11 petitions

Update posted 2 months ago

Petition to United States Department of Health and Human Services, Department of Education

Allergy procedures in schools HAVE to change!!!

Two weeks ago, my daughter was given a peanut butter and jelly sandwich at school. This was with the school (by direct conversations with me - the principal, cafeteria manager, teachers and Nurse) being fully aware of her allergies to peanuts and treenuts. I took every step I could to ensure an incident like this didn’t happen to her, and it still happened. The teacher caught her after only one bite and realized the mistake made, but I was contacted rather than paramedics and her epipen wasn’t administered immediately. This was because her school administration and Nurse did not know that you should immediately give epipen, and when I arrived 40 minutes after she had the bite, I watched as the school nurse fumbled with the epipen obviously unaware of how to administer it properly. This lack of education and awareness could have cost my 4 year old her life. Thankfully it didn't turn out worse than it did. I called and emailed the school board about the procedures and events that took place before and after she had the bite of the sandwich. I have not heard anything back from anyone and I think it is time for change. The system is failing parents of children with allergies. I just read an article where a 3-year old with known and reported dairy allergies was given a grilled cheese sandwich at school last week, and died. All this because the proper procedures were not taken, and a trusted, informed adult, fed him something he couldn't have. I have been assured by my daughter's school and administration that this will never happen again and they are being extremely proactive about the situation, even though it never should have taken my child being traumatized for these proactive steps to be taken. Proactivity is a must in every situation, BEFORE a child dies or is traumatized.  I know that teachers and administrators are required to watch compliance videos and be educated about allergies and such, but how many of them actually know how to administer Epinephrine when needed? Do they know how to tell when it is needed or what some of the symptoms are? Did you know that someone falling asleep is one of many signs of anaphylactic shock? So is fever, vomiting, sneezing, itching, coughing.. hives, choking, and throat swelling seem to be the only symptoms that most people know to look for. Why would the school, or school nurse especially, call the parents before administering epinephrine and calling 911 when a child is given a known allergen? These should be the first steps! Why didn’t the school nurse know that she was supposed to have epipen immediately? If you do not have a child that has allergies like this, or have never seen what a child looks like when they go into anaphylactic shock, then you cannot imagine the wave of panic and fear that sweeps through a parent when they get a call stating that their child, in an environment that is supposed to be safe for them, was given something that is poison to their body. You can't think straight to remember to verify that the school is doing their job correctly, and quite frankly there are many parents who could be unaware of just how severe their child will react. They may not know that 911 should be called JUST IN CASE, if nothing else. They are trained to deal with a situation and can get the child to the hospital a lot faster than a parent can which is sometimes vital to the survival of the child. My daughter got worse on the ambulance ride to the hospital, I live in Dallas and cannot imagine what I could have done had I got stuck in traffic on the way there.  My daughter is protected where she is right now, but what if we have to move and she changes schools? Is she going to end up in the same traumatizing situation at another school because the administration is, again, uneducated on the proper procedures to follow? Am I going to have to keep reading articles about children dying because of a severely flawed school/child care system? I am only doing what I feel is best for my daughter and the large and growing community of children with allergies attending school in the United States. I never want to read an article that a child died again because the school didn't know any better, or didn't do the right thing by a child after they were introduced to something they are allergic to, especially when I know there is something I can do to prevent it. Please sign this petition so we can take the steps and get to the people who can make a difference in the lives of children with allergies. I am petitioning to make it a standard in all schools and child care facilities that educators and administrators as well as school nurses are educated in the proper procedures to take when presented with a child with severe allergies that has ingested their allergen. They all need to be educated on proactive steps to avoid the child receiving their allergen, and that in the event that they are given said allergen, the proper steps are taken. Epinephrine first, THEN 911, THEN parents should be contacted. This should be the standard. Let’s make it so. Thank you!

Erin Burch
52,400 supporters
Started 4 months ago

Petition to Janet Woodcock, M.D.

Make listing all ingredients in a product mandatory

Who do you know with an allergy? Is it a friend or family member? If not, you must have at least heard about what deadly allergies can do to people. Anaphylactic shock is a type of severe allergic reaction. Common allergies are to animals, bug bites, foods, and chemicals in drugs. People with allergies that are serious, and even life threatening, have to constantly be on alert. Common allergies, like nuts and shellfish, are listed on menus and on packaging for foods that contain these items. But what about less common allergens? I, for one, am allergic to cinnamon. Throughout my experience, I've been questioned about whether or not it's a legitimate allergy. It's less common than being allergic to a bee sting, that's for sure.  Avoiding my allergen isn't as easy as one would think, mostly because it's unlisted in the ingredient list of many foods. The phrases "mixed herbs and spices" and "natural and artificial flavors" are the bane of my existence, because for me, it's a gamble. Either I take the chance that there isn't cinnamon, and I get lucky, or I end up panicking as my throat swells.  When I go to get a coffee at Wawa, Starbucks, or some other restaurant, and I ask if there's a specific ingredient, the employee should be able to easily locate the ingredient list and tell me whether or not the allergen is present. Large companies can get away with listing the common allergies, and main ingredients. But for people with lesser known allergies, and who have severe reactions, unnamed ingredients could mean a visit to the emergency room.  What I want is for every ingredient in food, drugs, and bodily care products like soaps, shampoos, and bath bombs, to be listed. Labels like "mixed herbs and spices" and "natural and artificial flavors" are doing nothing to help, and are incredibly vague. I believe all ingredients should be listed, no matter how small. For some people, this is a matter of life and death.

