Make SPINRAZA available in the UK to all Spinal Muscular Atrophy types
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This is the drug we were told our granddaughter Kelsey ( Spinal Muscular Atrophy sufferer ) would get and there was a light at end of tunnel now we are left without the light it's heart breaking. We have always been scared for future but we had hope now this hope has been taken from us and many more families in the UK since NICE has rejected it for NHS use. The benefits of this drug are truly amazing to SMA sufferers and improve quality of life and independence for many. This can only save money in terms of the lack of medical intervention in their futures and will allow sufferers to put something back into the UK by means of employment and taxes.
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