Petition to Jeremy Hunt, Jon Ashworth, Amber Rudd MP
Please save my son Alfie by allowing him to legally use medical cannabis!
My six year old son Alfie has a very rare genetic epilepsy condition called PCDH19. It causes clusters of seizures which are unresponsive to almost any medications. He can have up to 30 violent seizures a day. It’s so severe that he had 3000 seizures in one year and ended up in hospital 48 times.The only legal medication in the UK that helps are steroids. But they are toxic to the body, especially when used regularly. If we continue giving them to Alfie there is a high likelihood he will develop psychosis or his organs will fail. Last year, in desperation, we travelled to Holland where doctors treated him with cannabis oil. Miraculously, with a dose of three drops a day, Alfie didn’t have a seizure for 27 days. He's only had 2 seizures in the last two months. Dutch doctors say that cannabis oil could get his seizures down from 30 a day to twenty a year. My baby went from a death sentence, to the prospect of a normal life, with school, friends and fun. But that prospect could be taken away now we are back in the UK because here the use of medical cannabis is illegal. I don’t want to have to break the law so I am pleading with the UK Government to make an exception for Alfie and grant his doctor license to prescribe medical cannabis so Alfie can live life carefree, without constant seizures and ploughing of steroids. Making an exception for Alfie doesn't have to open the floodgates - Alfie is the only boy in the UK that has this condition. We are working with End Our Pain (https://endourpain.org/ to get a better life for Alfie and hope this will lead to help for other children who need to try this medication. To legalise the use of medical cannabis would enable the quality and consistency of products to be properly controlled, would create a new industry and more jobs, raise taxes, lower crime rates and result in fewer people struggling in hospitals to be well, or being preyed on by unscrupulous online sellers. We assess the saving to the NHS from Alfie’s case alone to be over £100,000 and up to 150 paediatric bed days. It’s a no-brainer! Getting Alfie treatment could be the first step to making medical cannabis accessible to others in need. We urgently need the public to make noise to make that happen. Alfie has been through more than most people go through in a lifetime. He deserves to have a wonderful life full of joy. I just want Amber Rudd and Jeremy Hunt to understand this isn’t about the wholesale legalisation of Cannabis. This is about weekly trips to A&E, watching my son have seizures, watching him turn purple, and praying that he lives to see another day. Please sign and share this petition and help me make our family’s only wish come true. And please like our Facebook page Alfie's Hope for all updates on Alfie's journey. Thank you x
Petition to UK Parliament
We demand Alder Hey to release Alfie Evans to a hospital of his parents' choice.
Alfie Evans is at Alder Hey Hospital in the PICU. He was born in May 2016 and has been hospitalised continuously since December 2016, dealing with chronic seizures of an undiagnosed disorder. Having given up on him as early as February 2017, and refusing to do a standard life-enhancing tracheostomy, the hospital has applied to the High Court to remove parental rights and withdraw ventilation to end Alfie’s life. Alfie was born healthy and on time. We were so happy to have him with us going home, our beautiful boy. He grew and fed well, but was exceptionally sleepy and didn't meet milestones. After a couple of weeks we noticed Alfie wasn't doing things he should be, like lifting his head up, grabbing his dummy, eating his hands, etc. We also noticed he was doing a jerking movement with his hands, arms and legs, and his eyes would roll up. Alfie often had his hands clenched into a fist. We took him to doctors three times, who said he was lazy and a late developer. Months went by and Alfie went backward instead of forwards. He started making more jerking movements and wasn't himself at all. Finally Alfie became agitated, crying inconsolably. Then Alfie got a chest infection and landed in the hospital. The infection led him to have a myoclonic jerking spasm, and Alfie struggled to breathe. This is when he was first put on life support, the worst nights of our lives. They told us in January 2016 that Alfie wasn't going to make it, so we had him christened. We thought we were going to lose our son and our hearts were desperate. But Alfie had other ideas, he managed to beat the infection and start breathing on his own again. He was moving and trying to open his eyes. Unfortunately, Alfie caught another infection and went back on the ventilator. Time and time again, despite not being diagnosed or treated for any suspected underlying disease, his seizures being somewhat controlled by a heavy cocktail of sedating drugs, Alfie has come back over and over from every infection and challenge. The