Ask the Welsh Government to fund treatment for chronic health conditions

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My name is Hannah Amelia Evans. I'm in desperate need of life saving treatment in the USA. Without this treatment, I will die.

My conditions have deteriorated a lot over recent years and this treatment is only available in the USA. The chronic systemic condition that needs treating is called Mast Cell Activation Disorder (MCAD). UK specialists, consultants and doctors have all said I desperately need this treatment as I am so antibiotic resistant now that I'm in constant danger of picking up an infection which causes my body to start shutting down, quickly becoming life threatening, which is terrifying for me and my family.

Here are the chronic conditions I live with each and every day:

  • Ehlers Danlos Syndrome (EDS)
    A very complex connective tissue disorder which affects sufferers differently. With me, it affects my mobility, energy and a lot more. Many people with this condition are in pain daily.
  • Postural Orthostatic Tachycardic Syndrome (POTS)
    Which for me is chronic and systemic. My body's autonomic system doesn't work properly, so everything my body is meant to do automatically, such as control heart rate, blood pressure, body temperature, digestion, etc. doesn't work. This wreaks havoc on my body and my ability to live day-to-day without medical intervention.
  • Mast Cell Activation Disorder (MCAD)
    A systemic disease where my mast cells are agressive and hypersensitive. Also the walls of my white blood cells break down very easily, causing my body to attack itself and means my immune system doesn't work at all. For me, it also causes very high blood histamine levels, which means I'm constantly at risk of life threatening allergic reactions to anything and everything. Also, my mast cells attack my immune system, which results in my body having multiple life threatening problems as my body can't fight off even the smallest virus or infections. This condition has attacked my immune system so badly that I have to wear a mask in public. I am now resistant to every antibiotic except two. This is why the treatment in the USA is my very last chance.

Your signature on this petition will mean so very much to me and will hopefully make the Welsh Government sit up and take notice of me and other people in a similar situation who so desperately need funding for life saving medication.

Thank you

Hannah Amelia Evans



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