Topic

cancer

83 petitions

Update posted 4 days ago

Petition to Philippine Congress, Speaker Panteleon Alvares

KALAYAAN MULA SA KANSER : PASS A NATIONAL INTEGRATED CANCER CONTROL ACT NOW!

Cancer is a growing and serious public health concern. It is inextricably linked with the achievement of the country’s poverty reduction and development goals.   Cancer incidence is increasing and is ranked as one of the leading causes of death among adults and children. In the 2015 Philippine Cancer Facts and Estimates, it reported 109,280 new cancer cases  per year and 66,151 cancer deaths per year.  This is translated to 11 new adult cancer cases every hour, and 7 adult cancer deaths every hour. At least 3,900 children are diagnosed with cancer every year or 11 new cases every day.  It has been noted that there are at least 8 children die of childhood cancer per day. A recent report of the Philippine Statistical Authority (PSA) states that one in every ten registered deaths in the country is attributable to cancer. Since 2004, cancers have been the third leading cause of death following cardiovascular diseases; for child mortality and morbidity, cancer ranked 4th. Experts opine that the actual cancer burden and cancer mortality in the Philippine is in fact very much higher than what is currently being reported. Many more remain uncounted, unrecorded and unreported due to the absence of national cancer registries. Survival rates for the most common adult cancers (i.e. lung, breast, colon, cervical, prostate, liver) are relatively low compared to other countries in Asia and the world. For females, all cancer mortality rate, the Philippines ranks second highest among 15 countries in Asia, with 124 deaths per 100,000 population. Compared to Asian countries, the Philippines has the highest mortality rate for 2 types of cancer: breast (27 per 100,000 population) and prostate cancer (13 per 100,000 population. Lung cancer mortality rates are also high exceeding 40 per 100,000 population. For breast cancer, the Philippines also has the lowest survival (.58 mortality to incidence ratio.  For childhood cancers, which now has an average survival rate of 84% in high income countries and a growing number of middle income countries, average survival rate in the Philippines is at a low 30%.         Cancer is a catastrophic disease which pushes families deeper into poverty. It debilitates not only patients, but also their families and loved ones. The financial burden can be overwhelming, given that financial risk protection mechanisms are limited and patients often need to shell out money from their own pockets to pay for treatment and other costs, such as medical supplies, food, and transportation.  Evidence shows that in a cohort of cancer patients, the mean out-of-pocket expenditure for cancer treatment, far exceeded the mean household income; 117 percent at baseline to 253 percent twelve months after, leading more than 56 percent of households into financial catastrophe.[1] This does not yet factor in the staggering economic and social costs, with productivity losses for both patients and immediate caregivers. This huge out of pocket costs often deter health seeking behavior or leads to discontinuance and abandonment of treatment (i.e. voluntary stoppage of necessary treatment by patient /family) . In some areas and with certain types of cancer, abandonment or discontinuance of treatment can be as high as 75% while average treatment compliance is at a low 21%. These conditions are most observed among the poor. marginalized sectors but occurs even among the so called middle class.      Incidence of cancer is projected to increase by as much as 80%, by 2030, in low resource countries like the Philippines (WHO). This will have a staggering effect on the ability and resiliency of the Philippine health system as well as its overall economy.    THUS, PURSUANT TO THE CONSTITUTIONAL PROVISIONS OF ARTICLE II, SECTION 15 ("The State shall protect and promote the right to health of the people and instill health consciousness among them"), and ARTICLE 13 SECTION 11 ("The State shall adopt an integrated and comprehensive approach to health development which shall endeavor to make essential goods, health and other social services available to all people at affordable cost. There shall be priority for the needs of the underprivileged sick, elderly, disabled, women, and children. The State shall endeavor to provide free medical care to paupers")  WE CALL ON GOVERNMENT TO PASS A LAW WHICH WILL EXPAND EFFORTS TO EFFECTIVELY MANAGE AND CONTROL CANCER, IN ALL ITS FORMS, BY INCREASING INVESTMENTS FOR ITS PREVENTION, EARLY AND ACCURATE DETECTION, OPTIMAL TREATMENT, AND BY ADOPTING AN INTEGRATED, MULTI-DISCIPLINARY, AND PATIENT/FAMILY CENTERED APPROACH. We ask that this law include provisions that will have the following integral elements. 1. Strengthening of Cancer Care Infrastructure and Service Delivery Networks to cover the continuum of care. Public health facilities shall be strengthened to provide services spanning prevention, detection, diagnosis, treatment, palliative and hospice care, survivorship follow up and rehabilitation.  This entails (a) providing investments in health facility renovation or upgrade, (b) providing reliable supply of medicines, biologics, and other supplies, (c) training and enhancing oncology related capacities in pathology, radiotherapy, surgery, nursing care,  (d) establishing clear protocols for patient navigation and palliative care, (e) ensuring proper recording and monitoring of cancer cases , and (f) ensuring that recording and monitoring extends to primary health care units. Regional Cancer Centers shall likewise be designated in strategic areas to improve access to optimal care and reduce patient costs. Robust and cost effective refer all systems among various levels of service delivery shall be institutionalized. 2. Strengthening the capacity of the Human Resources for Health in Cancer Care. A competency-based curriculum for all health care workers providing cancer care treatment and support at all levels of the healthcare service delivery system shall be created. This shall include multi-disciplinary, interdisciplinary approaches to cancer care. This will also include adoption of cost-effective teaching platforms for enhanced knowledge, skills, and attitude and implementation of health worker accreditation and certification mechanisms. 