UPMC Health Plan: Stop Denying Medical Access and Care

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My name is Rachel and I am in desperate need of treatment for a rare connective-tissue disorder — I’m losing the ability to use my hands. Yet, my insurance refuses to cover seeing a specialist. I need your support to get the treatment I need.

I’m a board-licensed pediatric psychologist working with the University of Pittsburgh Medical Center (UPMC). Right now, I’m fighting to get needed specialist treatment. UPMC doesn’t have qualified health providers within their network to treat my disorder – yet they won’t cover out-of-network treatment either.

I’ve been passed among 12 different Neurosurgeons within the UPMC network in the past year – none of whom have significant experience in connective tissue disorders.

My current UPMC neurosurgeon has written directly to the company recommending that I be examined by a specialist in my particular disorder – because there is no one in-network who can properly evaluate me and my condition.

This lack of experience among UPMC providers with my particular disorder led to a misdiagnosis which resulted in my having an artery dissection at age 32. Still, my treatment requests are routinely denied by the health plan – forcing me to undertake months of appeals to overturn denials for even a simple MRI.

Bottom line, my health is deteriorating. I now have a swollen spinal cord from compression. Despite the threats and retaliation I’ve received for challenging the company on this coverage issue, I started this petition. I simply don’t have many more months to waste on more delays, deferrals, and denials from UPMC.

Please sign my petition calling on UPMC to allow me to seek qualified, specialized out-of-network care for my rare disorder today.



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