Topic

Access to Healthcare

30 petitions

Update posted 1 week ago

Petition to The Cancer Industry, Cancer Organizations, and Governments

PETITION FOR BRIGGS FOR CANCER IMMUNOTHERAPY FOR ALL - A New Era

Thanks for coming here in Briggs's memory.  I tried for a year to get access to the immunotherapy she needed.  Just four days after I heard we finally had a chance, I lost her to complications brought on in what was meant to be a short emergency hospital stay.  It should never have been that close.  And no-one should ever have to go through all Briggs did.  Cancer disguises itself.  Immunotherapy either alerts the immune system to it or does such things as block the disguise.  The immunotherapeutic vaccine (curative not preventive) I'd been pursuing for Briggs had brought complete remissions in stage IV colorectal cancer.  Immunotherapy's a potential cure in all other solid-tumor cancers such as breast, lung, renal, and pancreatic.  The Vice Chair of Neurosurgery at University of California, Los Angeles has successfully used it in the usually incurable brain cancer that took Senator Ted Kennedy and, in 2015, Joe Biden's son Beau.  She has patients still cancer-free at over 10 years. In early 2016 an immunotherapy put President Jimmy Carter's stage IV melanoma into complete remission despite it having already spread to his liver and brain.  Development of it was led by a professor on this petition. Immunotherapy's also worked in acute leukemia.  In 2012 all treatment had failed with a 6-year-old girl at the Children's Hospital of Philadelphia.  Her condition was terminal, but a test after 3 weeks showed no cancer.  60 Minutes later ran a story on it.  Memorial Sloan-Kettering has succeeded in adult leukemia. If you'd like to read more on immunotherapy, this article of mine about it and Briggs was featured by the Huffington Post and Stand Up to Cancer: 30 Stars and Doctors Sign the 'Petition for Briggs for Cancer Immunotherapy for All'. Former NYC mayor Mike Bloomberg and Amazon's Jeff Bezos and his family have donated tens of millions to cancer centres for the development of immunotherapies.  Bill and Melinda Gates have invested in a company focused on them.  It takes anywhere from $350 million at a biotech to $5 billion at a major drug company to bring one new treatment to the market.  Tens of billions are needed from, among others, Congress. Please join us in calling for governments, the cancer industry, and cancer organizations to reorient the primary direction of funding, research, and treatment to the safest, most potentially effective immunotherapies in every cancer, and, notably in this context, curative immunotherapeutic vaccines.  (The one I'd tried to get Briggs had a perfect safety profile.)  Not trials for trials' sake, which has too often been the case in the past with chemo, etc.  An overabundance of unwarranted trials only leads to lack of oversight and harm.  And in conjunction with that, to make information on immunotherapy routinely and widely available to patients and caregivers. (If you've read Briggs: Love, Cancer, and the Medical Profession, comments to build awareness would helpfully reach more people as a book review on the Amazon kindle/paperback page: www.Amazon.com/BRIGGS.  Only the latest show below.) Heartfelt thanks for signing in Briggs's memory, to begin changing this for others as she so wanted, and for anyone you know with cancer; I hope not a close loved one or you yourself. Paul_________________________________A sister petition to this addresses medical errors especially, the Petition for Briggs for a New Era in Medical Care and Treatment _________________________________Join Rod Laver, Martina Navratilova, Nick Kyrgios & 10 squash greats in the Volleying Challenge for Briggs's Petition_________________________________Twitter: @BRIGGSsBook  

