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Medicaid: Approve my Xyrem so I can function and get my son out of foster care
  • Petitioned Charles Palmer

This petition was delivered to:

Director of DHS
Charles Palmer
Iowa Governor
President of the United States
Iowa State Senate
Iowa State House
U.S. House of Representatives
U.S. Senate
Iowa
Gov. Terry Branstad
Iowa
Sen. Chuck Grassley
Iowa
Sen. Tom Harkin
Iowa-03
Rep. Tom Latham

Medicaid: Approve my Xyrem so I can function and get my son out of foster care

    1. Kimmery Mackie
    2. Petition by

      Kimmery Mackie

      Des Moines, IA

I have narcolepsy with cataplexy. There is ONLY ONE medication that gives us the restorative sleep we don’t get due to this disorder, it’s called Xyrem. I have been fighting with Medicaid since December 1st, 2012. They are denying it for 2 reasons. The first one is because 30 years ago I had a problem with self-medicating and taking amphetamines. This was 30 years ago and I have been clean since. The other reason is because I take pain medication for other medical issues. They say I can’t take the Xyrem along with the pain medications. Before I had to resign from my job and was on my employers insurance I took Xyrem for 6 months along with these pain meds. I had NO adverse effects. I did just fine on them. Today I had to put my 16 year old special needs son in foster care because Medicaid will NOT approve this Xyrem for me. My doctor has sent everything to them supporting the fact that I don’t have a drug problem and that I have already taken Xyrem along with the pain meds. They continue to deny. Today my doctor called Medicaid and was told there was nothing more they would do, it was the end of the road, they would NOT approve. Without this medication I cannot take care of my son. I WANT MY SON HOME WITH ME. I NEED MY SON HOME WITH ME. PLEASE SIGN MY PETITION AND HELP ME GET MY MEDS SO I CAN GET MY BABY HOME. I AM DYING INSIDE WITHOUT HIM HOME!! 

 

I have reached my goal of 500 for the Medicaid appeal.  I now am trying to get 1000 signers so I can send them to the President and any other politician that I can find email addresses too.

Recent signatures

    News

    1. At another standstill

      Kimmery Mackie
      Petition Organizer

      Please continue to share this on your FB page, tweet it, email your friends and family. I only got 10 signatures this week. I know all of you have done this already, but there's always someone that might not have been on FB in awhile, or someone that missed it the first time you posted. This is so very important to me and all the others that have been denied medically necessary medications. I have my Xyrem, I got it from the patient assistant program. BUT they told me I still need to fight Medicaid to get them to pay. So this petition is now about two things. First getting medicaid to approve my Xyrem, and more importantly getting regulations changed so that insurance companies don't have so much say in what our doctors, the ones who know us best, prescribe for us. That is what this is all about. Giving our doctors back the say in what is best for us. Not some pencil pusher sitting behind a desk of red tape. Hugs <3

    2. Different petition

      Kimmery Mackie
      Petition Organizer

      Hi Everyone,
      It's me again. :-) I have TWO petitions going, but they are for the same thing. I sent the first 509 signatures to Medicaid. NOW I am needing another 453 signatures to reach my goal of 1000 to send to the President and all other politicians that I can find emails addresses for. The second part of this petition is to try and get regulations/rules/procedures changed in the way Medicaid and insurance companies deny medically necessary medications. PLEASE share this still, ask/beg your friends and family to sign and share too. Anyone that Tweets please retweet for me. Email all your contacts with it. I am begging you. If you have gotten the other petition from causes.com please do the same. I KNOW THAT WITH ALL YOUR HELP AND SUPPORT I CAN REACH MY GOAL!! THANK YOU AND GOD BLESS YOU ALL!!

      Causes.com: Build Awareness, Fundraise, and Advocate for Change | causes.com

      Causes is built to create change. If you've ever thought about organizing a boycott, creating a petition, or raising money for a good cause, you've come to the right place.

    3. At a stand stilll!

      Kimmery Mackie
      Petition Organizer

      Hi Everyone,

      I have sent the 509 signatures to Medicaid along with all the comments.

