Lyme disease patients in Australia need urgent recognition and adequate treatment
  • Petitioning Government of Australia

This petition will be delivered to:

Government of Australia

Lyme disease patients in Australia need urgent recognition and adequate treatment

    1. Theresa Potgieter
    2. Petition by

      Theresa Potgieter

      Perth, Australia

 

Lyme disease, Rickettsial infections and other vector-borne Co-infections are ignored by the Australian government due to insufficient research and scientific proof of its existence and influence in the lives of the people of Australia. Many have already tested positive with overseas tests (American and German) at their own cost, but the government keeps denying the legality of these tests without offering a better or equivalent solution.

 

The people are in desperate need of treatment, accurate testing, better clinical studies and more comprehensive protocols than what is currently offered to any given patient.  

Our doctors need more support from government to feel free to be trained by those who know the workings of these diseases and how to treat patients who clearly test and show a history of symptoms. The doctors need to have the freedom to be able to treat a patient for however long it may take to fully recover in order to be put back into the workforce.

 

We need funded research programs supported by our government which can allocate the specific bacteria that can be found in our ticks, and possibly other insects, and extract them to develop accurate testing methods to better serve our people.  Better testing at an earlier stage in the disease can prevent long term suffering and provide more appropriate treatment methods.

 

We need pharmaceutical companies to charge a respectable profit margin and not overprice the simple treatment that is needed for these diseases. Antibiotic costs are exorbitant in Australia compared to other countries and this need to stop.  Medical insurance companies need to work alongside these companies and realize that if they in fact charge just a normal profit margin, this disease may not even be as expensive for the patient. The cost need not be as taxing on government as it claims to be if correct costing is taken into consideration.  

 

With this strict denial of the Australian government to acknowledge and allow treatment of Lyme and related diseases, people who have been infected overseas and have been diagnosed positive overseas are denied full treatment as the doctors are not allowed to fully treat under the medical system. They are also denied proper care under the current system and are rather advised to go overseas for proper treatment, regardless of the fact that they are contributing to Medicare, taxes and private health funds.

 

Please realize that Lyme disease, Rickettsia and its Co-infections is an epidemic which is spreading, infecting more and more people.  Just as with AIDS, you will soon know at least 1 person who may have this disease.

 

The only difference currently is that this person is probably not getting proper treatment because governments are still in denial. This person may soon die or will live a life of agony, presenting with symptoms such as chronic fatigue, MS, dementia, MND etc. This discomfort will continue for as long as it takes for the governments, yes governments, not medical doctors,  to decide whether this person is really sick or not.

 

Slow progress is being made as you read this letter and just recently doctors got together in Sydney for a conference taking the interest of the patients at heart. We need your support to help these initiatives move forward and to help the medical professionals who are willing to help us to convince the government that Australia is in need of realizing that a real medical problem is no longer on their doorstep.  It is in our homes.  

This is a problem to which there is a solution. If we can open a way of conversation with government to hear our plight, we will help many of those who do not have the energy or health to fight anymore.

Please consider in supporting this petition. We need to move forward on this. Convincing the Government to make changes and allow treatment may one day save someone very dear to you, it may even be your child or grand-child. 

To:
Government of Australia
Stop denying the existence and treatment of Lyme disease and Co-infections.

Sincerely,
[Your name]

Recent signatures

    News

    1. Reached 3,000 signatures
    2. Our newest Video has just been released.

      Theresa Potgieter
      Petition Organizer

      http://www.youtube.com/watch?v=TbM4BVfasNo&feature=youtu.be
      Published on Apr 12, 2013

      Please watch this video for insight into how Lyme Disease affects the lives of Australian sufferers - and to discover the motivations behind the first ever Worldwide Lyme Disease Protest on the 10th and 11th May 2013

      "I want..." Stories from Australian Lyme sufferers

      Please watch this video for insight into how Lyme Disease affects the lives of Australian sufferers - and to discover the motivations behind the first ever Worldwide Lyme Disease Protest on the 10th and 11th May 2013.

    3. Reached 750 signatures
    4. Worldwide Lyme Protest - Australia 2013

      Theresa Potgieter
      Petition Organizer
      Worldwide Lyme Protest - Australia 2013

      Please watch this video to gain an understanding of why Australia is participating in the first 'Worldwide Lyme Protest' with over 20 other countries. Your support would be appreciated! Stay tuned for more videos in the coming weeks....

    5. Reached 50 signatures

    Supporters

    Reasons for signing

      • about 14 hours ago

      personal observation of Lachlan and justice for medical support

      REPORT THIS COMMENT:
    • Valerie Hebbard AUSTRALIA
      • about 15 hours ago

      I have been a sufferer of a rare disease in the past - one which fortunately was 'discovered' and treatment available in the 1940's. I still suffer some side effects from it. I think it important that little known diseases get the support they need before they become more of a problem.

      REPORT THIS COMMENT:
    • Fiona Carroll AUSTRALIA
      • about 19 hours ago

      My friend and her family are experiencing great trauma through this disease. Her son should be out having the time of his life like any other boy in his late teens.

      REPORT THIS COMMENT:
    • Rosie Wright AUSTRALIA
      • about 20 hours ago

      We all need to have access to the best medical treatment possible

      REPORT THIS COMMENT:
    • rhonda case GOLD COAST, AUSTRALIA
      • 1 day ago

      judging from lyme disease association paperwork I feel I have this disease

      REPORT THIS COMMENT:

    Develop your own tools to win.

    Use the Change.org API to develop your own organizing tools. Find out how to get started.