ALS Medicine Insurance Coverage

This petition made change with 46,936 supporters!

My dad, Dave Flaugh, is battling ALS. In August 2017, a new medicine for ALS called Radicava was brought to the U.S. As you may guess, our family was excited to learn more about it and how it could benefit my dad. However, we have come across a roadblock. UPMC Health Plan is refusing to cover the cost of the medicine which is over $145,000/year of treatment.

I’ve started this petition because I need your help to get UPMC to cover his treatment. Your signature could help save my dad’s life.

UPMC's stand is that they will only cover the cost of the medicine if the ALS patient has been diagnosed within the last two years. My father was diagnosed in August of 2015. He is active and doing much better than most with diagnoses of over two years. Also, we began inquiring about Radicava before the two-year diagnosis deadline.

UPMC also said that they would only cover it if the patient's respiratory function is over 80%. My dad's is at 65% right now. Pulmonary function is a major concern with ALS.

Without this medicine, my dad's pulmonary function will continue to decrease. This is an example of an insurance company playing God. How can you tell my dad that he does not deserve the chance to fight this disease with everything the medical community has to offer?

According to ALS News Today, "Radicava has been found to slow down the decline of physical ability in ALS patients by a third". After hearing the positive impacts that Radicava can have for ALS patients, how can they stop my father or anyone from receiving it?

My family, and I'm sure others with UPMC insurance, do not have time to waste. Please sign and share my petition to UPMC Health asking them to cover Radicava for ALS patients like my dad – today.

Today: Taylor is counting on you

Taylor Flaugh needs your help with “UPMC Health Plan: ALS Medicine Insurance Coverage”. Join Taylor and 46,935 supporters today.