Congress: Respite for family caregivers needs to be a national priority
  • Petitioned Congress

This petition was delivered to:

President of the United States
U.S. Senate
U.S. House of Representatives

Congress: Respite for family caregivers needs to be a national priority

    1. Petition by

      ARCH National Respite Coalition

Family caregivers, who often provide 24/7 care to children and adults with disabilities or chronic conditions, are the backbone of the US long-term services and supports system. However, without adequate support for themselves, family caregivers are at high risk for stress-related illnesses and depression and family well-being may be undermined by marital discord and strained family relationships. Respite care helps reduce the stress that can lead to serious physical and emotional strain on family caregivers, improve overall family well-being, help prevent abuse or neglect, and help avoid or delay more costly emergency room use and hospitalization as well as foster care, nursing home or other facility-based placements. Yet, close to 90% of the nation's 65 million family caregivers are not receiving respite services of any kind.

Recent signatures


    1. Senate will consider FY 14 funding for Lifespan Respite by July 8, 2013

      The Senate Subcommittee on Labor/HHS/Education plans to consider their FY 14 funding bill by July 8, 2013. Please let your Senators know that you support continued funding for Lifespan Respite.
      For more information, visit the NRC Legislative Alerts at

    2. Reached 250 signatures
    3. 35 Members of Congress sent a letter to the House Appropriations Committee

      35 bipartisan Members of the US House of Representatives sent a letter to the Appropriations Committee leadership urging funding for the Lifespan Respite Care Program in FY 2014. To see the letter, go to Send a letter to your House Member and Senator urging support for this initiative.

      Legislative Alerts and Advocacy Tools

      Legislative Alerts | Advocacy Tools | FY 12 Congressional Letter Campaign | NRC Legislative Action Center

    4. Reached 100 signatures


    Reasons for signing

    • Stephanie Mccoy MINNEAPOLIS, MN
      • 9 months ago

      The ability for caregivers to have respite care will help improve the health of those they are caring for and the health of themselves. It is necessary for caregivers to have help caring for their loved ones.

    • Susan Price MODESTO, CA
      • 12 months ago

      Family caregivers are easily at risk of being taken advantage off, isolated, mistreated, ignored, denied pay, medical care and time off. Shocked, scared and exhausted, I am a uncared for family caregiver.

    • charlene stewart SWANNANOA, NC
      • about 1 year ago

      Caring for loved one with dementia

    • Amy Bingman ARAB, AL
      • about 1 year ago


    • Suzanne Umba BARRINGTON, NJ
      • about 1 year ago

      My younger son was born 9 years ago with a rare chromosome disorder which left him severely mentally and physically challenged for life. He is a true blessing, and because of respite help, I can continue to care for him the way he needs to be cared for...the way he deserves. Without respite, his health and mine would decline rapidly.


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