Reinstate amino-acid based formula prescriptions for children
  • Petitioned The Hon Tanya Plibersek

This petition was delivered to:

Minister for Health and Ageing
The Hon Tanya Plibersek

Reinstate amino-acid based formula prescriptions for children

    1. Reflux Infants Support Association Inc
    2. Petition by

      Reflux Infants Support Association Inc

      Sydney, Australia

The prevalence of cows milk protein intolerance (2% of the infant population under 1 yr) and soy intolerance (approx 1%) is significant in the Australian paediatric population. The numbers above equates to about 6,000 babies each year in Australia. Admittedly all of these are not severe enough to require the prescription of amino-acid based forumulas;

Paediatricians and GPs are perfectly capable of diagnosing and managing milk protein intolerance in babies. It is a simple series of questions. And they have done so perfectly well up until now.

There are simply not enough specialists to see or "consult" with the number of families requiring the forumla. For instance, there are approximately 35 paediatric gastroenterologists in the country, most of whom have lengthy waiting lists (through both the public and private systems), or closed books. In WA the waiting list to see a paed gastro is approx 2 years. Most children have grown out of the condition that sees them require these formulas by 12 mths old.

As the prevalence of allergy grows in the community and the awareness of gastro-intestinal issues in the paediatric population grows among GPs and paeds, its hard not to see this as a cost saving measure.

Please require the PBAC to review their decision in consultation with the RACGP - ask paediatricans and GPs what they think about it. They're not happy.

Please also ask the specialists that you are now requiring to review all these children whether they think this decision is a good one. I think you'll find they're far from impressed.

Quite aside from the thousands of mothers across the country left to deal with screaming babies now in constant pain because they can't access the appropriate FOOD FOR THEIR BABIES!!!

Its time to stand up for our babies.

Reflux Infants Support Association Inc
ABN 64158190042

If you support this please consider adding your own voice by writing to:

The Hon Tanya Plibersek
Minister for Health and Ageing
PO Box 6022
Parliament House
CANBERRA ACT 2600
Minister.Plibersek@health.gov.au

The Hon Peter Dutton MP
Shadow Minister for Health
PO Box 6022
Parliament House
CANBERRA ACT 2600
Peter.Dutton.MP@aph.gov.au

The Secretary
Pharmaceutical Benefits Advisory Committee
GPO Box 9848
Canberra ACT 2601

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    3. Reached 250 signatures

    Supporters

    Reasons for signing

    • Kim Morte NORTH MELBOURNE, AUSTRALIA
      • almost 2 years ago

      My baby suffers from silent reflux. It is a stressful conditions that impacts heavily on your babies development and on the day to day lives of the families taking of a very unhappy baby.

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    • Michelle Barker ATWELL, AUSTRALIA
      • almost 2 years ago

      Because my friends son needs this milk to survive, nothing else has worked.

      REPORT THIS COMMENT:
    • Bethanie Furey JANE BROOK, AUSTRALIA
      • almost 2 years ago

      my daughter has a dairy intolerance, she can't tolerate any formula and i strugled to breatfeed. fortunately she is ok on oat milk but she is seriously underweight - but we are unable to get this formula, yet we've tried it and she was thriving on it - but as she doesn't have an ALLERGY we can't get it anymore.

      REPORT THIS COMMENT:
    • Jason Davies BAKEWELL, AUSTRALIA
      • almost 2 years ago

      My son suffers from cows milk and soy intolerance, something we had to diagnose ourselves.

      REPORT THIS COMMENT:
    • Amanda Johnson PALMERSTON, AUSTRALIA
      • almost 2 years ago

      My son is cows milk and soy protein I tolerant. I support other families and their children.

      REPORT THIS COMMENT:

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