3. Strengthening the FDA to ensure the safety, quality, and efficacy of medicines, biologics, and other health technologies. The Food and Drug Administration (FDA) shall strengthen its regulatory capacity to ensure availability of safe, efficacious, quality medicines, biologics, and other health technologies for cancer patients. The FDA shall also develop policies facilitating clinical trials, supporting early access to innovative therapies and health technologies to ensure highest possible fighting chance of survival among people with cancer. 4. Institutionalizing Funding and Social Protection Mechanisms for Cancer Patients, Survivors, Caregivers, and their Families. Given the catastrophic nature of cancer and in order to ensure equitable access to treatment and care, there is a need to provide financial support to cancer patients, survivors, caregivers, and their families in the following forms: Establishment of a Cancer Assistance Fund to reduce out-of-pocket expenditures for diagnosis, treatment, follow through survivorship care and rehabilitation services. This may be sourced from pooled and integrated funds from the Department of Health, Department of Social Welfare and Development, Philippine Charity Sweepstakes Office, Philippine Amusement and Gaming Corporation, among others. PhilHealth Benefit Packages for Cancer. The Philippine Health Insurance Corporation (Phil Health) shall develop and/or expand its benefit packages to include all forms of cancer including metastatic cancers and high risk cancers in children . Social Protection Mechanisms for cancer patients, survivors, caregivers, and their families. The State, in collaboration with DOH, SSS, GSIS, PCSO, PAGCOR, DOLE, DSWD, DOLE and LGUs shall develop social protection mechanisms to support the needs of the cancer patients, survivors, caregivers and their families to reduce, if not eliminate catastrophic cost and ensure well-being.  Nondiscrimination. Access to healthcare services should be provided without discrimination regarding race, religion, sex, national origin, or disability. Patients should also be free from discrimination based on their disease, with respect to both employment and health insurance accessibility 5. Establishment of a National Cancer Registry and Surveillance System and Evidence Generation. A National cancer registry and surveillance system covering all forms of cancer among adults and children shall be designed and implemented to support program decision-making. All public and private health centers, hospitals and facilities shall also observe notification protocols to alert the DOH of all cancer cases. 6. National and regional research and demonstration projects shall be conducted to generate evidence to improve policies and the implementation of the Integrated Philippine Cancer Control and Management Program (IPCCMP). 7. Strengthening Health Promotion, Information, and Education Programs. Health promotion and education activities shall be strengthened in schools and learning institutions, work places, communities, and among vulnerable, at-risk, and disadvantaged populations. A National Cancer Information Office shall also be developed to develop platforms (e.g. interactive websites) to provide comprehensive cancer information services to cancer patients, their families, the public, and health professionals. The DOH, in coordination with the Philippine Information Agency (PIA), KBP (Kapisanan nang Broadcasters nang Pilipinas)  and other related institutions , shall encourage media outlets to launch a media campaign on adoption of healthy lifestyles, early warning signs and symptoms of cancer, cancer prevention and control, treatment and management, using all forms of traditional multimedia and social media. The media campaign shall maximize participation of advertising agencies in developing behavior change communication materials that would promote cancer information and encourage adoption of health lifestyles among the public. 8. Establishing National Cancer Screening Programs. Identifying cancer at the earliest possible stage means that treatment is less costly, cure is most likely, survival rates will increase  and health outcomes will become more positive. We envision that creation and passage of this law will ensure that a diagnosis of cancer will no longer be akin to a a death sentence and that Filipinos will be able to fight and survive cancer just like citizens of other countries in Asia and the world. Increased survivorship and improved health outcomes for Filipinos with cancer will contribute to  our countrys achievement of Sustainable Development Goal 3 (Reduce mortality from cancer by at least 30%) as well as the realization of our countrys health and development priorities.          KALABANIN ANG KANSER TUNGO SA TUNAY NA KALAYAAN!  CANCER COALITION PHILIPPINES  The Cancer Coalition Philippines (CCPh) is a national coalition of cancer patient support organizations, health care providers, cancer advocates and champions engaging and working with government, policy makers, private sector, civil society, and international development partners. This petition is supported by the following: HOSPICE PHILIPPINES I CAN SERVE FOUNDATION CANCER WARRIORS FOUNDATION CAREWELL COMMUNITY FOUNDATION PHARMACEUTICAL AND HEALTHCARE ASSOCIATION OF THE PHILIPPINES PAIN SOCIETY OF THE PHILIPPINES PHILIPPINE BRAIN TUMOR ALLIANCE PHILIPPINE CANCER SOCIETY  PHILIPPINE COLLEGE OF SURGEONS PHILIPPINE OBSTETRICAL AND GYNECOLOGICAL SOCIETY PHILIPPINE SOCIETY OF HEMATOLOGY & BLOOD TRANSFUSION PHILIPPINE SOCIETY OF MEDICAL ONCOLOGY PHILIPPINE SOCIETY OF ONCOLOGISTS PHILIPPINE SOCIETY OF PATHOLOGISTS PHILIPPINE SOCIETY OF PEDIATRIC HEMATOLOGY PHILIPPINE SOCIETY OF PEDIATRIC ONCOLOGY PROJECT: BRAVE KIDS INC. SOROPTIMIST INTERNATION ORTIGAS & ENVIRONS  SURGICAL ONCOLOGY SOCIETY OF THE PHILIPPINES [1] Ngelangel et al (2016). Philippine Costs in Oncology Study.  https://www.facebook.com/CancerCoalitionPH/