Paul Sanderson
6,157 supporters
Update posted 2 months ago

Petition to United States Congress

Support "Cancer Relief Bill" proposed legislation

Updated "Cancer Relief Bill", proposed legislation. July 22, 2016 Introduction: There is a very common and tragic phenomenon for those diagnosed with cancer; families are losing their jobs, possessions, and even their homes because of this insidious disease. Even with insurance, copays are devastating. If you are eligible for Medicaid, your medical costs may be covered but the loss of income due to treatment cost you everything else. Middle income families are hard hit because they are not eligible for existing assistance. The financial burden of cancer turns their household budgets upside down; there is simply no room for hundreds or thousands of dollars per month in copays and other related medical costs. Every state and county is different with what assistance may be available, and most run on limited donations. Federal help such as Disability is also not consistent; some being approved in a timely fashion and some later stage patients waiting more than a year for approval; some stage IV patients denied up to four times for what should be automatic approval for disability. Large charity organizations (only a few actually offer monetary assistance) have stipulations that many patients do not fit into. Even larger organizations like The American Cancer Society do not offer monetary assistance; rather, they concentrate on awareness and research. What is left is a large gaping hole of devastation that a majority of cancer patients are falling into. Employers aren't allowed to fire an employee because of an illness, yet many continually find ways to let them go during treatment. Many even lay off the spouse of a cancer patient, to avoid the predicted group policy changes. Most patients do not have a savings account or a financial support system to rely on. If you receive state benefits, any money that is gifted to you from a fundraising page is counted against your benefits. If you don't know to report the monetary gifts as income, you are charged with welfare fraud. Existing programs need reform, new programs need to be in place, and relief needs to happen for the victims of a disease that kills 596,000 people a year in the United States. You should not find yourself homeless while fighting for your life, due to an illness you had no choice in. You should not have to choose between life saving medications and procedures, or the electric bill. The following set of proposals will not only save thousands of lives, but will save thousands of families from complete financial devastation. 15 Proposals to become the "Cancer Relief Bill": 1. A mandatory patient navigator or caseworker in every hospital and oncology facility who will be trained to help a patient apply for Disability, SSI, and will be familiar with all resources available through cancer treatment and beyond. Most household finances fall apart after treatment; most organizations only help during active treatment. Patients aren't informed of any resources available, and many are too sick to search and apply.  2. Instant and expedited Disability approval for stage 4 cancer patients. Instant approval for stage 3 with rechecks every 6 months to see if the patient is physically able to return to work. If they are permanently disabled, then they will not have to wait years for approval. Stages 1 and 2: Careful consideration of the long term disabling affects of surgeries, chemotherapy, and radiation. Consideration of recurring cancer cases and their survival statistics. No redetermination on Stage 4; right now, if a person is NED for any length of time, Disability has been known to be stopped. Stage 4 is terminal, incurable, resulting in death. Medicare is needed to stay alive as long as possible. 3. Lower the eligibility age of the Reverse Mortgage Program for cancer patients. This will allow them to stay in their home and free up funds towards medical and living expenses. 4. Mortgage Assistance: Modify existing HUD mortgage programs including Forbearance and Loan Forgiveness to include special expediting for cancer patients. Create a program for refinancing options that takes into consideration the credit rating of a patient who has lost income or is heavily underwater due to medical bills from a life threatening illness. Create a program where four months of mortgage payments can be either forgiven, or added to the end of the loan. 5. Job training or scholarships, similar to those already in the ACA, for patients who have lost their jobs due to cancer/treatment. 6. Minimum Disability amount for those too young to have earned their points, and those who have stayed home to raise their children. 7. Immediate Medicare and Medicaid benefits, including Food Stamps, to those diagnosed with cancer. A transition benefit coverage for when the patient is able to return to work for a certain length of time. 8. Expediting testing and genetic testing that will affect treatment options. For example: The BRCA1 test results currently come back after a woman has had her surgery. If she chose lumpectomy and afterward is determined to be BRCA1+, she will end up with two surgeries (additional mastectomy) which is severe physically and financially. 