Topic

Access to Healthcare

32 petitions

Update posted 1 week ago

Petition to Kemp Hannon, Richard Gottfried, John Flanagan, Carl Heastie

Enact the "Dream law" Bill S1165/ A5514 for all Transplant Patients 2018

TITLE OF BILL : An act to amend the public health law, in relation to deeming central venous lines as medically necessary Dream Shepherd is an 12-year-old girl who has courageously battled Sickle Cell Disease and who suffered a stroke in 2010 at the age of five. In December 2014, as part of a study, Dream received a stem cell transplant as part of her treatment plan and fight against Sickle Cell Disease. After the transplant she remained in the hospital for several months, while Doctors worked to stabilize her immune system, which was crucial to her discharge and transplant success. Additionally while in the hospital Dream had a Central Venous Line placed into her heart. The Central Venous Line has strict care requirements. In New York State Health Facilities only Registered Nurses are legally allowed to administer I.V. medications with use of a Central Venous Line; which have to be properly managed to ensure that Dream, and other's with a Central Line, do not acquire infections, especially if immuno-compromised. This central line goes directly into the right atrium of the heart, and requires immediate action should there be a disconnection for any reason as a patient with this type of line can exsanguinate should this go unmonitored or unnoticed. In addition to the high risk of infections, other complications of Central Venous Lines include Air Embolism, Pneumothorax, Pinch-off, Syndrome, Drug Precipitates, Thrombosis, Catheter Occlusion, Catheter Malposition, and Sepsis a severe blood infection caused by bacteria, viruses, and fungi. Sepsis is extremely serious and can be life-threatening.  Due to the high potential for dangerous infections, as part of discharge planning, Dream's mother, who is not a medical professional, made a request for a skilled private duty nurse to care for Dream's central venous line. This request was denied by the insurance company as it was "not deemed medically necessary." Due to this rejection by the insurance company, the hospital informed Dream's mother, that she was required to provide the necessary care to Dream's central venous line. Not ensuring that Dream would have the correct and proper skilled nurse to provide the care after discharge which could have caused irreparable harm, including the worst outcome. Attempting to force the mother to provide the care would have required her to lose her job and source of income, along with saddling her with the anxiety of overseeing the medical attention that if not done properly, could lead to the loss of her daughter's life. That is a position no family member or friend should ever be in.

Diana Lemon
15,934 supporters
Update posted 2 weeks ago

Petition to James Inhofe, James Lankford, Ed Cannaday, Markwayne Mullin, Larry Boggs, Oklahoma State House, Oklahoma State Senate, Mary Fallin

Help families combat the addiction epidemic

There is an epidemic of addiction sweeping the United States and we need every tool available to save our kids. A powerful tool is Casey’s Law. The law, recently passed in Kentucky and Ohio, allows families to petition the court to get treatment for a loved one who has refused to get help on their own. Addicts often refuse help, spiraling out of control until it is too late. That is what happened to Charlotte Wethington’s son, Casey. He died of a heroin overdose. Charlotte felt had she been able to get Casey court ordered treatment, he’d still be here. She is fighting to get Casey’s Law passed at the federal level. In the meantime, people across the country are trying to get Casey’s Law passed state-by-state. Too many people are not getting the help they need, and when you are in the middle of fighting a disease like addiction, it’s hard to make the right decision. Families and friends need Casey’s Law so they can intervene and save the life of someone they love. Without the law, all we can do is watch helpless as we lose more people to this epidemic. I started this petition to help bring Casey’s Law to all 50 states. This petition is calling on the state of Oklahoma, my home state, to pass Casey’s Law. No matter where you live, your support matters. The more states that pass the law, the more likely other states will follow. In turn, we hope it will inspire Congress to pass a national Casey’s Law.  