CANCER COALITION PHILIPPINES
3,532 supporters
Update posted 1 week ago

Petition to Politicians, Governments, Medical Associations

PETITION FOR BRIGGS FOR A NEW ERA IN MEDICAL CARE

My wife Briggs would still be alive if not for all the harm that was done to her in the course of her treatment.  We had begun turning around her cancer when I lost her to medical errors in what was meant to be a short emergency hospital stay. I wrote a book about her cancer journey, "Briggs: Love, Cancer, and the Medical Profession".  A sister petition to this one, the Petition for Briggs for Cancer Immunotherapy for All, has been signed by 30 stars, legends, eminent professors, and a founder of Stand Up to Cancer.  A recent study in the British Medical Journal confirmed one of my chapter titles, that medical errors are still the third leading cause of death in the U.S. I took the shot above very early in the morning.  All Briggs cared about was that a nurse had just given her a warmed blanket.  Her loop colostomy had failed.  She was about to have a revision surgery, a more radical end colostomy which put her through hell for months to come with a 24-hour-a-day discharge.  Loop colostomies regularly fail.  There are three methods to avoid it.  In going over Briggs's medical records for the book, I found her doctor had used none.  He's a premier surgeon at one of the most prestigious cancer centres in Manhattan, if not the world. A retired nurse wrote in a review of the book, "We need this type of information long before something happens because in the throes of it one becomes so drained they cannot decide which way to go!!" A doctor calls it "a major eye opener." He messaged me separately to say it's overturned his approach to medicine, and told me of saving a boy's life by intervening with a colleague. I quote a Harvard professor's estimate that between 90 and 99 percent of side effects go unreported.  The FDA relies on those reports to determine the ongoing safety of a drug once it's on the market.  The side effects of an anti-anemia drug Briggs was given just one time put her in the hospital for 30 days.  I later found there'd been a Congressional hearing on the safety of it. Briggs had almost died even after the paramedics came. A University of Minnesota study found that morphine increases sensitivity to pain (hence the constant increases) and can cause tumors to grow.  The State of Ohio has filed lawsuits against five major drug manufacturers, accusing them of misrepresenting the risks of other prescription opioids such as OxyContin.  (One of those companies is Johnson & Johnson.  It's now lost four cases, with 2400 more pending, over claims their talc-based have long caused ovarian cancer.) I cite a study co-funded by the National Institutes of Health and led by a team at the University of California, San Francisco.  Depending on the facility, it found that CT scans can deliver up to 13 times their already-high base radiation. There are dozens more examples in the book.  Another reader wrote, "My own experience, and the unflinching witness of Paul Sanderson's enraging, moving, generous tribute to his wife, communicate that damage comes far more easily than healing when principles and intentions become distorted…So, read this book as a warning, as an opportunity, as a privilege."Susan Sarandon writes, "He's giving us the tools to avoid the 'died of complications from' in too many patients' obituaries at the same time as setting out to usher in a new era in cancer twenty years ahead of time. Let's join him in the fight."Please join me in calling for a new era in medical care and treatment, including by extension the pharmaceutical industry.  We need standardized procedures; a new approach to the approval and dispensing of drugs; far more analysis of their effectiveness and safety compared with well-documented natural alternatives; patients and caregivers being given crucial, comprehensive information; the list goes on and on, including addressing such issues as a recent study in the Annals of Internal Medicine finding that for every hour physicians were seeing patients, they needed to spend almost two additional hours on paperwork. This petition is meant to begin the conversation in earnest. Paul