hospital claims that Alfie is “insensate” and unaware of any stimulus or irritation, which is proven wrong in hundreds of videos, against the odds of a heavy cocktail of anti-seizure drugs with sedative effect. Daily, Alfie moves, stretches, yawns, responding to tickling and noise and cuddling. And yet even with all this, with loving parents (we are only 20 years old) who persevere through great strain and leave no stone unturned for Alfie, with support around the world, Alder Hey wants to turn his life support off. We have found another European hospital willing to help Alfie move forward, get a tracheostomy and PEG tube and get off heavy sedation, and to try to diagnose and treat him. We’ve been told several times by outside doctors that Alfie can even eventually be able to go home with a tracheostomy and direct stomach tube (PEG). Yet Alder Hey keeps moving the goalposts. They have gone from telling us they would allow transfer if a hospital was found, and putting us through a long process of proving our option was viable, to admitting they would not allow any such transfer. The pressure by the doctors to end Alfie's life has been unrelenting. Now they have resorted to legal force, to remove parental rights and end Alfie's life, going to court behind our backs when we were still willing to go through mediation to find a positive solution. We are relieved that after significant pressure was exerted by our legal team, the hospital backtracked and agreed to the fair mediation they denied us before going to court.Many people have seen Alfie's determination and strength as he battles through every single thing that is thrown at him. Alfie is a beautiful boy, growing big and solid, who is showing every possible sign that he could to tell us that he wants to get better and that he is still here to fight and live his life with whatever help we can give him. Doctors can’t explain away the signs Alfie gives of fighting on. Disabled and sick children deserve care, not a hastened death. We Alfie’s parents have the right and responsibility to make decisions to save him and move him to a hospital who will honour those decisions. Give Alfie his rightful chance at life!
Petition to The Government, Public, courts
Animal abuses should be treated like child abuses
In today's society many animals are being mistreated, whether its' beaten, starved or neglected. Animals can not speak like humans, they can not tell us how they are feeling or if something is happening to them, this is why we as a country need to speak up for them, to get them the rights they deserve. Anybody that mistreats an animal should go to prison for a minimum for 4 years and banned from having animals for a further 5 years. Courts, the government, us as the public, we can all help to make this happen.
Petition to The Rt Hon Jeremy Hunt MP, Prof Dame Sally Davies, Dr Duncan Selbie
Provide tests for Group B Strep to prevent any more avoidable deaths of newborn babies
My partner Scott and I should have been sharing our son Edward Gili’s first birthday last month. But instead of having that exciting first year to celebrate and many more to look forward to, we had just 9 precious days to spend with our beautiful son. Edward was cruelly taken from us as a result of contracting group B Strep infection at birth. On average, one newborn baby a day in the UK develops group B Strep infection. One baby a week dies from group B Strep infection. One baby a fortnight who survives the infection is left with long-term disabilities - physical, mental or both. It is the UK’s most common cause of severe bacterial infection in newborn babies, and of meningitis in babies under 3 months. Group B Strep is a normal bacterium carried by around 1/4 women, without symptoms and usually unknowingly. It can be passed from mother to baby around birth with potentially devastating consequences for the baby. But these consequences are usually preventable and that’s why I’ve started this petition with the charity Group B Strep Support. Unlike many other developed countries including Germany and Spain, the UK does not routinely offer tests to pregnant women specifically to check for Group B Strep carriage during late pregnancy. If doctors know a mum is carrying GBS, they can administer simple antibiotics during labour to prevent the infection - over 80% of these infections could be prevented. However the GBS-specific ECM (enriched culture medium) test is rarely available through the NHS. Since 2003, the UK has used ‘risk factors’ to guess which pregnant women might be at risk. Risk factors are poor at predicting which babies will develop the infection -- the number of babies infected is growing, we need to stop guessing and start testing. The ECM test costs the NHS £11 each and the antibiotics used in labour (usually penicillin) cost the NHS pennies. Had we had ECM tests in place, Edward Gili could be here today for us to see his first steps and hear his first words. We can’t afford to lose any more lives, we can’t afford not to do this.
