Topic

cancer

127 petitions

Update posted 4 days ago

Petition to Richard Gottfried, Carl Heastie

Enact the "Dream law" Bill S474/ A212 for all Transplant Patients 2019

TITLE OF BILL : An act to amend the public health law, in relation to deeming central venous lines as medically necessary Dream Shepherd is an 14-year-old girl who has courageously battled Sickle Cell Disease and who suffered a stroke in 2010 at the age of five. In December 2014, as part of a study, Dream received a stem cell transplant as part of her treatment plan and fight against Sickle Cell Disease. After the transplant she remained in the hospital for several months, while Doctors worked to stabilize her immune system, which was crucial to her discharge and transplant success. Additionally while in the hospital Dream had a Central Venous Line placed into her heart. The Central Venous Line has strict care requirements. In New York State Health Facilities only Registered Nurses are legally allowed to administer I.V. medications with use of a Central Venous Line; which have to be properly managed to ensure that Dream, and other's with a Central Line, do not acquire infections, especially if immuno-compromised. This central line goes directly into the right atrium of the heart, and requires immediate action should there be a disconnection for any reason as a patient with this type of line can exsanguinate should this go unmonitored or unnoticed. In addition to the high risk of infections, other complications of Central Venous Lines include Air Embolism, Pneumothorax, Pinch-off, Syndrome, Drug Precipitates, Thrombosis, Catheter Occlusion, Catheter Malposition, and Sepsis a severe blood infection caused by bacteria, viruses, and fungi. Sepsis is extremely serious and can be life-threatening.  Due to the high potential for dangerous infections, as part of discharge planning, Dream's mother, who is not a medical professional, made a request for a skilled private duty nurse to care for Dream's central venous line. This request was denied by the insurance company as it was "not deemed medically necessary." Due to this rejection by the insurance company, the hospital informed Dream's mother, that she was required to provide the necessary care to Dream's central venous line. Not ensuring that Dream would have the correct and proper skilled nurse to provide the care after discharge which could have caused irreparable harm, including the worst outcome. Attempting to force the mother to provide the care would have required her to lose her job and source of income, along with saddling her with the anxiety of overseeing the medical attention that if not done properly, could lead to the loss of her daughter's life. That is a position no family member or friend should ever be in.

Diana Lemon
16,210 supporters
Update posted 1 week ago

Petition to Dianne Feinstein, Gavin Newsom, Julia Brownley, Jared Blumenfeld, Rick Perry

No more kids with cancer: clean up the Santa Susana Field Lab

When my daughter Grace Ellen was diagnosed with a very rare form of cancer, at age four, I thought that our family had the worst, most devastating luck. But after spending months in the hospital with her, we learned that she was one of over 50 children who may have been poisoned by one of the worst nuclear meltdowns in America. Sign to demand that California's EPA and the Dept. of Toxic Substances Control (DTSC) enforce the AOC cleanup of the Santa Susana Field Lab and prevent any more children from getting cancer. Grace Ellen’s form of cancer was incredibly aggressive. At age four she was put on several clinical trials, had ten times the normal amount of chemotherapy, and spent two years fighting her cancer. A year and a half later her cancer came back and she underwent a bone marrow transplant. She was unable to walk or eat or drink, and had to fight for her life in the hospital isolation floor. Her childhood was stolen from her, and it haunts me to know her cancer might have been avoidable. She, like the other 50 children, grew up within 20 miles the Santa Susana Field Lab, land which was developed in the 1940s to conduct nuclear research. In 1959 an uncontained partial meltdown of a sodium reactor caused such a devastating radiation leak that many consider it to be the worst nuclear disaster in U.S. history – and it was completely covered up for years. Our community has up to 60% higher cancer rates, 20% higher invasive breast cancer rates, we have the reports to prove it. It is the Department of Toxic Substance Control’s job to clean up this mess. They know our children are sick and dying, but they aren’t taking any meaningful action against those who own the land – Boeing, NASA and the DOE. The Woolsey Fire, which began on Santa Susana Field Lab, may have exposed millions of people in Southern California to the chemical and radioactive waste from the site, via ash and smoke. It proved once again that we will not be safe until the site is 100% cleaned up. I will protect my children even if I have to tear down mountains with my bare hands – and I am one of many parents fighting for our kids. To win this, we need DTSC and CalEPA, with the support of California's elected officials, to enforce the AOC cleanup once and for all. Will you join us? 

Melissa Bumstead
702,390 supporters
Update posted 3 weeks ago

Petition to Dr.H.Bliss Murphy Cancer Clinic, The Government of Newfoundland and Labrador

Designate parking spaces close to the hospital for cancer patients receiving treatment.

There is no parking made available for cancer patients at the Dr.H.Bliss Murphy cancer clinic. What can the Cancer clinic do? • Provide a designated parking area for cancer patientswith enough spaces( we are looking for 25 spots). Use a boomgate and/or apermit system to make sure only eligible patients canpark there, and enforce it. Cars can be towed and tickets issued just like the blue zones. • Use a permit system such as windscreen stickers,swipe cards or dashboard passes, with expiry datesor color coding to show patients with currentappointments. Having a designated parking area close to the hospital for cancer patients who are receiving treatment is vital.We are fighting the biggest battle of our lives and having the stress of parking should not be one of them.  I was late for an appointment at the cancer clinic because it took me 45 minutes to find a place to park.The long walk to the entrance of the hospital was exhausting.I see a lot of people who are receiving treatment at the Dr.H.Bliss Murphy cancer clinic and many are seniors.This parking problem has to be addressed because it has been a problem for these patients for years.Designated parking is needed for cancer patients and those spots need to be close to the entrance of the cancer clinic. I started this petition because many cancer patients talked about the problem with the parking and how frustrating it is to find a place to park going to the Dr.H.Bliss Murphy cancer clinic. I hope the hospital can designate an area for cancer patients close to the clinic.It would make this journey more easier on the patients.   Another part of this advocacy we have voiced our concern is Smoking.It should be prohibited from the cancer clinic and the HSC.People are smoking in the entrances and then throwing cigarette butts to the ground.Take a walk in front of the cancer clinic one day and you will see just that...A beautiful garden there but sadly many butts on the ground. Even though there is an announcement stating smoking is not permitted on the grounds people still are doing just that. Hospitals and clinics should be Smoke free zones.      

Susan Glynn
26,174 supporters