Topic

Access to Healthcare

32 petitions

Update posted 2 weeks ago

Petition to Hillary Clinton, Donald Trump

Commit to act for paid family leave for all in your first 100 days

Under ordinary circumstances, two mothers as different as we are would never have met. One of us is from Oklahoma and is a registered Republican. The other is an unmarried liberal who lives in Brooklyn. But tragedy has a way of bringing people together. Last year, we both lost our babies, infant sons who died at daycare, after we’d left them in childcare to return to work. Neither of us wanted to leave our babies when we did, at mere weeks old, not yet. But neither of us had the luxury of choice. Our respective employers would not grant us any more time for parental leave, and we couldn’t afford to quit our jobs. So, reluctantly, on an April morning in Oklahoma, baby Shepard was left at daycare. A childcare worker swaddled him for a nap, placed him in a car seat, and didn’t check on him. He slipped down and suffocated, still too little to lift up his own head. Just as reluctantly, in July, baby Karl was dropped off for his first day at daycare near his mother’s Manhattan office. When she came back to feed him at noon, Karl’s lips were blue and a childcare worker was performing CPR. A medical examiner could not determine why this healthy baby died. 1 in 4 American moms have no choice but to return to work just two weeks after the birth of a child.  87 percent of parents have no access to paid leave through their employers. No parent should have to choose between leaving their baby too soon and making ends meet. Given that 73% of Republicans, 87% of independents and 96% of Democrats agree it is important for Congress and the president to consider a family leave insurance system, we are jointly calling on the candidates for president, Republican and Democrat, to publicly commit that, if elected, they will take action for national paid family leave policy in their first 100 days in office. Most babies don’t die in day care, of course. But, as it turns out, our instinct that Karl and Shepard would be safer if we could have stayed with them a little longer was not wrong. An important study released last week found that for each additional month that a woman has paid parental leave, infant mortality goes down 13 percent. America has the highest infant mortality rate of any industrialized nation in the world. Paid leave, in countries that have implemented it, has dramatically lowered infant death rates. But beyond this, parental leave is good for our children. When Norway began offering paid parental leave, there were dramatic long-range effects: children had lower high school dropout rates, higher rates of college attendance, and higher incomes at age 30. American babies whose mothers don’t have maternity leave are less likely to be taken to the doctor, and less likely to be breastfed. Toddlers of parents without access to paid leave have more behavioral problems, and score lower on cognitive tests. Every American baby would be safer, healthier, and have a better start in life if given time with their mother or father during the first months of life. If our political leaders claim to be pro-family, they need to put families first by supporting paid family leave. In the richest country in the world, we should not have sobbing mothers leaving their premature babies in the NICU because they have to return to their jobs. We do not need to tear babies from their mothers’ arms before they can even hold up their own necks. Parental leave is a necessity, not a perk. Join us, a mom from Oklahoma and a mom from Brooklyn, in calling upon the presidential candidates of both parties to publicly commit that, if elected, they will take action for paid family leave policy in their first 100 days in office. Through our great loss, we are now united to fight for change. We charge our leaders, both Republican and Democrat, to enact laws that protect the right of every American baby to have the loving care of a parent during the fragile first months of their life.

Amber, Ali, and PL+US Action Fund
166,210 supporters
Update posted 3 weeks ago

Petition to Kemp Hannon, Richard Gottfried, John Flanagan, Carl Heastie

Enact the "Dream law" Bill S1165/ A5514 for all Transplant Patients 2018

TITLE OF BILL : An act to amend the public health law, in relation to deeming central venous lines as medically necessary Dream Shepherd is an 12-year-old girl who has courageously battled Sickle Cell Disease and who suffered a stroke in 2010 at the age of five. In December 2014, as part of a study, Dream received a stem cell transplant as part of her treatment plan and fight against Sickle Cell Disease. After the transplant she remained in the hospital for several months, while Doctors worked to stabilize her immune system, which was crucial to her discharge and transplant success. Additionally while in the hospital Dream had a Central Venous Line placed into her heart. The Central Venous Line has strict care requirements. In New York State Health Facilities only Registered Nurses are legally allowed to administer I.V. medications with use of a Central Venous Line; which have to be properly managed to ensure that Dream, and other's with a Central Line, do not acquire infections, especially if immuno-compromised. This central line goes directly into the right atrium of the heart, and requires immediate action should there be a disconnection for any reason as a patient with this type of line can exsanguinate should this go unmonitored or unnoticed. In addition to the high risk of infections, other complications of Central Venous Lines include Air Embolism, Pneumothorax, Pinch-off, Syndrome, Drug Precipitates, Thrombosis, Catheter Occlusion, Catheter Malposition, and Sepsis a severe blood infection caused by bacteria, viruses, and fungi. Sepsis is extremely serious and can be life-threatening.  Due to the high potential for dangerous infections, as part of discharge planning, Dream's mother, who is not a medical professional, made a request for a skilled private duty nurse to care for Dream's central venous line. This request was denied by the insurance company as it was "not deemed medically necessary." Due to this rejection by the insurance company, the hospital informed Dream's mother, that she was required to provide the necessary care to Dream's central venous line. Not ensuring that Dream would have the correct and proper skilled nurse to provide the care after discharge which could have caused irreparable harm, including the worst outcome. Attempting to force the mother to provide the care would have required her to lose her job and source of income, along with saddling her with the anxiety of overseeing the medical attention that if not done properly, could lead to the loss of her daughter's life. That is a position no family member or friend should ever be in.

