smashSMARD Challenge

smashSMARD Challenge

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Marquis Waller started this petition to You

SMARD stands for Spinal Muscular Atrophy with Respiratory Distress. There is little known about this ultra rare and often fatal disease.

smashSMARD.org

https://www.youtube.com/watch?v=_U39coYuY2I

WHAT:
The #smashSMARDchallenge was designed to bring awareness and necessary funding for this ultra-rare disease that currently has no treatment. 


WHY:
We need YOUR help to raise about $1.5 million to fund Nationwide Children's Hospital Gene Therapy Research. Gene therapy is a well documented treatment for this disease in animal models.  The plan is to translate this promising data into a human clinical trial in the near future.  
 
HOW:
1) Use a cell phone to record the challenge​.
2) Tell audience why it is important to you.
3) Smash a pie in your face or ask a friend/family member to do it for you.
4) Nominate 3-5 others to take the #smashSMARDchallenge and to donate!

0 have signed. Let’s get to 200!
At 200 signatures, this petition is more likely to be featured in recommendations!