Topic

Cancer Funding

7 petitions

Update posted 4 months ago

Petition to https://facebook.com/amy.bartlett.125

Save the Ass

Community I still need 85 signatures! I've given to many causes, but lately it's really hit home.  My cousin, Jason is a veteran, SDPD officer, husband, and father of 2 young boys. At 35, just a year older than myself, was diagnosed with stage 3 rectal cancer. His sites below, and this one, is designed to update friends and family about his treatment, recovery, and "ass-kicking" of cancer. http://www.10news.com/news/san-diego-police-officer-starts-campaign-to-help-partner-with-cancer Please consider giving to his gofundme page below!  I'm trying to grow awareness, and bring his pages to more people. Please sign, and help spread my petition. Invite friends to like this Page https://www.gofundme.com/2b9y3xck https://www.facebook.com/pg/savetheass/videos/?ref=page_internal "Cancer, what a pain in the ass. So exactly one week ago (Sep 2016) I heard the C-word come out of my doctor's mouth while lying in the recovery room with Danielle next to me. My first thought was 'great my doctor is drunk', then fast forward two days later and that same doctor is confirming the diagnosis and saying words like chemotherapy and colostomy bag. Well I had one thing to say to cancer. "Nope." I didn't give you permission to be in my body so you sir, can F-off; I don't have time for you. I'm 35 years old with two kids to raise and beautiful wife to convince daily to stay married to me. What I can't believe even more than the diagnosis that kicked me in the ass...(see what I did there, you're welcome ) is the unbelievable response from everyone around me. From family, friends and complete strangers. If you know me personally, you know I'm not one who's shy with words and expressing how I feel about something. I can honestly say the out-pouring of love, prayers and support has left me speechless. I've checked the site periodically and get updates from Greg and sometimes I just stare at the screen and cry. I don't cry because I have cancer or because I have to do chemo, I do it because seeing how people will rally around you and help another person is truly awesome. Not just cops helping another cop, or friends from high school lending a hand to an old buddy, but people helping another person in need. I know whole heartedly I have an amazing network of people who won't stand in front of me or behind me but instead will stand right next to me while I fight this. Thank you is a simple polite two word phrase that gets thrown around a lot but from the inside of my soul I want to say thank you to each and everyone of you for agreeing to stand next to me while I take this journey. Take care of yourselves, take care of each other and be well.Help spread the word!"   @savetheass  

Amy Bartlett
19 supporters
Update posted 9 months ago

Petition to President of the United States, Tim Scott, U.S. House of Representatives, Sheila Jackson Lee, Bernie Sanders, Greg Abbott, Barbara Lee, James Clyburn, Blue Cross Blue Shield, Nikki Haley, Jerry Brown, Susana Martinez, Andrew Cuomo, Jack Evans, Eleanor Norton, Sanford Bishop, Nathan Deal, Lindsey Graham

Together we can help fight a disease impacting sickle cell trait carriers

My name is Cora Connor and I am writing you on behalf of the estimated 3.1 million Americans affected by Sickle Cell Trait, a common blood disorder, affecting more than three hundred million people worldwide. Individuals with this disorder only carry one defective gene and generally live normal lives. These individuals are at risk for kidney injury, as recently recognized by the NCAA, and other illness. Many people (Sickle Cell Trait carriers, family members, and even physicians) are unaware that there is a rare form of kidney cancer associated with sickle cell trait, called renal medullary carcinoma (RMC). Renal medullary carcinoma is a very aggressive form of kidney cancer and is almost exclusively seen in young African Americans, under the age of 30. The prognosis of these young patients is dismal. Typical survival is under 12 months. Renal medullary carcinoma was first discovered in 1995, but between 1995 and 2012, only 240 cases were reported to The North American Association of Central Cancer Registries (NAACCR). There are a number of areas of concern with regard to this cancer: We need to determine the true prevalence of RMC. Because we lack national health policy that reinforces education about sickle cell trait, many patients do not know their status, or their risk. Without standard screening tests, early detection is almost impossible. There has never been research funding for RMC, so treatment options are limited. Furthermore, most physicians are not familiar with the disease and lack knowledge to deal with this cancer effectively. When patients are able to reach doctors that have RMC expertise, they are usually out of state and many insurance plans will not allow their patients to leave the state of residence, even if there are no local options. This is particularly true for Medicaid covered children and young adults. As a result, many people are denied the option to receive expert care. We have assembled a multidisciplinary focus group, initially through support from The William Guy Forbeck Research Foundation, with physicians, scientists, and lay participant advocates from across the United States, Europe and the Middle East. The goal of this focus group is to begin to raise awareness and to elevate the research for RMC. We are appealing to the National Institutes of Health (NIH) to promote renal medullary carcinoma research, awareness and disease intervention initiatives across the United States. We need to educate the public, as well as health care providers, about sickle cell trait and renal medullary carcinoma. We also need to launch a screening program and create a registry for this disease in order for health care providers to work collaboratively, nationally and internationally, to treat this disease and bridge the gap that currently exists in meeting the health care needs of the individuals suffering from this disease. Thank you for your time and consideration. Respectfully, Cora Connor

R.M.C. Renal Medullary Carcinoma Inc.
6,725 supporters