Help Spread Awareness of Dysautonomia
  • Petitioned The Ellen Degeneres Show

This petition was delivered to:

PO Box 7788 Burbank, CA 91522
The Ellen Degeneres Show

Help Spread Awareness of Dysautonomia

    1. Nicole Sharp
    2. Petition by

      Nicole Sharp

      Grand rapids, MI

I am Nicole Sharp and I have a form of dysautonomia call postural orthostatic tachycardia syndrome (POTS) and I suffer from many unseen yet debilitating symptoms, such as low blood volume, chest pain, palpitations, dizziness, severe fatigue, and it also causes me to faint. I was first misdiagnosed with anxiety but was persistent that there was something wrong and it took dozens of doctor and ER visits and four hospitalizations within four months before I was diagnosed. I thought my life would finally be better when I was diagnosed instead it got worse. I have yet to find a doctor properly educated in dysautonomia, many doctors still treat me as if I am a hypochondriac or as if it is anxiety. The treatments have not worked and I am searching for doctors to try other treatments. Many people treat me as if I am a hypochondriac or even faking for attention. I have met countless other people who have similar stories as I do because people and doctors are not aware of dysautonomia and how we suffer silently. I spend many days in bed, and my others in emergency rooms and doctors offices, I am waiting to go to Mayo Clinic but that may take as much as a year. I am 19 and rarely leave my house because I do not have the energy to walk and afraid to use my wheelchair because people do not understand my invisible illness and treat me badly for it. Please help spread awareness so me and all of the other people suffering can gain some understanding.

Recent signatures

    News

    1. Reached 1,000 signatures
    2. Making progress

      Nicole Sharp
      Petition Organizer

      I sent in my first email to the Ellen show today, but don't stop signing and sharing!! I will be emailing, mailing or calling the show a couple times a weeks until I get an answer from them!! So the more signatures I get the better. Also might contact my local news station to do a story on the petition if it takes a while to get an answer. Thanks again for support everyone!

    3. Reached 500 signatures

    Supporters

    Reasons for signing

    • Sydney Potter LOUISVILLE, KY
      • 6 months ago

      Signing this petition is very important for all the people that suffer from this debiliating disease. I was diagnosed two years ago and my sister was diagnosed this summer. Thank you for starting this petition, Nicole, and I am wishing anyone with this disease health and happiness.

      REPORT THIS COMMENT:
    • amy tolley NEWLAND, NC
      • 7 months ago

      I also suffer from pots and understand the silent illness.

      REPORT THIS COMMENT:
    • Elizabeth Fentem PLANO, TX
      • 8 months ago

      I suffer from this debilitating condition as well and wish more people knew what it was. It heartbreaking to constantly have to explain what POTS is to everyone I meet.

      REPORT THIS COMMENT:
    • jessica sanders BELVIDERE, IL
      • 9 months ago

      i was diagnosed with pots a year ago and my life has been forever changed from it. its the hardest thing i have ever had to deal with. somehow you have to find a way to push through everyday.

      REPORT THIS COMMENT:
    • Gail Dunham CASPER, WY
      • 9 months ago

      My daughter-in-law is trying to raise 4 active boys dealing with dysautonomia and it's side effects. It's a miserable disease that NEEDS to be exposed to the public!

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