RESEARCH FOR SPINAL MYOCLONUS AND STARTLE MYOCLONUS
  • Petitioning MEDICAL PROFESSION

This petition will be delivered to:

MEDICAL PROFESSION

RESEARCH FOR SPINAL MYOCLONUS AND STARTLE MYOCLONUS

    1. suzanne Peel
    2. Petition by

      suzanne Peel

      Leeds, United Kingdom

MY NAME IS SUZANNE AND I SUFFER FROM SPINAL MYOCLONUS WHICH IS A RARE MOVEMENT DISORDER AT PRESENT THERE IS NO CURE AND VERY LITTLE UNDERSTANDING OF THIS CONDITION. I HAVE INVOLUNTARY MOVEMENTS WHICH I CANNOT CONTROL AND THEY INTERFERE WITH MY EVERY DAY LIFE CAUSING PAIN, LACK OF SLEEP, MUSCLE WEAKNESS. MYOCLONUS IS INVOLUNTARY JERKING OF MUSCLES AND MINE INVOLVES MY BACK AND LEGS. I ALSO SUFFER STARTLE MYOCLONUS WHICH IS BROUGHT ON BY TOUCH, NOISE AND LIGHT. MORE RESEARCH IS NEEDED TO FIND A CURE. PLEASE HELP ME WITH MY PETITION.
SUZANNE PEEL.

To:
MEDICAL PROFESSION
RESEARCH FOR SPINAL MYOCLONUS AND STARTLE MYOCLONUS

Sincerely,
[Your name]

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    1. Reached 100 signatures

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    Reasons for signing

    • Brian Siberry GARFORTH, UNITED KINGDOM
      • about 1 month ago

      She is my daughter

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    • joseph norman LONDON, UNITED KINGDOM
      • 4 months ago

      Because i beleive that if we can cure one illness we can cure them all!

      REPORT THIS COMMENT:
    • Stuart Morrow LOVELAND, CO
      • 4 months ago

      Started April 19,1995. Rheumatic fever and surgical procedure to my heart which was miopericarditis. Started and felt as though butterflies in my chest. Now fires from upper thighs to upper neck and at any given time or place and any type of onset or severity. 7 years with thousands of movements a day strong enough at times to knock the wind out of me. Dr's were convinced anti depressants with siezure meds. were the cure. Tried about every anti seizure and anti depressant med for about 13 out of the 19 years I've had myoclonic siezures. An accident changed the course of my treatment from anti seizure to pain medications. My symptoms improved dramatically. Now just pain killers and clonazepam but still have issues if no sleep or any pain symptoms from overdoing it. have some serious battles going on from stenosis now and not capable of much stability in any matter lately. Would be helpful to gather and share some facts and data to these matters. This is not entirely a brain malfunftion but is possibly tied to the brain stem based on direction of muscle reaction. Up to brain instead of down from brain. These are some facts if others can find any useful items I would be happy to share or even ask others who are still pursuing answers, Not a simple life by any means!

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    • Josephine Pembroke LONDON, UNITED KINGDOM
      • 4 months ago

      Very important research needed

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    • zoe lewis SALE, UNITED KINGDOM
      • 4 months ago

      because a family member suffers this and it is a very disabling condition that needs researching

      REPORT THIS COMMENT:

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