RESTORE THE DYSPRAXIA APPG FOLLOWING THE GENERAL ELECTION

RESTORE THE DYSPRAXIA APPG FOLLOWING THE GENERAL ELECTION

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Pete Guest started this petition to UK Parliament

Earlier in 2019 an All Party Parliamentary Group (APPG) was formed containing a collection of MPs across all political parties to discuss issues surrounding Dyspraxia.

Dyspraxia (sometimes referred to as Developmental Co-ordination Disorder in certain arenas) is a Specific Learning Difficulty (SpLD) -  a life-long neurodevelopmental condition which is life-long, does not negatively affect intelligence and based on latest research affects over 1 million adults in the UK and two children in every classroom. For Dyspraxics, the brain is wired in a different way which means they experience life, the world around them and everyday tasks differently and in doing so experiencing an array of challenges in an array of areas including gross and motor co-ordination, speech, short-term memory, issues around planning and organisation among others. Every Dyspraxic is entirely unique and the number of challenges and traits is unique to them in both their presentation and severity.

Every Dyspraxic is different but one thing every Dyspraxic has in common is their potential. Potential to academically and professionally achieve and lead happy, fulfilling lives benefiting from a number of wonderfully positive traits and aptitudes regularly seen as a result of their neurology. For this to happen sometimes support and appropriate adjustments are needed.Many are being failed and not allowed to achieve and live the happy, full-filling lives every man , woman and child has a right to due to societal ignorance and institutional, societal and political neglect.

Urgent discussion and conversation over the current landscape is needed which includes a level of awareness which is severely lacking, a diagnostic pathway which is unclear and not fit for purpose leading many unsure where to turn incurring financial costs as well as impacting their mental health and emotional well being. Adult diagnosis as it stands is cost-prohibitive, many Clinical Care Groups (CCGs who budget and determine what services to invest in for local NHS trusts) do not fund diagnostic assessments for Dyspraxics and offer no or inadequate support infrastructures tailored to their needs and challenges which would allow Dyspraxics to thrive, enjoy life and reach their goals in life .

The result of this is a population of Dyspraxic children, young people and adults who are being let down by those not educated to support and empower them . We therefore call on the Dyspraxia APPG, disbanded when Parliament dissolved to make way for the General Election, be re-registered as an APPG following the election so serious discussions can resume and evidence of realities of the situation affecting the Dyspraxic community and their families can be heard.

We would also call on all Members of Parliament (both re-elected and new) and members of the House of Lords to strongly consider being a part of this APPG that could positively change the lives of millions of children and adults, many who are going unsupported, being misunderstood and being failed be what currently exists.

Yours Faithfully,

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