9. Hospitals and Oncology facilities must accept reasonable minimum payment, and cannot deny cancer treatment due to the patient being unable to pay or having insufficient insurance. Many lives are lost because life saving treatment and medications are denied. Hospitals and Oncology facilities must provide treatment and surgery to patients who are considered homeless. They do not right now, as they claim the patient must have an address to convalesce to. 10. Special consideration of low credit scores due to loss of income and illness from cancer. Credit scores are used now for employment, housing, and car insurance; A catastrophic event like a life threatening illness should not condemn you to unemployment status, homelessness, or inflated rates. You are already in urgent financial hardship and are trying to rebuild your life. A previous eviction, proven to be due to the financial toll of cancer, should not count against you when you are applying towards new housing. 11. Rent Assistance: Special rent subsidies or vouchers for 4 months or longer for a cancer diagnosis; expanding on the HUD rent assistance programs. Also, the government must fund the HUD programs properly. In certain states, the Section 8 Voucher program has a 7 year waiting list to apply. Most states have at least a 2 year wait. A cancer patient does not have that time, and cannot fight for their lives if they and their family become homeless due to loss of income. 12. A National online prescription availability. For example: Walgreens has a $20 prescription card that saves hundreds of dollars towards expensive medications. A federal program that duplicates that, or allowing an existing business to provide that service for those who are not located near to them. 13. Tightening up on employers who do not work with a cancer patient during treatment. This is the number one source of financial ruin for most families facing cancer: They or their spouse losing their income due to debilitating treatment. Possibly, a government grant to the employer that will hold the patient's job, or a tax credit. 14. Hospice in every county of every state, always covered by Medicaid. 15. Finally, in order to help fund the changes and additions to assistance for cancer patients: An option on the Federal tax return to donate towards "Cancer Relief". It will be subtracted from the tax refund or added to the amount needing to be paid in; similar to what State income tax returns offer. In closing: Cancer now affects one in every three Americans. It is the second leading cause of death in the United States; a close second behind Heart Disease. According to the American Cancer Society, there will be nearly 1,685,000 new cancer diagnosis' in 2016. Cancer financially devastates a large portion of the population who are diagnosed. It is certain to have an impact on our economy when hundreds of thousands are forced into being unemployed, or even left homeless due to an event that was not of their choice. Cancer patients and survivors are not looking for a handout; they are looking for a chance to heal and continue on with their lives. Late stage cancer patents are only wanting to fight for their lives without losing everything they have worked for. Please help us to make a change. There are several studies now that indicate the financial toxicity of cancer raises morbidity. Below, Fred Hutchinson Research Institute reveals terrifying statistics on the bankruptcy rates being 2.5 more for cancer patients, and that the death rate is up to 80% higher for a cancer patient who goes through bankruptcy. HICOR Study Links Financial Toll to Higher Death Rate in Cancer Patients Please help us to reveal the truth and provide support that can save lives. Tina Peterson Pirlot, Triple Negative breast cancer survivor Author of the "Cancer Relief Bill", proposed legislation. Michigan   Patricia Wetzel, cancer survivor Advisor and supporter of the "Cancer Relief Bill", proposed legislation. Founder of The Anti-cancer Club Nevada   Beth Caldwell Stage IV breast cancer Founder of MetUp, a metastatic breast cancer organization Seattle, Washington *********************************************************************** "Cancer Relief Bill", proposed legislation; First Draft, 2015 Introduction:   I am a cancer survivor of Triple Negative Breast Cancer. I discovered support in online Facebook groups which immensely helped me through my journey. Literally thousands of women, like me, coming together for the sole purpose of getting and giving support through the most feared experience possible: Cancer.   After more than a year of absorbing women's stories, I noticed there was a very common and tragic phenomenon; families were losing their jobs, possessions, and even their homes because of cancer. Even with insurance, copays were devastating. If you were eligible for Medicaid, your medical costs may be covered but the loss of income due to treatment cost you everything else. Middle income families are hard hit because they are not eligible for existing assistance; the financial burden of cancer turned their household budgets upside down. There was simply no room for hundreds or thousands of dollars per month in copays and other related medical costs.   Every state and county is different with what assistance may be available, and most run on donations. Federal help such as Disability is also not consistent; some being approved in a timely fashion and some later stage women waiting more than a year for approval.   Large charity organizations such as "The Pink Fund" and the "Catherine Fund" (only a few actually offer monetary assistance) have stipulations that some women do not fit into.  