Raise awareness & educate health professionals to recognise AFLP & The Swansea Criteria

Raise awareness & educate health professionals to recognise AFLP & The Swansea Criteria

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Louise May started this petition to UK Parliament and

In April 2016 I became extremely ill with symptoms that were either ignored or overlooked through a lack of education. At 37 weeks pregnant I lost my son and daughter and my husband very nearly lost his wife. Thanks to the help of an amazing Donner I received a liver transplant and my life was saved, but it would never be the same again. For years I search for people who had been affected by acute fatty liver of pregnancy until finally I found a group on Facebook and I realise how many women had a very similar story to me. The majority of these women including me are aware or have been told that health professionals unaware of their condition until it was too late.

Acute fatty liver is a condition which usually occurs in the third trimester of pregnancy. The only known preventative cure is early diagnosis in order to stabilize Mum and deliver baby as soon as possible. 

The Swansea criteria is a comprehensive list of symptoms in which if a patient presents with 6 of the symptoms they are assumed to have aflp and are taking for further investigations. Although in its infancy this criteria has been introduced into many hospitals but not worldwide. Acute fatty liver of pregnancy is a detrimental disease that more often than not results in stillbirth. Awareness needs to be raised around acute fatty liver of pregnancy and other liver conditions.

This petition is to not only raise awareness to the general public but to ensure that health professionals are responsibly trained to recognise liver conditions in pregnancy. With the only known cure being prevention it is imperative that the education is given two people in charge of maternal and fetal outcome.

Although this disease only affects one in 10000 people, thousands of mothers and children are now angels and it is a true belief that education is the key to put an end to this heartache.

If anyone can would like to take part in this journey or share their stories please do not hesitate to contact me. 

If anybody knows who is the best body to name on this petition also please contact me.

To all the family is out there that this dreadful disease has touched and devastated now is our time to rise and educate the world so in this day in age our children, sisters and mothers do not have to fight for there lifes.

Please find below some information on the disease, even if we save one life we will change history.

What is acute fatty liver of pregnancy?
What it is: 

Some women develop a type of fatty liver in the final trimester (last three months) of their pregnancy; this is known as acute fatty liver of pregnancy (AFLP). AFLP is a very rare condition (it occurs in about 1 in 20,000 pregnancies) and is more common in first pregnancies, male babies and twins.

Is there a cause? 

It is not known what causes this pregnancy specific liver condition but some feel it is a variant of pre-eclampsia (raised blood pressure and protein in the urine caused by pregnancy). It has also been linked to an inherited enzyme deficiency called long chain acyl-CoA dehydrogenase (LCHAD) in the baby.

LCHAD deficiency is a rare autosomal recessive disorder. This means a gene must be inherited from both parents for an individual to be affected.

Often men and women do not know they are a carrier of this changed (mutated) gene, as their bodies are able to continue to metabolise fatty acids normally. However, when both mother and father carry the gene and both genes are passed on to the baby, the baby is then unable to metabolise some fatty acids and a build-up can occur in the womb.

The un-metabolised free fatty acids return from the baby, via the placenta, to the mother’s blood stream. This can result in hepatic stress for the mother, causing fat infiltrations to build up in the liver (fatty liver disease).

What are the symptoms? 

Often symptoms of AFLP are non-specific and can be mistaken for another condition, making early diagnosis difficult. Symptoms of AFLP may include:

• nausea and vomiting

• lack of appetite

• abdominal pain and indigestion

• non-specifically feeling unwell (malaise)

• excessive tiredness (fatigue)

• jaundice – a condition in which the whites of the eyes go yellow and, in more severe cases, the skin also turns yellow (for more information see useful words)

• excessive thirst

If you are pregnant and experiencing any of these symptoms you should make an urgent appointment to see your midwife or GP. If your symptoms are severe or begin to get worse, you should go straight to hospital.

Acute fatty liver of pregnancy is a very serious condition that can cause rapid liver and kidney failure and can be life-threatening for both mother and baby if not diagnosed

 

0 have signed. Let’s get to 1,500!
At 1,500 signatures, this petition is more likely to get picked up by local news!