Paul Sanderson
144 supporters
Update posted 1 week ago

Petition to US/EPA , Heidi Harmon, Mayor

Ban Oil/Gas Fracking in San Luis Obispo County, CA & underground pipeline in Nipomo, CA.

Fracking is an inherently dangerous threat to our air, water and health. Ban Oil/Gas fracking now in San Luis Obispo County, CA. Why is this important?Fracking is a toxic method of oil and gas extraction that involves blasting vast quantities of water and toxic chemicals deep underground and it's endangering countless Californians' health, safety and livelihoods. Big Oil/Gas has plans to massively expand fracking in a huge section of the state roughly 1,750 square miles from Southern to Central California, from Modesto to San Diego County--putting our precious water, our farms, and our health at risk. In the last ten years, fracking has expanded rapidly in states like Pennsylvania, North Dakota, Texas and Colorado. Residents living near fracking operations suffer from constant noise and light pollution, endless diesel truck traffic, toxic spills, contaminated water, dangerous air pollution, increased crime, and falling property values. If fracking continues to expand, it could spell ruin for California farmers. Appallingly, even in times of drought, the fracking industry regularly outbids farmers for water rights, increasing the price of water and directly jeopardizing their livelihoods. And the toxic chemicals and heavy metals associated with fracking operations can contaminate the soil, air and water, leach into crops, and kill livestock. But despite the clear risks posed to Californians by the oil industry's plans to frack our state, legislation that would have placed a moratorium on fracking died in the Assembly and Governor Brown appears eager to encourage the expansion of this toxic industry. That's why we have to take matters into our own hands and ban fracking at the local level. Cities and counties in California have broad authority to ban fracking, and we should pressure our elected officials to step in where the state government has so far failed to act. Local bans on fracking may also be one of the most effective strategies for winning change at the state level. If a wave of cities and counties in California reject fracking, it will put increased pressure on Governor Brown to ban fracking in all of California. Hundreds of communities across the country, from New York and New Mexico, to Pennsylvania, Ohio and Colorado, have successfully passed local bans or moratoriums on fracking in order to protect their homes and pressure state officials to act. Ban underground pipeline project construction at the public park in Nipomo, CA. Now it's up to us. Please sign my petition and help me ban fracking in our community. Together, we can pressure our elected officials to act. Sources: San Luis Obispo County Pending. 7/2017 Santa Barbara Becomes First California City to Pass Resolution Against Offshore Oil and Gas Drilling. 7/26/2017https://www.ecowatch.com/santa-barbara-offshore-drilling-2465777011.html Monterey County is California’s first major oil-producing county to ban fracking. 11/29/2016  https://www.foodandwaterwatch.org/impact/monterey-county-california%E2%80%99s-first-major-oil-producing-county-ban-fracking Alameda Becomes 5th County in California to Ban Fracking. 7/20/2016 https://www.ecowatch.com/alameda-county-becomes-fifth-in-california-to-ban-fracking-1933900702.html What Banning Fracking in Butte County Taught Me about Grassroots Organizing. 6/17/2016 https://www.foodandwaterwatch.org/impact/what-banning-fracking-butte-county-taught-me-about-grassroots-organizing Election win puts rural San Benito County on anti-fracking map. 11/29/2014 http://www.latimes.com/local/california/la-me-san-benito-fracking-20141129-story.html Mendocino County is first California community to enact ban. 11/5/2017 http://www.ohio.com/blogs/drilling/ohio-utica-shale-1.291290/mendocino-county-is-first-california-community-to-enact-ban-1.538340 Beverly Hills Becomes First City in California to Pass Fracking Ban. 4/24/2014 https://www.ecowatch.com/beverly-hills-becomes-first-city-in-california-to-pass-fracking-ban-1881899667.html        