Even larger organizations like Komen and The American Cancer Society do not offer monetary assistance; rather, they concentrate on awareness and research. What is left is a large gaping hole of devastation that a majority of cancer patients are falling into.   Employers aren't allowed to fire an employee because of an illness, yet many continually find ways to let them go during treatment. Most patients do not have a savings account or a financial support system to rely on.   Existing programs need reform, new programs need to be in place, and relief needs to happen for the victims of a disease that kills 589,000 people a year in the United States. You should not find yourself homeless while fighting for your life, due to an illness you had no choice in. You should not have to choose between life saving medications and procedures or the electric bill.     15 Proposals to become the "Cancer Relief Bill":    1.  A mandatory nurse navigator or caseworker in every hospital and oncology office who will be trained to help a patient apply for Disability, SSI, and will be familiar with all resources available through cancer treatment and beyond. Most household finances fall apart after treatment; most organizations only help during active treatment.   2. Instant and expedited Disability approval for stage 4 cancer patients. Instant approval for stage 3 with rechecks every 6 months to see if the patient is physically able to return to work. If they are permanently disabled, then they will not have to wait years for approval. Stages 1 and 2: Careful consideration of the long term disabling affects  of surgeries, chemotherapy, and radiation. Consideration of recurring cancer cases and their survival statistics.   3. Lower the eligibility age of the Reverse Mortgage Program for cancer patients. This will allow them to stay in their home and free up funds towards medical and living expenses.   4. Modify existing HUD mortgage programs including Forbearance and Loan Forgiveness to include special expediting for cancer patients. Create a program for refinancing options that takes into consideration the credit rating of a patient who has lost income or is heavily underwater due to medical bills.   5. Job training or scholarships, similar to those already in the ACA, for patients who have lost their jobs due to cancer/treatment.   6. Minimum Disability amount for those too young to have earned their points, and those who have stayed home to raise their children.   7. Immediate Medicare and Medicaid for those eligible. Perhaps raising the income eligibility level for those with life threatening illnesses for Medicaid.   8. Expediting testing and genetic testing that will affect treatment options. For example: The BRCA1 test results currently come back after a woman has had her surgery. If she chose lumpectomy and afterward is determined to be BRCA1+, she will end up with two surgeries (additional mastectomy) which is severe physically and financially.   9. Hospitals and Oncology services must accept reasonable minimum payment. If a patient's bill goes to collections, it hurts both the hospital and the patient.   10. Special consideration of low credit scores due to loss of income and illness from cancer. Credit scores are used now for employment, housing, and car insurance; A catastrophic event like a life threatening illness should not condemn you to unemployment status, homelessness, or inflated rates. You are already in urgent financial hardship and are trying to rebuild your life.   11. Special rent or mortgage subsidies for a certain amount of time due to catastrophic illness; Expanding on the HUD rent assistance programs.   12. A National online prescription availability. For example: Walgreens has a $20 prescription card that saves hundreds of dollars towards expensive medications. A federal program that duplicates that, or allowing an existing business to provide that service for those who are not located near to them.   13. Tightening up on employers who do not work with a cancer patient during treatment. This is the number one source of financial ruin for most families facing cancer: Losing their income due to treatment. Possibly, a government grant to the employer that will hold the patient's job, or a tax credit.   14. Hospice in every county of every state.   15. Finally, in order to help fund the changes and additions to assistance for cancer patients: An option on the Federal tax return to donate towards "Cancer Relief". It will be subtracted from the tax refund or added to the amount needing to be paid in; similar to what State income tax returns offer.   In closing:     Cancer now affects one in every three Americans. It is the second leading cause of death in the United States; a close second behind Heart Disease. According to the American Cancer Society, there will be nearly 1,680,000 new cancer diagnosis' in 2015.     With over a year's worth of absorbing just one type of cancer's effect on families, I can say without hesitation; cancer, in any form, financially devastates a large portion of the population who are diagnosed. That must have an impact on our economy when hundreds of thousands are forced into being unemployed or even left homeless due to an event that was not of their choice.     Cancer patients and survivors are not looking for a handout; they are looking for a chance to heal and continue on with their lives. Late stage cancer patents are only wanting to fight for their lives without losing everything they have worked for.  Thank you very much for your time. Please help us to make a change.     Sincerely,   Tina Peterson Pirlot   Michigan