Petition to Human Rights Campaign, Theresa May MP, Jeremy Corbyn MP, Birmingham City Council
Let my son be with his family
Where to begin. First and foremost Birmingham Children's Services have themselves stated my son has NEVER come to ANY harm in the care of his mother/myself. My son was placed on a child protection register at birth due to me having convictions for violence 4 years previous, he was kept on child protection aged 3 months due to the fact he was "a very advanced baby" and this "may have led his mother to expect to much of him which might cause significant emotional harm". From July 2014-September 2014 my son , his mother and myself lived a happy peaceful life the days were spent loving,nurturing and enjoying our cheery,happy perfect baby ,however we made the grave error of reporting the fact social worker NADINE REDSHAW was turning up clearly intoxicated and had pictures on her Facebook of her friends babies drinking cans of carling, after that Children's Services embarked upon a smear campaign with the aim of stealing our son for adoption. We were branded "bizarre and paranoid" for refusing to strip our son naked in front of a room full of 10/12 strangers, his mother was labelled as "having a learning difficulty she struggled with" - she has genius level IQ (Children's services declined her offer to take an IQ test), we were branded "tremendously defiant" for refusing to sign our son over to my abusive mother , his mother simply asking for the law to be adhered to meant she had "personality difficulties" and quiet unbelievably our next door neighbours were asked to sign a statement "telling a little white lie" - the "little white lie" being that my son's mother had gone out and left our son in the house unsupervised. Back in December 2014 my son was illegally and viciously seperated from his mother by Birmingham Children's Services and my own mother who has a history of abusing children. 2 days before Christmas his mother went to collect him only to have my own mother refuse to hand him over whilst screaming PPO (police protection order) at my son's mother so his mother rung the police to retrieve our son only for the social worker SYEDA TAHERAH AHMED to lie to the police and claim my mother had custody. The reason Social Services gave for so brazenly breaking the law was "the child may be harmed" due to the fact that his mother and myself had had a verbal disagreement when our son wasnt in our care. His mother wanted to take our son to her fathers home in a different city without me. She kept trying to get our son back for the same thing to keep happening until we were taken to court. My mother made up a pack of lies to try and keep our son for herself. Social Services advocated for her relentlessly and the courts put our son in the care of this woman despite the fact at the time she was under police investigation for serious child abuse allegations perpetrated against her own children (me). Thankfully an independent social worker highlighted what a danger this woman was and my son was removed. Me and his mother PASSED a parenting assessment, we proved all allegations against us to be lies and his mother offered to take our son upon him being returned to her care to live at her fathers home away from myself (the "problem"). However Children's services decided to press for adoption due to facts we are still unsure of. At the Final Hearing the social worker was proven to have lied repeatedly about his mother and so had the guardian ELAINE BENNETT. After a 5 day hearing and a 2 week wait we were told our son would be placed for adoption due to the fact his mother had "drawn a malicious picture" of the social worker and because his mother had asked the social worker SYEDA TAHERAH AHMED and manager RUTH EVELYN HILL to apologise for the fact she had been told she could not care for him as a vunerable single parent. Barbara Carter of Barbara Carter Solicitors was the judge behind this scandalous decision she made findings on things his mother was not even questioned about,falsely claimed my sons mother accepted threshold and felt it appropriate to describe him as 'a very attractive baby to adopters' (one of the reasons the order was given according to Barbara Carter). Legal Aid solicitors CARTWRIGHT KING and BLAIR ALLISON colluded with BCS to remove our son for 'potential risk of emotional harm'. My son has until March to be rescued from the clutches of strangers, strangers who follow a completely different religion to him, strangers who are ripping a child from a loving mother to help fill a void in there own lives. My son is not your baby to have, He has a family who love and want him, he is the centre of the whole family and without him it is pointless. His mother says her home feels like someone has died without him in it. He doesn't deserve to be punished for my actions, his mother doesn't deserve to be punished because of my actions and he definitely doesn't need ripping from his family until he is 18 for things his mother "may or may not do" based on MY past. His mother due to Birmingham Family Courts decision to refuse to process her appeals for some unknown reason now has to wait to oppose the adoption order. Enough signatures will get my son's voice heard and just maybe if his voice is heard loud enough he might just might be returned to where he belongs and the courts might stop ignoring applications put before them and see justice done. If the family courts weren't secret he would have NEVER been removed. I quote Paul Pennington-Wilson (independent social worker) : "The parents present as loving parents who's lives revolve around their son" and finally i quote judge Barbara Carter "the mother is clearly a very bright,intelligent,engaging and fiesty young woman with much to offer those around her including her son." Tom Latimer
