SAVE A LIFE.

SAVE A LIFE.

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Paula Vanriel started this petition to UK Parliament

GAUCHER DISEASE IS A RARE CHRONIC ILLNESS THAT CAN LEAD TO DEATH. 1 IN 15 ASHKENAZI JEWS ARE CARRIERS.

I ALMOST DIED BEFORE DIAGNOSIS BY US DOCTORS.

ENZYME REPLACEMENT IS THE PREFERRED TREATMENT.

THERE ARE CURRENTLY 3 TYPES OF ENZYME REPLACEMENT, HOWEVER THE UK WILL NOT ALLOW THE THIRD AND BEST ENZYME REPLACEMENT (ELELYSO) TO BE MADE AVAILABLE TO UK PATIENTS BECAUSE THEY WANT THE OTHER TWO TO BE ABLE TO MAKE A PROFIT BEFORE INTRODUCING A 'COMPETITOR' INTO THE MARKET.

PROFIT SHOULD NOT BE A FACTOR WHEN IT COMES TO HEALTH. THERE ARE CHILDREN DYING FROM THIS DISEASE.

I AM LIVING PROOF THAT ELELYSO IS THE BEST AND LEAST INVASIVE OUT OF ALL THE 3. MOST PATIENTS HERE IN THE USA WOULD AGREE. 

ALSO THE TREATMENT WAS MADE IN ISRAEL BY PEOPLE WHO HAVE MORE PERSONAL REASONS BECAUSE MANY OF THEM HAVE RELATIVES OR FRIENDS WITH THE DISEASE. IT IS CHEAPER TO MANUFACTURE, BECAUSE IT'S DERIVED FROM CARROT CELLS AND IS KOSHER.

BEING A BRITISH CITIZEN, IT WOULD BE NICE IF I COULD RETURN WITHOUT HAVING TO JEOPARDIZE MY PROGRESS.

NO ONE HAS HELPED ME AND BECAUSE THE DISEASE IS SO RARE, ALL MANNER OF LIBERTIES CAN BE TAKEN.

I WOULD APPRECIATE IF ANYONE WOULD TAKE THE TIME TO SIGN THIS PETITION. YOU COULD BE HELPING TO SAVE A LIFE.

 

 

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