Christa Anony
218 supporters
Update posted 5 months ago

Petition to Barbara Comstock, Mark Warner, Tim Kaine, Lamar Alexander, Patty Murray, Orrin Hatch, Rand Paul

Allow people to share prescription epinephrine in emergencies

Epinephrine (e.g., an “EpiPen”) is critically important to people with severe allergies. Such devices are only available by prescription and federal law only allows prescription medicines to be used on individuals for whom that medicine is prescribed; it is unlawful to share prescription medicines. While this is reasonable in most cases, it can have deadly consequences in the case of epinephrine. Someone experiencing anaphylaxis, a potentially life-threatening allergic reaction that can occur quickly when someone is exposed to an allergen, requires immediate administration of epinephrine. If a person does not have his or her prescribed epinephrine (e.g., EpiPen) either because they have never been diagnosed with an allergy, forgot to carry it, or some other reason, their situation is dire. Such a thought causes heartfelt anxiety in people with severe allergies and their families.  My seven year old daughter Catherine is severely peanut allergic and, since her diagnosis at the age of one year, I have carried around a deep fear that I might not be able to help her if she ever needs me. As vigilant as I am about carrying her medicine, I sometimes forget it. I’m very aware that epinephrine is commonplace – literally hiding in people’s pockets and purses. I can only speak for myself when I say I would not hesitate to save another child’s life using my daughter’s epinephrine prescription. I would also break the law by doing that.   Today I am asking you to stand with me in petitioning congress to craft legislation to allow prescription epinephrine to be shared in emergency situations and to include language that would exempt a person who shares epinephrine from legal liability.

Matt Shaker
1,639 supporters
Started 5 months ago

Petition to Edward Bastian, Delta Air Lines, Mike Hhogan, United States Department of Transportation, Environmental Protection Agency, J.E. SullivanJ.E. Sullivan Administrative Law Judge, Leah Sirmin, Oscar Munoz

Ban Air Fresheners on all United States Airlines

As of now passengers don't have any rights in terms of allergies and taking air transportation. I am creating this petition so that new laws can be implemented giving those that suffer from allergies, chronic illness, and asthma the ability to fly without fear of hospitalization, illness, or death. It has been confirmed that United Airlines and Delta Airlines (among others) push artificial scent through their ventilation system. These fragrances include lavender and chamomile among other non-confirmed scents. Although these can be calming to some to those that have life threatening allergies and illnesses such as Multiple Chemical Sensitivity (MCS) this could result in hospitalization or death.  15% of the population in the United States have MCS, 50 million people also have allergies, and 25 million people have asthma. With these statistics, it is clear that allowing airlines to have scents pushed through their ventilation systems, sprayed on the plane, or in the bathrooms is a clear health risk. While the airlines can not control what passengers might be wearing in terms of perfume, they do have control over the use of fragrances by their crew. Based on these facts and statistics it is clear that a passengers health is more important than adding scents to the plane. Immediate removal of all artificial fragrances on these air craft carriers would stop Immediate removal of all artificial fragrances on these air craft carriers would stop unnecessary spending for the airlines based on the cost of the air fresheners. This would also allow for more passengers to fly without fear of illness, and without needing to wear a face mask to filter the scents.  If the crew and pilot make passenger safety their top priority then this should also include their health as well. Symptoms An allergic reaction to artificial scents can present in a multitude of symptoms, according to National Institutes of Health. The most common symptoms include skin rash, burning sensations in the eyes or throat, headache, hives, blurred vision, nausea and vomiting, diarrhea, chills and difficulty breathing, anaphylaxis, and extreme vertigo. Those exposed are told to seek immediate medical attention especially if the person exposed needs to use their epi-pen.   If this were your child, your husband, your wife, or your grandparent would you want them to risk their life while flying? Many people with MCS and allergies live inside of their homes, without ever leaving because they fear that they might be triggered which many are every single day. While traveling is a privilege we need to make sure that those who do travel, the 75+ million people living with severe allergies are safe.

Elizabeth Ryan
1,425 supporters