Get adhesions recognised as a disability!
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To get adhesions recognised as a disability.
4 years ago I was rushed into hospital with severe abdominal pain. I underwent a laparoscopy which showed I had pelvic inflammatory disease and adhesions.
The pain continued and I went on to have several more surgeries. After having a lot of operations with general gynaecologist I was told nothing was wrong and adhesions don't cause pain.
I knew my pain was not in my head and went to a specialist in Birmingham privately. When I woke from my surgery I was told I had endometriosis and severe adhesions.
The pain continued I went on to have a full hysterectomy, and 3 more operations to take my ovaries etc. I had surgery in February this year where I had severe adhesions.
Afrer the surgery the pain came back within a matter of weeks. I had another operation in may 2017 5 months after my last and I was in surgery for 4 hours and needing a collateral surgeon being called to assist.
Living with adhesions is the hardest thing I have ever had to do. The pain is horrific, stabbing, pulling, twisting, bowel obstructions, fatigue, depression, house bound, and more.
I am now 7 weeks since my last surgery and again already in a pain, unfortunately there is not many barriers in the uk to help prevent the adhesions, the second look surgery that is one of the best treatments for adhesions with a barrier is only really available abroad.
This condition is awful, and I think having it registered as a disability will give a lot of people out there including men, women and children, some hope.
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