Topic

Access to Healthcare

28 petitions

Update posted 2 months ago

Petition to U.S. Congress

Save Our Babies - Vote Yes on Aidan’s Law: Eradication of Death by Zip Code

Aidan Jack Seeger was a happy, healthy, spirited NY boy who, at age 6, suddenly developed vision and concentration problems. His parents thought he just needed glasses. He was misdiagnosed several times. His sight went entirely, then his ability to walk and talk. Eventually, doctors figured out that Aidan had adrenoleukodystrophy (ALD), a mysterious and deadly brain disease. Eleven months later, he was gone. The worst part? If the disease had been caught early, Aidan could still be alive and well today. Aidan’s parents, Elisa and Bobby Seeger, have since made it their life’s work to save other children. ALD afflicts 1 in 17,000 people, mostly boys and men, silently ravaging their central nervous systems. Results include blindness, deafness, seizures, progressive dementia – leading to permanent paralysis or death. But there’s a solution: newborn screening of ALD. If the disease is caught before the onset of symptoms, it can be treated and, in some cases, entirely reversed. Through the Seegers’ hard work and commitment, newborn screening for ALD became law in New York State. They are now fighting to pass “Aidan’s Law” , which would fund not only ALD, but MPS1, Pompe, and SMA screening in all 50 states. Currently, it can take up to a decade or more before 50 states are testing for any disease added to the Federal Recommended Uniform Screening Panel. Help us save our babies. Please join us in calling on Congress to pass Aidan’s Law and require newborn screening for ALL diseases approved by the federal government  in all 50 states. A child's life should NOT depend on their zip code. Every baby born in this country deserves the same right to a normal, healthy life. In six years of ALD screening only 14 states are screening, OVER 300 babies have been diagnosed with the disease —that’s 300 lives saved. Currently, New York, Connecticut, California, Minnesota, Pennsylvania, Washington, Tennessee, Florida, Nebraska, Kentucky, Illinois, Rhode Island, Vermont, Texas are testing for ALD. Hopefully, Maryland and Michigan will start testing in 2019 but that leaves people in  36 states in the dark about this silent killer. We must fight for them – for their children. Screening of MPS1, Pompe, ALD and SMA  requires a single drop of blood taken from a baby’s heel at birth, and costs less than a cup of coffee per test. Please join us in urging Congress to do the right thing, and pass “Aidan’s Law: Eradication of Death by Zip Code” funding newborn screening for ALL diseases reviewed by the Federal Recommended Uniform Screening Panel in all 50 states.

Aidan Jack Seeger Foundation
234,400 supporters
Update posted 2 months ago

Petition to Donald J. Trump, Donald J. Trump, President Trump, Christopher Dental, Elliott F. Kaye, Paul A. Gosar, Louisiana State House, President of the United States, U.S. Senate, Cpsc , Donald Trump, U.S. House of Representatives, Environmental Protection Agency

Ban Toxic Chinese Drywall, Provide Medical Monitoring, Injunctive Equitable Relief, Public Awareness

After Hurricane Katrina, our Family moved from Louisiana to Florida. We bought a new house and were thrilled to be getting a fresh start. However, our happiness was short-lived. Soon, the entire family’s health, and our house’s appliances, air conditioning unit, and wiring all began failing. It was a bizarre nightmare. What we learned later was that our walls were literally made from poison. After talking to neighbors who were experiencing the same issues, we brought in a forensic toxic specialist. Our drywall had been shipped in from China and was made with toxins that should never have been allowed in a building product. But by then, it was too late. Our builder had gone out of business, our insurance had a pollution exclusion, and our mortgage company said we were responsible. I filed a complaint with the insurance commissioner and after investigating they dismissed my complaint stating in fine print there was a pollution exclusion, I knew they weren't referencing these gasses emitting from Chinese Drywall. I need your help to make sure no family has to endure what we are facing. Join me in demanding that all Chinese drywall be banned from  the United States until it has been guaranteed to be safe and toxin-free. After hurricanes Katrina and Rita, Chinese drywall flooded the US market. According to shipping information Knauf Tianjin sent at least 38.7 million pounds of Chinese Drywall, Knauf Wuhu sent 28.6 million pounds. Based on U.S. customs and census information these figures indicate 78% from these two China plants in 2006. Those numbers have continued to increase affecting more innocent homeowners. It was used in countless homes, and thousands of families are currently involved in lawsuits over it. They have experienced the same horrible health effects as us, such as eye and upper respiratory infections, chronic nose bleeds, vomiting blood,scalp sores, migraines and chronic fatigue, and have also seen it destroy everything they worked hard to build. The problem is so bad that Congress passed a bill to learn more about the dangers of Chinese drywall used in homes like mine. We ended up having to walk away from our home, losing over $100,000 in equity. After we did, it was bulldozed to the ground. When we moved into a new place, we learned that it, too, had Chinese drywall. This toxic product is everywhere. There is reports of eleven infants at Fort Bragg that have mysteriously died  and the homes contained Chinese Drywall. This design defect by China allowed high levels of sulfide gasses: carbon disulfide, carbonyl sulfide, dimethyl sulfide and other chemicals to emit through off-gassing into our homes. If it can corrode wiring turn our metals, silverware, jewelry black,  what is the long term health effects we face? We have photos of congress entering our homes wearing masks, however their saying theirs no danger when you leave. They refuse to study the health effects that families have suffered and continue to suffer daily. My family has never received justice. We still suffer from ill health, our credit has been destroyed, and we have to scrape every penny just to get by day-to-day. We are no longer home owners, we rent. Recently, I learned I have thyroid cancer, and I know in my heart that it is from the Chinese drywall. A home is supposed to protect you, not kill you. It is time to ban Chinese drywall until we have answers and guarantees that it is safe.