Petition to Mr Tan Chuan-Jin
Please improve our Public Toilets in Singapore for People with Disabilities
Dear Mr Tan Chuan-Jin, Re: Changes proposed for our Public Toilets for People with Disabilities We are writing to you to request for changes in our public toilets for people with disabilities (PWD), to improve accessibility and use of these toilets, for all people of various disabilities. Public toilets are an essential part in any community, and adequate provision is essential to participate in community and social life. Poor public toilet provision has a major impact on many people, more so those with poor health/disability conditions. Lack of suitable public toilets for PWD can have a negative impact on their independence and confidence, which can lead to poor health, isolation and loneliness. We request for larger sized public toilets for PWD. The size of our public toilets for PWD is currently too small to maneuver an adult wheelchair, and at the same time, have 1-2 caregivers assisting the person with disabilities. We are also requesting for larger and stronger change tables in our public toilets for PWD. Our older children with disabilities, who need to be laid down for diaper changes, are currently being changed on the floor of our public toilets for PWD. Not only is this undignified and unhygienic, but it is also unacceptable of a first-world country. The baby change tables in these toilets are too small and will not take the weight of older children or adults. Most baby change tables have a maximum weight of 9-12kg. The average 1-year old weighs 10kg, so even toddlers need larger tables. The elderly and adults with disabilities who need to lie down for a diaper change, have to endure sitting in their dirty diapers until they reach home, as there is no clean, hygienic place for them to change their diapers when they are out in public. Is it any wonder that the elderly and adults needing the use of an accessible public toilet, would rather stay at home, or cut short their outings, or decide not to venture too far from home? Singapore is currently looking towards improving the social integration of people with disabilities. We need to consider how people with disabilities will be able to relieve themselves and maintain their hygiene, in a clean appropriate environment, so that they will be willing to stay out for longer. One of the goals of the third Enabling Masterplan, is looking at the well being of caregivers. We need to consider what we can provide to ease the physical demands of handling heavy, older children or adults. We believe a hoist system in the public toilets for PWD will not only help in ensuring the safety of the person with disabilities, it will also protect the backs of caregivers. We can further improve the safety of people with disabilities, and the health of their caregivers, by having the change table to be height adjustable, to accommodate the different heights of both the person with disabilities and their carers. As a country that prides herself as being world class, and believes in equality for all, as stated in our national pledge, we should strive to ensure equality of access to public toilets for all people with disabilities, regardless of the severity of their disabilities. These are the changes we are seeking: 1. Larger sized toilets to accommodate easy maneuvering of an adult wheelchair, with space for 1-2 caregivers to assist if required.2. Sliding doors to ease entering and exiting the public toilet when seated in a wheelchair.3. Larger, stronger and height adjustable change tables, with safety-rails that can be folded up or down safely.4. A hoist system to support and safely transport people with disabilities, from their wheelchairs to the change table or toilet, and vice versa.5. A height adjustable hand basin, to accommodate both children and adults, either seated in a wheelchair or in standing.6. The new improved toilets in all public places, including but not limited to: airport, swimming pools, hospitals, government buildings, malls, transport terminals, etc. These changes are based on the standards set by the “Changing Places” consortium, for providing a truly accessible public toilet for people with disabilities: http://www.changing-places.org/install_a_toilet/design/changing_places_standards.aspx If you agree that it is unhygienic and unacceptable for anybody to be changed on a public toilet floor in Singapore, and agree that our proposed changes will be beneficial for people with disabilities, and their caregivers, please take a moment to sign and share this petition in asking for Equality of Access to Public Toilets for All People with Disabilities, and help us build a better and brighter future for people with disabilities in Singapore.