Tina Peterson Pirlot
3,143 supporters
Update posted 2 months ago

Petition to President Trump, Christopher Dental, Elliott F. Kaye, Paul Gosar, Louisiana State House, President of the United States, U.S. Senate, Cpsc , Donald Trump, U.S. House of Representatives, Environmental Protection Agency

Ban Toxic Chinese Drywall, Provide Medical Monitoring, Injunctive Equitable Relief, Public Awareness

After Hurricane Katrina, our Family moved from Louisiana to Florida. We bought a new house and were thrilled to be getting a fresh start. However, our happiness was short-lived. Soon, the entire family’s health, and our house’s appliances, air conditioning unit, and wiring all began failing. It was a bizarre nightmare. What we learned later was that our walls were literally made from poison. After talking to neighbors who were experiencing the same issues, we brought in a forensic toxic specialist. Our drywall had been shipped in from China and was made with toxins that should never have been allowed in a building product. But by then, it was too late. Our builder had gone out of business, our insurance had a pollution exclusion, and our mortgage company said we were responsible. I filed a complaint with the insurance commissioner and after investigating they dismissed my complaint stating in fine print there was a pollution exclusion, I knew they weren't referencing these gasses emitting from Chinese Drywall. I need your help to make sure no family has to endure what we are facing. Join me in demanding that all Chinese drywall be banned from  the United States until it has been guaranteed to be safe and toxin-free. After hurricanes Katrina and Rita, Chinese drywall flooded the US market. According to shipping information Knauf Tianjin sent at least 38.7 million pounds of Chinese Drywall, Knauf Wuhu sent 28.6 million pounds. Based on U.S. customs and census information these figures indicate 78% from these two China plants in 2006. Those numbers have continued to increase affecting more innocent homeowners. It was used in countless homes, and thousands of families are currently involved in lawsuits over it. They have experienced the same horrible health effects as us, such as eye and upper respiratory infections, chronic nose bleeds, vomiting blood,scalp sores, migraines and chronic fatigue, and have also seen it destroy everything they worked hard to build. The problem is so bad that Congress passed a bill to learn more about the dangers of Chinese drywall used in homes like mine. We ended up having to walk away from our home, losing over $100,000 in equity. After we did, it was bulldozed to the ground. When we moved into a new place, we learned that it, too, had Chinese drywall. This toxic product is everywhere. There is reports of eleven infants at Fort Bragg that have mysteriously died  and the homes contained Chinese Drywall. This design defect by China allowed high levels of sulfide gasses: carbon disulfide, carbonyl sulfide, dimethyl sulfide and other chemicals to emit through off-gassing into our homes. If it can corrode wiring turn our metals, silverware, jewelry black,  what is the long term health effects we face? We have photos of congress entering our homes wearing masks, however their saying theirs no danger when you leave. They refuse to study the health effects that families have suffered and continue to suffer daily. My family has never received justice. We still suffer from ill health, our credit has been destroyed, and we have to scrape every penny just to get by day-to-day. We are no longer home owners, we rent. Recently, I learned I have thyroid cancer, and I know in my heart that it is from the Chinese drywall. A home is supposed to protect you, not kill you. It is time to ban Chinese drywall until we have answers and guarantees that it is safe.

Crystal K
90,113 supporters