Categorize Endometriosis & Adenomyosis as Disabilities in America

Categorize Endometriosis & Adenomyosis as Disabilities in America

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Kelly Collins started this petition to U.S. Senate and

Endometriosis is a disorder in which tissue that normally lines the uterus grows outside the uterus causing chronic, debilitating pain and menstrual irregularities. Endometriosis affects 1 in 10 individuals during their reproductive years. That is about 176 million people worldwide and counting. Because endometriosis is a full body disease, it has the potential to spread to other places in the body outside of the reproductive organs such as the chest cavity, lungs, liver, kidneys, bladder and bowels. Endometriosis has been found everywhere except the spleen. And even with symptoms like crippling pain, fainting, vomiting, pain with sex, severe bloating or "endo belly", bladder spasms, etc, the only way to officially diagnose endometriosis or adenomyosis is surgery. And no, surgery is not a cure. Many sufferers go on to have multiple surgeries because the disease often comes back.

Many people are unaware that there are three different types of endometriosis and there are four different stages (I-minimal, II-mild, III-moderate, and IV-severe). Although this is good information to know, no particular stage determines the amount of pain or symptoms an individual may experience at any given time. There is also a possibility of developing adenomyosis, the sister disease to endometriosis, which is when endometrial cells exist or grow into the uterine wall. Both physically AND mentally debilitating diseases, endometriosis and adenomyosis are listed in the top 10 most painful illnesses to have. Both diseases are still being researched and examined to find a definite cause. And while there are various treatments and ways to alleviate pain and symptoms, there is no cure.

Specialists and experts who know about either disease are few and far in between and the studies that have been done include inaccurate data due to the fact that they typically only include white women when we now the scope of of these diseases is not limited to one particular gender, race or ethnicity. I am calling on Congress and medical industrial complex to step up and hear us. Provide those of us who suffer daily with the educational and financial support so we can work and live. Believe us.

As a wife, mother and doula with a family history of reproductive health issues and disease, this cause means a lot to me.  Please help me make this possible. Support Endometriosis & Adenomyosis being categorized as a disability.

Want to know more about my endo journey?  www.bestofbothworldsnc.com/blog/my-endo-diagnosis-the-two-years-later

To learn more about endometriosis, visit https://www.endoblack.org

0 have signed. Let’s get to 100!
At 100 signatures, this petition is more likely to be featured in recommendations!