Petition to Damian Hinds, Robert Goodwill MP
Time to stop pushing KS1 into our reception classes and extend "Early Years" to 7!
What are the essential skills for life in the 21st century? What do our children really need to know? What do they need to understand? Does the current English system give them this? Unfortunately...it does not. Our children need communication skills, personal, social and emotional development, physical skills, embedded literacy and maths skills, an understanding of their world and the people in it. https://www.weforum.org/agenda/2016/03/21st-century-skills-future-jobs-students/ They need characteristics such as resilience, perseverance, creative thinking, the ability to solve problems, think outside the box, independence, risk taking, make connections. They need confidence and the ability to learn from mistakes as they grow in a world which is a challenging place to be...and becoming more so by the day. The irony of all of the above is that we currently have a curriculum in England that delivers much of the above and more. It is the Early Years Foundation Stage curriculum. The only problem is it ends when children leave Reception classes. For many children, it is ending in the Reception classes due to pressures to be so called "National Curriculum" ready! This notion of moving children towards KS1 during their Reception year was highlighted in OFSTED's recent report into the Reception year: (https://www.gov.uk/government/publications/reception-curriculum-in-good-and-outstanding-primary-schools-bold-beginnings). It was seen as positive that Reception teachers were starting KS1 learning in their Early Years classes in a bid to make children ready for Yr1 expectations, expectations that are developmentally inappropriate! How can this be right? Many of these children are still 4 years old. Every child in reception is entitled to an early years education, not a watered down pale imitation. Surely its time to stop pushing the flawed and inappropriate KS1 curriculum into our Reception classes and time to push up a curriculum that is tried, tested and proven. A curriculum with relationships, environments and child development at its core. The early years of life do not end at age 4 or 5. They end at 7 or 8..and that is the age when learning should become more formal. This is when most children are developmentally ready for such approaches. Look abroad at nations like Finland where this is just what happens. Their children are thriving and out performing ours. Our children (and their families and teacher's) are tired, stressed, pressured and fed up. Children as young as 4 are switched off and see learning as boring.... Time to stop the testing our over tested children. Time to stop making children do things they are not ready for. Time to make a change for our children, their families and our educational workforce. Let's stand together to make a change for the future. WB Yeats stated that: "Education is not the filling of a pail but the lighting of a fire". It's time to find the matches...
Petition to Theresa May MP, Attorney General, The Attorney General Jeremy Wright MP
Make it illegal for companies to sell child sex dolls in the UK
A company called AliExpress and other online distributors are selling sex dolls the size of small children, to UK adults. This is abhorrent and should never be allowed in this country. Their customer base is clearly exclusively paedophiles and no doubt these dolls can act as stepping stones to committing sexual offences against children. How can this be allowed to happen in a civilised society? The distribution & sale of these dolls should be stopped immediately and all stock held in the UK should be seized by the authorities and destroyed. The safety of children should always be put ahead of profit. Please help to stop this from continuing by signing and sharing this petition. You can read about it here: http://www.mirror.co.uk/news/world-news/child-sex-dolls-size-girls-8243468