Kim Chaffee
150 supporters
Update posted 1 week ago

Petition to The Cancer Industry, Cancer Organizations, and Governments

PETITION FOR BRIGGS FOR CANCER IMMUNOTHERAPY FOR ALL - A New Era

Thanks for coming here in Briggs's memory.  I tried for a year to get access to the immunotherapy she needed.  Just four days after I heard we finally had a chance, I lost her to complications brought on in what was meant to be a short emergency hospital stay.  It should never have been that close.  And no-one should ever have to go through all Briggs did.  Cancer disguises itself.  Immunotherapy either alerts the immune system to it or does such things as block the disguise.  The immunotherapeutic vaccine (curative not preventive) I'd been pursuing for Briggs had brought complete remissions in stage IV colorectal cancer.  Immunotherapy's a potential cure in all other solid-tumor cancers such as breast, lung, renal, and pancreatic.  The Vice Chair of Neurosurgery at University of California, Los Angeles has successfully used it in the usually incurable brain cancer that took Senator Ted Kennedy and, in 2015, Joe Biden's son Beau.  She has patients still cancer-free at over 10 years. In early 2016 an immunotherapy put President Jimmy Carter's stage IV melanoma into complete remission despite it having already spread to his liver and brain.  Development of it was led by a professor on this petition. Immunotherapy's also worked in acute leukemia.  In 2012 all treatment had failed with a 6-year-old girl at the Children's Hospital of Philadelphia.  Her condition was terminal, but a test after 3 weeks showed no cancer.  60 Minutes later ran a story on it.  Memorial Sloan-Kettering has succeeded in adult leukemia. If you'd like to read more on immunotherapy, this article of mine about it and Briggs was featured by the Huffington Post and Stand Up to Cancer: 30 Stars and Doctors Sign the 'Petition for Briggs for Cancer Immunotherapy for All'. Former NYC mayor Mike Bloomberg and Amazon's Jeff Bezos and his family have donated tens of millions to cancer centres for the development of immunotherapies.  Bill and Melinda Gates have invested in a company focused on them.  It takes anywhere from $350 million at a biotech to $5 billion at a major drug company to bring one new treatment to the market.  Tens of billions are needed from, among others, Congress. Please join us in calling for governments, the cancer industry, and cancer organizations to reorient the primary direction of funding, research, and treatment to the safest, most potentially effective immunotherapies in every cancer, and, notably in this context, curative immunotherapeutic vaccines.  (The one I'd tried to get Briggs had a perfect safety profile.)  Not trials for trials' sake, which has too often been the case in the past with chemo, etc.  An overabundance of unwarranted trials only leads to lack of oversight and harm.  And in conjunction with that, to make information on immunotherapy routinely and widely available to patients and caregivers. (If you've read Briggs: Love, Cancer, and the Medical Profession, comments to build awareness would helpfully reach more people as a book review on the Amazon kindle/paperback page: www.Amazon.com/BRIGGS.  Only the latest show below.) Heartfelt thanks for signing in Briggs's memory, to begin changing this for others as she so wanted, and for anyone you know with cancer; I hope not a close loved one or you yourself. Paul_________________________________A sister petition to this addresses medical errors especially, the Petition for Briggs for a New Era in Medical Care and Treatment _________________________________Join Rod Laver, Martina Navratilova, Nick Kyrgios & 10 squash greats in the Volleying Challenge for Briggs's Petition_________________________________Twitter: @BRIGGSsBook  

Paul Sanderson
6,157 supporters