. We don't want the name "Asperger" to be associated with us. Hans Asperger abused his power as a pediatrician to send children not so different to us off to die. All that name does is carry a death sentence that is over 70 years old. ASD I believe is a better term and is already used across Europe, Australia and Canada to diagnose autism. If we can get this moral correction done, it will be justice for those hundreds of children who were treated inhumanely. It will show the world that we are proud to be who we are and that we are worthy of life. Here are a few news articles related to this topic: http://www.dailymail.co.uk/sciencetech/article-5630411/Hans-Asperger-childrens-doctor-famed-early-work-autism-assisted-Nazi-euthanasia.html https://www.independent.co.uk/news/science/asperger-nazi-study-latest-proof-hans-autism-research-spiegelgrund-a8311181.html https://www.theguardian.com/world/2018/apr/19/hans-asperger-aided-and-supported-nazi-programme-study-says    

Belle Westley
45,562 supporters
Update posted 6 days ago

Petition to Damian Hinds, Robert Goodwill MP

Time to stop pushing KS1 into our reception classes and extend "Early Years" to 7!

What are the essential skills for life in the 21st century? What do our children really need to know?  What do they need to understand?  Does the current English system give them this? Unfortunately...it does not. Our children need communication skills, personal, social and emotional development, physical skills, embedded literacy and maths skills, an understanding of their world and the people in it. https://www.weforum.org/agenda/2016/03/21st-century-skills-future-jobs-students/ They need characteristics such as resilience, perseverance, creative thinking, the ability to solve problems, think outside the box, independence, risk taking, make connections. They need confidence and the ability to learn from mistakes as they grow in a world which is a challenging place to be...and becoming more so by the day. The irony of all of the above is that we currently have a curriculum in England that delivers much of the above and more. It is the Early Years Foundation Stage curriculum. The only problem is it ends when children leave Reception classes. For many children, it is ending in the Reception classes due to pressures to be so called "National Curriculum" ready!  This notion of moving children towards KS1 during their Reception year was highlighted in OFSTED's recent report into the Reception year: (https://www.gov.uk/government/publications/reception-curriculum-in-good-and-outstanding-primary-schools-bold-beginnings).  It was seen as positive that Reception teachers were starting KS1 learning in their Early Years classes in a bid to make children ready for Yr1 expectations, expectations that are developmentally inappropriate! How can this be right? Many of these children are still 4 years old.  Every child in reception is entitled to an early years education, not a watered down pale imitation. Surely its time to stop pushing the flawed and inappropriate KS1 curriculum into our Reception classes and time to push up a curriculum that is tried, tested and proven. A curriculum with relationships, environments and child development at its core.  The early years of life do not end at age 4 or 5.  They end at 7 or 8..and that is the age when learning should become more formal. This is when most children are developmentally ready for such approaches.  Look abroad at nations like Finland where this is just what happens.  Their children are thriving and out performing ours.  Our children (and their families and teacher's) are tired, stressed, pressured and fed up. Children as young as 4 are switched off and see learning as boring....    Time to stop the testing our over tested children. Time to stop making children do things they are not ready for. Time to make a change for our children, their families and our educational workforce. Let's stand together to make a change for the future. WB Yeats stated that: "Education is not the filling of a pail but the lighting of a fire". It's time to find the matches...

Keeping Early Years Unique
38,848 supporters