      Now I am begging for you to keep sharing, tweeting, pinning, and emailing. If you would ask your friends to share, and they ask their friends to share I can reach my new goal of 1000. I want to have this amount to send to President Obama, the Senate, Congress, and any other politician I can think of. I want to get things changed in the way that Medicaid and private insurances are allowed to override a doctors orders/decisions on what a patient needs. IT IS NOT RIGHT THAT PENCIL PUSHERS HIDING BEHIND RED TAPE CAN SAY THAT THEY KNOW MORE THAN OUR DOCTOR'S DO. When a doctor writes a prescription for a medication, especially a medically necessary one the insurance companies should NOT have the right to say that it's not needed, or that a different medication or dosage would be better.

      PLEASE HELP ME GET THE REST OF THE SIGNATURES, I AM AT 547 NOW.IF WE COULD GET 500 WE CAN GET ANOTHER 500! GOD BLESS!

    4. Need more shares and tweets

      Kimmery Mackie
      Petition Organizer

      Things are going very slow. Only getting about 1 or 2 sigs every few days. Please continue to share on FB, tweet, and email all your friend and family. This is an issue that has got to be addressed from the top, DC! I can only do it with your help! Please help me help others!!!! Thank you! God Bless you all! <3

    5. Please don't stop now!?!

      Kimmery Mackie
      Petition Organizer

      I have sent the 509 signatures to Medicaid along with all the comments.

      Now I am begging for you to keep sharing, tweeting, pinning, and emailing. If you would ask your friends to share, and they ask their friends to share I can reach my new goal of 1000. I want to have this amount to send to President Obama, the Senate, Congress, and any other politician I can think of. I want to get things changed in the way that Medicaid and private insurances are allowed to override a doctors orders/decisions on what a patient needs. IT IS NOT RIGHT THAT PENCIL PUSHERS HIDING BEHIND RED TAPE CAN SAY THAT THEY KNOW MORE THAN OUR DOCTOR'S DO. When a doctor writes a prescription for a medication, especially a medically necessary one the insurance companies should NOT have the right to say that it's not needed, or that a different medication or dosage would be better.

      PLEASE HELP ME GET THE REST OF THE SIGNATURES, I AM AT 539 NOW.IF WE COULD GET 500 WE CAN GET ANOTHER 500! GOD BLESS YOU ALL!!

    6. Going for 1000 signatures

      Kimmery Mackie
      Petition Organizer

      Well we got the 500 I was going for. I needed to stop there because I am on a time frame to get my appeal in for Medicaid. Now PLEASE help me get at least 1000 if not more to send to President Obama and the Senate. The more signatures and comments the bigger impact it will get their attention better. Again though I want to thank each and everyone of you for helping me reach my goal of 500. It means the world to me that so many of you are so supportive and caring enough to help me and my son. God Bless YOU ALL!!!

    7. WE DID IT!!!!!!!!

      Kimmery Mackie
      Petition Organizer

      THANK YOU TO ALL THAT SIGNED MY PETITION. I AM NOW WRITING THE PRESIDENT, THE SENATE, AND THE DIRECTOR OF DHS/MEDICAID TO GET MY MEDS BUT MOST IMPORTANTLY TO CHANGE THE WAY MEDICAID AND ALL INSURANCE COMPANIES APPROVE OR DENY MEDICALLY NECESSARY MEDICATIONS. I HAVE BEEN DOUBTED BY A FEW, MOSTLY FAMILY, BUT I WILL GET THIS DONE. NOBODY SHOULD HAVE TO GO THROUGH WHAT I HAVE FOR THE LAST 6 MONTHS. AND MOSTLY MY SON, WHO HAS ASPERGER'S AND BIPOLAR DISORDER, SHOULD HAVE TO BE RIPPED AWAY FROM EVERYTHING HE KNOWS BECAUSE OF THE IGNORANCE OF THE INSURANCE INDUSTRY.

      GOD BLESS EACH AND EVERYONE OF YOU, AND MOSTLY ALL MY FRIENDS WITH NARCOLEPSY THAT STUCK BY ME, SHARED AND BEGGED DAY AFTER DAY TO GET ME THE SIGNATURES AND SUPPORT. LOVE TO ALL <3

    8. Reached 500 signatures
    9. ONLY 16 MORE TO GO!!!!

      Kimmery Mackie
      Petition Organizer

      PLEASE KEEP SHARING AND BEGGING/ASKING YOUR FRIENDS AND FAMILY TO SIGN THIS. WE ARE SO CLOSE. GOD BLESS ALL OF YOU!