Crystal K
90,242 supporters
Update posted 3 months ago

Petition to Aetna , TEXAS DEPARTMENT OF INSURANCE, Unified Women's Healthcare of Texas

Continuity of Coverage for 30,000 Texas Women

Aetna has chosen to put profit over people by unilaterally deciding to drop Unified Women’s Healthcare of Texas from their network coverage effective August 15, 2019. In deciding to cut these 160 OB-GYN healthcare providers, Aetna is endangering 30,000 women across Texas of all socioeconomic status to access to care for not only pre- and postnatal care, but cancer screenings, treatment for infections, birth control decisions, surgical procedures, and more. The state of Texas according to the Texas Maternal Mortality and Morbidity Task Force has an alarming maternal mortality rate of 14.6 per 100,000 live births, for African American women living in Texas the maternal mortality rate is even more concerning. While their letter to those affected stated “If you’re receiving care with this healthcare provider, you may be able to continue your care and get services covered after the end date”, research shows that the length of postpartum care available to new mothers is not adequate to help decrease these mortality rates. In cutting Unified Women’s Healthcare of Texas, Aetna is contributing to this problem as these new mothers will now have the added stress of being forced to end a trusted relationship with their provider in addition to caring for their newly born child(ren). For many women, the only healthcare provider they see is their OB-GYN because of the trust they have built with their provider. This decision impacts 30,000 women across the state of Texas who rely on the 160 OB-GYN healthcare providers affiliated with Unified Women’s Healthcare of Texas to provide them with care. People are mothers, daughters, sisters, cousins, aunts, nieces, our friends, and our loved ones. People are not profit points. Our Ask: -We ask Aetna to continue contract negotiations with Unified Women's Healthcare of Texas. -We ask Aetna to reconsider Unified Women's Healthcare of Texas cost saving proposal. -We ask for continuity of coverage  and the ability to continue trusted relationships formed and built up over the years with our OB-GYN.  

M. J
699 supporters
Update posted 4 months ago

Petition to Donald J. Trump, Donald J. Trump, Jeff Flake, John McCain, Donald Trump, Tulsi Gabbard, Raúl M. Grijalva, Beto O'Rourke, Mike Coffman, Earl Blumenauer, Walter B. Jones, Lindsey Graham, Dave Joyce, Carlos Curbelo, Ryan Costello, John H. Rutherford, Ruben Gallego, Tom O'Halleran, Kyrsten Sinema, Andy Biggs, Paul A. Gosar

Fight For Those Who Fought For You

A Call to Reason As Veterans of the United States Armed Forces we call on the Veterans Health Administration (V.H.A.) to fully recognize cannabis as a viable treatment option, which is a far less toxic alternative to commonly prescribed pharmaceuticals. Leaders are increasingly aware of the devastation to former military members (and their families) caused by inappropriate prescription of opiates, SSRIs, Benzodiazepines, and other pharmaceuticals. In 2011 the V.H.A. established internal policy officially outlining their position on cannabis, allowing physicians in “legal” states to discuss its use with their patients, at their own discretion. Multiple attempts have been made to resolve the inability of veterans to incorporate cannabis into their official treatment plans. Each and every one of these attempts have been sabotaged. The V.H.A. needs to take action on this issue. Federal leadership in the Executive and Legislative branches of our government need to understand the enormity of this pharmaceutical impact and available remedy. The fact is, veterans are self-medicating with cannabis. Most turn to cannabis after pharmaceutical options, some of which include warnings of suicidal ideation, fail. This situation is untenable. Because the V.H.A. is a federal program, operating in all fifty states, veterans are federal patients and require equal medical treatment/access to cannabis, regardless of state laws. Accordingly, an expansion of existing V.H.A. policy which would meet our needs is in order. The status quo is medically unethical. We request and require: Unobstructed ability to engage in open and honest dialogue with our V.H.A. Primary Care Teams about our use of cannabis, where we can then develop proper treatment plans, documenting our experiences. The ability to participate in research programs conducted by V.H.A., which would further assist us in our understanding of medical cannabis, and how to best introduce it into our treatment regimen. The ability to receive recommendations for cannabis from our V.H.A. Doctors, should that be the agreed upon treatment plan. Prescriptions from the V.H.A. filled at local dispensaries, or where dispensaries are not located/permitted, getting those scripts filled at the V.H.A. Pharmacy. A cannabis farm at every major V.H.A. healthcare facility designed to teach veterans about their medication, how to grow it, and to supply the hospital Pharmacy. This discussion, this reform, is long overdue. Join us.      

1620 Legion
149,905 supporters