Tell the CDC "No" on Abuse-Enabling "Wandering" Code!
  • Petitioned Donna Pickett

This petition was delivered to:

CDC
Donna Pickett
CDC
David Berglund
CDC
Lizabeth Fisher
CDC
Traci Ramirez

Tell the CDC "No" on Abuse-Enabling "Wandering" Code!

    1. Petition by

      The Autistic Self Advocacy Network

Will you help us stand up for disability rights? Last week, the ICD-9-CM Coordination and Maintenance Committee met to discuss the future of medical coding in the United States. The ICD-9-CM stands for the International Classification of Diseases, Ninth Revision, Clinical Modification, and is the US government's official system of assigning codes to medical diagnoses and procedures. The day before the meeting, the Centers for  Disease Control and Prevention (CDC) posted for the first time information on the codes under consideration - including a new medical diagnosis for "wandering" related behavior in children and adults on the autism spectrum and with other developmental disabilities. If approved, this new coding promises to label hundreds of thousands of children with "wandering" diagnoses that would make it easier for school districts and residential facilities to justify restraint and seclusion in the name of treatment. Furthermore, this diagnosis carries no clear definition and the CDC's proposal uses poor quality research to claim that it should apply to the majority of autistic children and those with other developmental and intellectual disabilities.

 

The CDC's last minute proposal was made public only the day before the public hearing on these coding was scheduled to occur - well after the registration for people to give public comment had closed! Our only chance to have our voices be heard is to flood the written comment session before that deadline passes on April 1st.

Recent signatures

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    1. Reached 750 signatures

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    Reasons for signing

    • Morgan Welch SAN FRANCISCO, CA
      • about 3 years ago

      What is this, drapetomania all over again?

      REPORT THIS COMMENT:
    • Laura Butler SPRINGFIELD, UNITED STATES
      • about 3 years ago

      Wandering is a behavior, a symptom. It is not a disorder in and of itself.

      REPORT THIS COMMENT:
    • Madison Naranjo HALE CENTER, TX
      • about 3 years ago

      My brother has Autism.

      REPORT THIS COMMENT:
    • Diana Davis GRAND PRAIRIE, TX
      • about 3 years ago

      As a parent of a child with Asperger syndrome, I implore the CDC to stand up for disability rights!!

      REPORT THIS COMMENT:
    • Kimberly McMullan MALCHOW, GERMANY
      • about 3 years ago

      I am the mother of an autistic child who wanders every chance he gets; however, this is not a medical issue, and should not be treated as one.

      REPORT THIS COMMENT:

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