Pregnant women to be tested for gauchers disease.
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Gauchers disease. I want pregnant woman to be tested for this diease like they do for the downs screening at 16 weeks.
A very close friend of mine has a 7 month old daughter who has gauchers type 2. Up until this none of us knew anything about the disease. For almost 20yrs
Its where the fats in your body go onto the brain spleen and liver inlarges them and there is no cure. There are 3 types. Type 1 they can treat but for type 2 and 3 they can't.
Little lexi-Leigh is 7 months and the family have been told she won't see her 2nd birthday. As babies with type 2 don't live past their 2nd birthday. To watch a young child suffer is horrendous.
So I'm. Asking everyone to sign this petition so hopefully we can get the government to take notice and allow pregnat ladies be tested. There is a 1 in 100,000 babies that are born with gauchers but is not detected till they are between 3-6 months. But with testing whilst pregnant then although loosing a unborn child is harsh it will save the pain of a watching your child suffer and never recover or get better.
Lexi-leigh passed away sat may 20th 2017 age 9.5mths old. More reason to sign this xx thank you to all the supporters so far
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