Make sure patients with varying stages of pulmonary fibrosis receive anti fibrotic drugs.
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Recently my mother passed away at the age of 59 years to pulmonary fibrosis. I was her full time carer and asked Doctors on serveral occasions to prescribe her with medication to help stop the progression of fibrosis on her lungs. She met the NICE guidelines criteria for this medication.
However, I was told by Doctors that she was not at that stage yet and my mother received no treatment for her lungs. (Perfenidone, nintedanib). Like I’ve mentioned she met the criteria for treatment. Unfortunately a month and a half later my mum passed away in the most traumatic way possible fighting for breath. Now my uncle is being denied this drug and has spent 2 years receiving no treatment for his lungs, Please do not let this happen to other people with pulmonary fibrosis. Just a reminder, like my mum many people with pulmonary fibrosis do NOT smoke Thank you
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