Be able thru medicare/medicaid to get the TP/AIT
  • Petitioned help chronic pancreatitis paitients

This petition was delivered to:

help chronic pancreatitis paitients
President of the United States
U.S. Senate
U.S. House of Representatives

Be able thru medicare/medicaid to get the TP/AIT

    1. J N
    2. Petition by

      J N

      Appleton, WI

There are many that suffer greatly because of this serious medical condition known as Chronic Pancreatitis. Chronic pancreatitis is long-term progressive inflammatory disease of the pancreas that leads to permanent destruction of the structure and function of the pancreas. This disease is an excruciating, debilitating disease and can be a major contributor in developing deadly Pancreatic Cancer. In the circle of the Chronic Pancreatitis sufferers, they struggle to lead “normal” lives, despite the daily symptoms (severe pain, nausea, vomiting) and frequent trips to the Emergency Room with extended hospital stays. Unfortunately, many employers and doctors are unsympathetic to this disease. Many lose their jobs leaving them broke and applying for Social Security Disability Insurance. Despite working all of their lives, they are still finding it difficult to obtain the benefits that they have paid into for many, many years. Often times, they submit to many tests, procedures and surgeries, but because of the complexity of the pancreas, the treatments fail.

There is, however, hope – the Total Pancreatectomy with Autologous Islet Transplant (TP-AIT). In short, the surgery involves removing the pancreas completely, harvesting the insulin-producing Islet cells, and injected them into the portal vein of the liver. The islets cells will function as a free graft in the liver - they will exist in the liver where they produce insulin. This surgery is one costing hundreds of thousands of dollars Medicare/Medicaid will not cover it calling it “experimental” when in theory, it has been done, successfully, sine 1976.

These pancreatic sufferers desperately need your help.

Recent signatures

    News

    1. Reached 500 signatures
    2. i think will hit 400 today

      J N
      by J N
      Petition Organizer

      spread the word

    3. we are at 262 please keep this going

      J N
      by J N
      Petition Organizer

      if we can post it on our walls and get friends to as well it will help all

    4. Reached 250 signatures
    5. please visit our site

      J N
      by J N
      Petition Organizer

      alot of info and stories

    6. Reached 100 signatures
    7. we are making progress please share this on your page and ask all to sign

      J N
      by J N
      Petition Organizer

      just getting the word out more please make all your facebook friends aware

    8. Reached 50 signatures

    Supporters

    Reasons for signing

    • Alexis Parente PITCAIRN, PA
      • 9 months ago

      As a RN and friend to a TP/AIT recipient, I support this cause.

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    • Angela Flood TAURANGA, NEW ZEALAND
      • 9 months ago

      Because I have pancreatitis as well and I know what it feels like it is a worldwide problem but at least in USA they can offer this to their patients so it needs to be

      REPORT THIS COMMENT:
    • Richard Bussell ROSEVILLE, CA
      • 9 months ago

      Wife suffers from Acute Chronic Pancreatitis.

      REPORT THIS COMMENT:
    • Charles Obrien WILKINSBURG, PA
      • 9 months ago

      I suffered from pancreatitis for 6 years and the last 16 months I had chronic pancreatitis. I had a TP/AICTP in September 2013. It's only been 5 weeks post op but I'm so happy with the results. I know it's extremely early in the whole recovery process but I feel like I needed to tell someone.

      REPORT THIS COMMENT:
      • 9 months ago

      Supporting my cp fellows...

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