To Get A Hypotonia Awareness Day

To Get A Hypotonia Awareness Day

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Edie Young started this petition to United Nations and

So I am Teen (14) and I am was born with a type of hypotonia called Congential Hypotonia. And there are many other people all over the world who have hypotonia but maybe not the same type since there is many types. I am making this petition to try an possibly get a hypotonia Awareness day. Hypotonia can be challenging to live some days and times and it can make everyday things hard like walking and eating and getting dressed and talking and even writing and much more. also hypotonia is chronic and does not go away. There is not that much hypotonia Awareness or support groups. And most things have a day or month So thank you to each and every one one of you who sign I know this is not that Important but I still wanted to address it. 

Hypotonia is usually a symptom of other diagnoses and conditions but Benign Congential Hypotonia is it's own disabillity and your born with it and it can very from Mild to Severe and every case is a bit different

What is Hypotonia ( that kind of explains but it can be very hard to explain for many different reasons and can be complicated to understand  ) - https://surestep.net/blog/what-is-hypotonia/

Myths About Hypotonia VS Facts - https://surestep.net/blog/7-misconceptions-about-hypotonia/

Here is a Hypotonia Website i do NOT own it or run it http://hypotoniaawareness.com/index.html

Here is a hypotonia awarness FB group i found ( i am NOT an admin and i DO NOT own it) - https://www.facebook.com/groups/hypotoniaawareness 

Here are some articles that are amazing having to do with hypotonia

https://themighty.com/2016/12/things-on-a-person-with-hypotonias-holiday-wishlist/

https://themighty.com/2016/08/experiencing-difficulty-in-school-as-a-teenager-with-hypotonia/

https://themighty.com/2016/08/my-plan-to-survive-high-school-with-hypotonia/

https://themighty.com/2016/08/how-teachers-can-support-students-with-hypotonia/

https://themighty.com/2016/08/singing-as-a-high-school-student-with-hypotonia/

https://themighty.com/2014/12/writing-to-raise-awareness-for-hypotonia/

https://surestep.net/blog/life-with-hypotonia/

Así que soy adolescente (14) y nací con un tipo de Hipotonía llamada hopotonia congencial. Y hay muchas otras personas en todo el mundo que tienen hipotonía pero tal vez no del mismo tipo ya que hay muchos tipos. Estoy haciendo esta petición para intentar un posible conseguir un día de la conciencia de la hipotonía. La hipotonía puede ser un reto para vivir algunos días y horas y puede hacer que las cosas diarias sean difíciles como caminar y comer, vestirse y hablar, e incluso escribir, y mucho más. Además, la hipotonía es crónica y no vete. No hay mucha conciencia de hipotonía o grupos de apoyo. Y la mayoría de las cosas tienen un día o un mes, así que gracias a todos y cada uno de ustedes que firman sé que esto no es tan importante, pero todavía quería abordarlo.

La hipotonía es generalmente un síntoma de otros diagnósticos y condiciones pero la hipotonía congencial benigna es su propia disabuntable y su nacido con ella y puede muy de leve a grave y cada caso es un poco diferente

Qué es la hipotonía (ese tipo de explicación, pero puede ser muy difícil de explicar por muchas razones diferentes y puede ser complicado de entender) https://surestep.net/blog/what-is-hypotonia/

Mitos sobre la hipotonía VS hechos https://surestep.net/blog/7-misconceptions-about-hypotonia/

Aquí hay un sitio web de Hypotonia awarness NO lo poseo ni lo ejecute http://hypotoniaawareness.com/index.html

Aquí hay un grupo de FB de hipotonía que encontré (NO soy administrador y NO lo poseo) - https://www.facebook.com/groups/hypotoniaawareness
 

A continuación se presentan algunos artículos que son sorprendentes relacionados con la hipotonía

https://themighty.com/2016/12/things-on-a-person-with-hypotonias-holiday-wishlist/

https://themighty.com/2016/08/experiencing-difficulty-in-school-as-a-teenager-with-hypotonia/

https://themighty.com/2016/08/my-plan-to-survive-high-school-with-hypotonia/

https://themighty.com/2016/08/how-teachers-can-support-students-with-hypotonia/

https://themighty.com/2016/08/singing-as-a-high-school-student-with-hypotonia/

https://themighty.com/2014/12/writing-to-raise-awareness-for-hypotonia/

https://surestep.net/blog/life-with-hypotonia/

 


 

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