Diana Lemon
15,918 supporters
Update posted 3 months ago

Petition to The Cancer Industry, Cancer Organizations, and Governments

PETITION FOR BRIGGS FOR CANCER IMMUNOTHERAPY FOR ALL - A New Era

Thanks for coming here in Briggs's memory.  I tried for a year to get access to the immunotherapy she needed.  Just four days after I heard we finally had a chance, I lost her to complications brought on in what was meant to be a short emergency hospital stay.  It should never have been that close.  And no-one should ever have to go through all Briggs did.  Cancer disguises itself.  Immunotherapy either alerts the immune system to it or does such things as block the disguise.  The immunotherapeutic vaccine (curative not preventive) I'd been pursuing for Briggs had brought complete remissions in stage IV colorectal cancer.  Immunotherapy's a potential cure in all other solid-tumor cancers such as breast, lung, renal, and pancreatic.  The Vice Chair of Neurosurgery at University of California, Los Angeles has successfully used it in the usually incurable brain cancer that took Senator Ted Kennedy and, in 2015, Joe Biden's son Beau.  She has patients still cancer-free at over 10 years. In early 2016 an immunotherapy put President Jimmy Carter's stage IV melanoma into complete remission despite it having already spread to his liver and brain.  Development of it was led by a professor on this petition. Immunotherapy's also worked in acute leukemia.  In 2012 all treatment had failed with a 6-year-old girl at the Children's Hospital of Philadelphia.  Her condition was terminal, but a test after 3 weeks showed no cancer.  60 Minutes later ran a story on it.  Memorial Sloan-Kettering has succeeded in adult leukemia. If you'd like to read more on immunotherapy, this article of mine about it and Briggs was featured by the Huffington Post and Stand Up to Cancer: 30 Stars and Doctors Sign the 'Petition for Briggs for Cancer Immunotherapy for All'. Former NYC mayor Mike Bloomberg and Amazon's Jeff Bezos and his family have donated tens of millions to cancer centres for the development of immunotherapies.  Bill and Melinda Gates have invested in a company focused on them.  It takes anywhere from $350 million at a biotech to $5 billion at a major drug company to bring one new treatment to the market.  Tens of billions are needed from, among others, Congress. Please join us in calling for governments, the cancer industry, and cancer organizations to reorient the primary direction of funding, research, and treatment to the safest, most potentially effective immunotherapies in every cancer, and, notably in this context, curative immunotherapeutic vaccines.  (The one I'd tried to get Briggs had a perfect safety profile.)  Not trials for trials' sake, which has too often been the case in the past with chemo, etc.  An overabundance of unwarranted trials only leads to lack of oversight and harm.  And in conjunction with that, to make information on immunotherapy routinely and widely available to patients and caregivers. (If you've read Briggs: Love, Cancer, and the Medical Profession, comments to build awareness would helpfully reach more people as a book review on the Amazon kindle/paperback page: www.Amazon.com/BRIGGS.  Only the latest show below.) Heartfelt thanks for signing in Briggs's memory, to begin changing this for others as she so wanted, and for anyone you know with cancer; I hope not a close loved one or you yourself. Paul_________________________________A sister petition to this one addresses Medical Errors, the third leading cause of death in the U.S.  Briggs is one of millions who have died from their treatment, not their cancer: Petition for Briggs for a New Era in Medical Care and Treatment _________________________________Join Rod Laver, Martina Navratilova, Nick Kyrgios & 10 squash greats in the Volleying Challenge for Briggs's Petition_________________________________I've also begun a petition to put Briggs's beautiful, smiling face on the cover of TIME Magazine to begin this new era.  40,000 people have signed so far: Put Briggs on the Cover of TIME. _________________________________Twitter: @BRIGGSsBook  

Paul Sanderson
6,167 supporters