Jessica Foster
32,873 supporters
Update posted 2 months ago

Petition to U.S. Senate, U.S. House of Representatives, President of the United States

Reject the FDA's Deeming of Vapor Products as Tobacco Products

Soon Congress will be presented with regulations proposing to deem electronic cigarettes and other vapor products as tobacco products, bringing them within the regulatory control of the FDA under the Family Smoking Prevention and Tobacco Control Act. We, the members of the vaping community, including users of vapor products, current and ex smokers, concerned citizens, and friends and family of those whose lives have been or could be changed by vapor products, urge you to reject the proposed deeming regulations. The classification of vapor products as tobacco products is tenuous at best. While some vapor products do contain nicotine, many do not, and this is where the link to tobacco ends. The goal of the FSPTCA is to minimize the effects of tobacco on public health. In 1976 Professor Michael Russell wrote: “People smoke for nicotine but they die from the tar.”1 Vapor products are free of tobacco, contain no tar, and are not combusted and as such are orders of magnitude less potentially harmful than combustible tobacco.2  In fact, more recent studies that look at nicotine, absent tobacco smoke, show that nicotine is possibly not addictive and could have potential health benefits related to treating Parkinson’s symptoms and staving off Alzheimer’s.3 The Federal government and each state have spent hundreds of millions over decades attempting to discourage people from smoking cigarettes. We now have a viable alternative to tobacco products that could do just that, through tobacco harm reduction. This life changing technology has the potential to accomplish what Tobacco Control has failed to do for the past fifty years, unless it is smothered in its infancy. Vapor products, as a recreational consumer good, have the potential to replace combustible tobacco, keeping millions from potential tobacco related illnesses. According to recent CDC surveys, in the time frame that vapor products have been available, smoking rates in the United States have plummeted to an all time low.4 However, if vapor products are subjected to the same strict regulatory control intended to minimize harm from tobacco products, they could be rendered ineffectual due to the stifling nature of those regulations.5 By rejecting the classification of vapor products as tobacco products we can: 1              Protect access to flavors, which are an integral part of the vapor experience.6 2              Protect access to online sales that allow consumers to procure the equipment and e-liquids that are best suited for their needs. 3              Protect access to all nicotine concentrations, which allow the consumer to tailor their experience to their needs which could range from higher concentrations to aid in transitioning from smoking to nicotine free for enjoyment and maintenance. 4              Protect access to open, reusable container systems that are more cost effective and environmentally friendly. 5             Allow for the continued innovation and refinement of products currently on the market. Vapor products are not tobacco products, they are a safer alternative to tobacco products which may or may not contain nicotine. Vapor products are also a driving force behind thousands of small and medium businesses across the country, creating jobs and feeding the economy, many of which will not survive the exorbitant fee structure of tobacco product approval that has kept the cigarette market in the hands of only the major tobacco companies. The vapor product industry has already gained ground in self regulation by the formation of industry trade groups, and through the active involvement of the consumers.7 Instead of relegating vapor products to tobacco control, a new category of product regulation can be implemented, one that could inspire innovation along with public health and safety. The best way to protect this life altering technology is to not place it under the auspices of the FSPTCA, by not deeming vapor products as tobacco products. #vaporisnottobacco Cited References 1                     http://www.bmj.com/content/1/6023/1430.full.pdf+html 2                     http://www.mdpi.com/1660-4601/12/4/3439 3                     http://discovermagazine.com/2014/march/13-nicotine-fix 4                     http://www.cdc.gov/media/releases/2014/p1126-adult-smoking.html 5                     http://blog.casaa.org/2014_04_01_archive.html 6                     http://vaping.com/data/big-survey-2014-initial-findings-eliquid 7                     CASAA.org   AEMSA.org   SFATA.org Additional Resources: http://notblowingsmoke.org http://www.ecigarette-research.org/research/index.php/research/research-2015/210-ald http://blogs.biomedcentral.com/on-health/2015/05/28/research-behind-giving-cigarettes-qa-leading-expert-peter-hajek/ http://mnvapers.com/2014/04/epa-fda-vapor-harmless-children/ http://www.ecigarette-research.org/research/index.php/research/research-2013/135-evaluation-of-the-cytotoxic http://www.casaa.org/Clinical_Research.html http://www.biomedcentral.com/1471-2458/14/18/abstract http://www.ecigalternative.com/ecigarette-studies-research.htm http://www.ecigarettedirect.co.uk/ashtray-blog/2015/05/real-experts-e-cigarettes.html http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4110871/?report=classic  

Les Leung
63,966 supporters