Cancer Funding

4 petitions

Update posted 1 year ago

Petition to President of the United States, Tim Scott, U.S. House of Representatives, Sheila Jackson Lee, Bernie Sanders, Greg Abbott, Barbara Lee, James Clyburn, Blue Cross Blue Shield, Nikki Haley, Jerry Brown, Susana Martinez, Andrew Cuomo, Jack Evans, Eleanor Norton, Sanford Bishop, Nathan Deal, Lindsey Graham

Together we can help fight a disease impacting sickle cell trait carriers

My name is Cora Connor and I am writing you on behalf of the estimated 3.1 million Americans affected by Sickle Cell Trait, a common blood disorder, affecting more than three hundred million people worldwide. Individuals with this disorder only carry one defective gene and generally live normal lives. These individuals are at risk for kidney injury, as recently recognized by the NCAA, and other illness. Many people (Sickle Cell Trait carriers, family members, and even physicians) are unaware that there is a rare form of kidney cancer associated with sickle cell trait, called renal medullary carcinoma (RMC). Renal medullary carcinoma is a very aggressive form of kidney cancer and is almost exclusively seen in young African Americans, under the age of 30. The prognosis of these young patients is dismal. Typical survival is under 12 months. Renal medullary carcinoma was first discovered in 1995, but between 1995 and 2012, only 240 cases were reported to The North American Association of Central Cancer Registries (NAACCR). There are a number of areas of concern with regard to this cancer: We need to determine the true prevalence of RMC. Because we lack national health policy that reinforces education about sickle cell trait, many patients do not know their status, or their risk. Without standard screening tests, early detection is almost impossible. There has never been research funding for RMC, so treatment options are limited. Furthermore, most physicians are not familiar with the disease and lack knowledge to deal with this cancer effectively. When patients are able to reach doctors that have RMC expertise, they are usually out of state and many insurance plans will not allow their patients to leave the state of residence, even if there are no local options. This is particularly true for Medicaid covered children and young adults. As a result, many people are denied the option to receive expert care. We have assembled a multidisciplinary focus group, initially through support from The William Guy Forbeck Research Foundation, with physicians, scientists, and lay participant advocates from across the United States, Europe and the Middle East. The goal of this focus group is to begin to raise awareness and to elevate the research for RMC. We are appealing to the National Institutes of Health (NIH) to promote renal medullary carcinoma research, awareness and disease intervention initiatives across the United States. We need to educate the public, as well as health care providers, about sickle cell trait and renal medullary carcinoma. We also need to launch a screening program and create a registry for this disease in order for health care providers to work collaboratively, nationally and internationally, to treat this disease and bridge the gap that currently exists in meeting the health care needs of the individuals suffering from this disease. Thank you for your time and consideration. Respectfully, Cora Connor

R.M.C. Renal Medullary Carcinoma Inc.
6,755 supporters
Update posted 1 year ago

Petition to Billy The Kidster, Josh Rosenberg

Save Samara's Life

Samara is the most loving, kind, funny, outgoing and warm human being I've ever met. From the first minute you meet Samara she makes you immediately feel like family. I challenge anyone to spend 5 minutes with her and not laugh harder than you've probably laughed in your entire life. Sadly, in 2012, Samara was diagnosed with breast cancer. After numerous surgeries, radiation and a lot of chemotherapy we believed she finally beat her cancer once and for all. Unfortunately, all this treatment came with a humongous price tag which she's still desperately trying to pay off to this day. Last month when Samara went in for her monthly check-up they found that her cancer had come back with a vengeance. It's now an aggressive  Stage-4 and her battle will be harder than it's ever been before. Her medical bills have already been astronomical and there's absolutely no way she's going to win this battle without proper treatment. So, we've started this campaign to help Samara get the immunotherapy she so desperately needs. Your love and support will go a long way in helping my friend win this battle once and for all. Every dollar counts so please donate at or and sign this petition to send Samara a note of encouragement to give her strength to continue fighting. To follow her fight please feel free to check out her Instagram at: Thank you very much in advance for your donations and please share this with everyone you can. - Josh

Samara Kimiko
458 supporters