    10. ONLY NEED 35 MORE SIGNATURES

      Kimmery Mackie
      Petition Organizer

      I don't know what you all did but WE are so close. Keep it up. Begging is a necessity at this point. I really want to get the last 35 by Sunday. I want to start working on my "campaign" first thing Monday morning. AGAIN, GOD BLESS EVERY SINGLE ONE OF YOU THAT HAVE HELPED. ESPECIALLY ALL MY PWN FAMILY. ALMOST ALL OF YOU HAVE SIGNED AND SHARED REPEATEDLY. HUGS AND LOVE TO ALL OF YOU!!!

    11. Been a slow day

      Kimmery Mackie
      Petition Organizer

      Well it's been a slow day. I know I shouldn't let it get me down but we were doing so well. Only got 4 signatures today. But I see that my friends are still sharing and that's what we need. Hopefully I will wake up in the morning and see a lot more or the rest. ONLY need 54 more. Come on, we can do it. I posted on Anderson Cooper's FB page, and tweeted him and Diane Sawyer. Just posted on Ricki Lakes page too. So if you can think of any celebrity that you can post on their page do it. AND ask them for help, I need to get this in the media too. God Bless you ALL!! <3

    12. They're coming in faster than I can keep up with!!!

      Kimmery Mackie
      Petition Organizer

      Hi Again,
      I went from 402 this morning to 416 in just a matter of hours. I cannot begin to thank everyone enough. Let' finish this up in the next day or two so I can get it to President Obama and Senator Grassley, as well as Congressman Latham. Love to all. <3

    13. iN THE HOMESTRETCH ONLY 98 MORE NEEDED

      Kimmery Mackie
      Petition Organizer

      Hi Everyone,

      God Bless your hearts. I have 402 signatures!! I am only 98 away now. It is imperitave that you continue to post this on the top of your Facebook pages, keep tweeting, pinning, and emailing.

      We need this kind of practice to stop. I am NOT just doing this for me. I am doing it in the hopes that the President and the Senate will make changes in the way Medicaid and insurance companies approve medically necessary medications. Having to go 6 months without my medication has been devastating to me. I have not been able to function. Not been able to clean house, I have nearly set the house on fire because I have started a meal and then fallen alseep. Before getting a bath aide I was only able to take a bath a couple times a month because I was too tired to bathe. My not being able to function is what led me to having to place my son in foster care. This has GOT TO CHANGE!!! GOD BLESS YOU ALL!!!

    14. SOOOOO CLOSE!!

      Kimmery Mackie
      Petition Organizer

      WE are doing it!!! Thank you so much to all my friends that have put this on the top of their pages on FB, tweeted it, pinned it, and emailed to their contacts. WE only need 127 more signatures. Please keep doing what you are doing because it is working. God Bless you ALL. <3

    15. OMG THANK YOU ALL SO MUCH

      Kimmery Mackie
      Petition Organizer

      I have 358 signatures!!! We are definitely in the home stretch. PLEASE KEEP SHARING WITH ALL YOUR FAMILY AND FRIENDS AND IF YOU TWEET THEN PLEASE TWITTER THE LINK. You can also go to my Pinterest boards Narcolepsy Stuff and Autism and repin the links for me there. I love each and every one of you for your kindness. May God Bless each and every one of you! <3

    16. In the homestretch!!

      Kimmery Mackie
      Petition Organizer

      ONLY 165 MORE SIGNATURES NEEDED. PLEASE KEEP SHARING, EMAILING, TWEETING, AND EVEN PINNING ON PINTEREST.

      I am overwhelmed by all the people that are supporting me and my son. Every day I read all the comments and cry because there are so many out there that really do understand how important this medication is to living a functional life. And how many people understand how badly I need my son home. He has Asperger's Syndrome and Bipolar and needs me. Thank you all for your kind, supportive words. And for telling Medicaid that my doctor's advice should override their asinine reasons. God Bless each and everyone of you! Love and Hugs

    17. 2 away from 300

      Kimmery Mackie
      Petition Organizer

      PLEASE KEEP POSTING AND BEGGING PEOPLE TO SIGN. I AM 202 AWAY FROM MY GOAL. PLEASE TWEET, EMAIL ALL YOUR CONTACTS, ANYTHING YOU CAN THINK OF. I EVEN PINNED IT ON PINTEREST. I AM DESPERATE TO GET THE 500 SIGNATURES SO I CAN SEND THIS ON TO MEDICAID WITH MY FORMAL APPEAL FOR A HEARING. I HAVEN'T MENTIONED THIS YET BUT SENATOR GRASSLEY IS TRYING TO ASSIST AS WELL. I AM SENDING HIM ALL YOUR COMMENTS AND THEY ARE SO APPRECIATED. GOD BLESS EACH AND EVERY ONE OF YOU. I CAN NEVER TELL YOU ALL HOW MUCH IT MEANS TO ME THAT YOU TOOK THE TIME TO SIGN AND SHARE. LOVE TO ALL!!

    18. God Bless all 284 signers/supporters

      Kimmery Mackie
      Petition Organizer

      YAY! 284, that is 31 more signatures in one day. Keep it up PLEASE? Just keep posting on you FB pages to keep it visible, share with your email contacts. I so appreciate everyone that has supported me and shared. I love you all dearly and want you to know that I hope God brings good things to your lives. I mean that from the bottom of my heart. Love to all and God Bless you all!!!

    19. We've hit the half way mark!!

      Kimmery Mackie
      Petition Organizer

      Thank you all 253 signers. Again I beg of you to share on your facebook page at least once a day. That way it will be on top for those that might not have seen it. And PLEASE email to all your email contacts. I sent it to every one in my email contact list and one of Alex's 5th grade teachers signed it. So you never know who will sign it. Thank you AGAIN for all your support!!! <3

    20. Reached 250 signatures
    21. WE HIT 200!

      Kimmery Mackie
      Petition Organizer

      THANKS TO ALL 202 SUPPORTERS SO FAR. Please repost on your FB wall so that people will see it right away. Don't let it get buried amongst all the other posts on you page. Also if you use Twitter please post it there and ask your followers to tweet it too. Keep up the awesome work, we will hit 500. AND HOPEFULLY MORE!! GOD BLESS YOU ALL!

    22. Awesome!

      Kimmery Mackie
      Petition Organizer

      I am at 112 signatures. It's all because of ALL of you. Thank you for the love and support. BTW, if you are a Tweeter please share this there. I have an account but will be darned if I can figure out how to do it. One other thing that I should've put in my petition and didn't think about it is this. Thirty years ago my addiction was to amphetamines. Yet Medicaid has NO PROBLEM APPROVING TWO DIFFERENT AMPHETAMINES FOR ME AT HIGH DOSES TOO. So to me this just nullifies their excuse that I have a prior drug history when it is those meds I had a problem with and they didn't even question approving them!!!!

    23. Reached 100 signatures

    Supporters

    Reasons for signing

    • Marcia Brownridge LAWRENCEVILLE, GA
      • about 1 month ago

      I also suffer from Narcolepsy and have had to remain suffering while my doctor battled my insurance company in my behalf. This medicine changes lives!

      REPORT THIS COMMENT:
    • Meg Davis MIRAMAR, FL
      • 3 months ago

      They should allow her the drug needed. And use medical pot for pain management instead of the pain pills. Her son shouldnt have been taken from her over a medical issue that can be fixed. The state should force them to give it to her

      REPORT THIS COMMENT:
    • Adri Hooves URBANDALE, IA
      • 5 months ago

      I take Xyrem as well. It was helped me put my life back together and this woman needs that too--and fast! LET THIS WOMAN'S SON COME HOME!

      REPORT THIS COMMENT:
    • Kayla Fox OSHKOSH, WI
      • 7 months ago

      I am having the exact same issue with medical assistance.

      REPORT THIS COMMENT:
    • KELLY JACK KINCAID, IL
      • 8 months ago

      I HAVE NARCOLEPSY-CATAPLEXY-FYBROMYALGIA-OSA-NARCOLEPSY-RLS-DREAM W/IN A DREAM-EXTREAM MEMORY-FOCUS-ECT. PLUS

      REPORT THIS COMMENT:

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