Allow Jacob Barrow Access to Bedrocan to aide the management of chronic & neuropathic pain

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I have set this e-petition up to gather support to push the UK Government, MHRA & The NHS (National Health Service), Home Office, Simon Stevens (Chief Executive of NHS England) and the Police and Crime Commissioner (City of London) to allow me to exercise my right to health by prescribing me Bedrocan which will aide me in the management of my chronic and neuropathic pain. 

I was born with a diaphragmatic hernia, with a hole in my diaphragm which meant that my internal organs developed inside my chest cavity. Born through caesarean section I was given an emergency operation and six months on I had to have additional corrective surgery as my scarring, which stretched around my torso had ruptured.

In 2007 I was rushed to hospital again with internal bleeding and severe pain which was assumed to be from Adhesion’s. The surgeons operated unsuccessfully with invasive experimental surgery to fully diagnose my condition.

Flash forward to 2018 and I’ve been struggling with severe pain and muscle spasticity, with the inability to eat confidently and comfortably since the operations. For years I have been seeing various GP’s to help with my pain management and muscle spasms and I have been prescribed Tramadol, anti-depressants anti convulsants amongst other opiate based pain medications including morphine. The adverse side effects of these mostly synthetics drugs have took their toll on my wellbeing and haven’t proved much use for the treatment of my condition.

I find it a massive challenge maintaining weight and since trialling new prescriptions I lost even more, I’m currently just under 8 stone.

Cannabis has been the only drug that has brought me relief and comfort from the long term pain and complications of my condition. With no adverse side effects, I have found a drug with long term prospects for pain management and muscle spasms. Cannabis produces no complications for my internal organs whereas the cocktail of drugs previously prescribed have worsened the condition and threatened my quality of life more than once.

Cannabis alleviates my pain along with other symptoms from the past surgeries and allows me to eat with comfort and confidence, something I haven’t had the joy of doing for a long time. The issue of legality for my medicinal needs is something that current UK drug policy is not equipped to deal with.


I was awarded a trial on Sativex, which is a cannabinoid based medicine. But due to the almost equal ratio of 1:1/THC:CBD it doesn’t give me the pain relief needed from the THC, as the amount of CBD contained counteracts the pain relieving properties I need from THC to combat my symptoms. I need a high THC medicine.

The trial was stopped shortly after and I was told I would have to produce my own medication for the time being.


The cost of maintaining my own medication is not an expense I can afford as I am unemployed due to my medical condition, I currently live off ESA ( A very small amount of money that doesn’t cover my basic costs of living let alone my medical needs).

I currently have to grow and prepare my own medication. This is a task that although brings me benefits with the end result, creates problems within my life that could be avoided if I were to be prescribed Bedrocan by my specialist.

The NHS, MHRA, and the Home Office are aware that I am having to break the law, and that I have had to produce my own medication, as my benefits cannot cover the medical bill.

Like others my human right to health is something we shouldn’t have to fight for, I would appreciate your support in helping me exercise my right to health- especially when the system continues to fail me.

PLEASE SIGN this PETITION to put pressure on the UK Government, the NHS, the MHRA, Police and Crime Commissioner (City of London) and Simon Stevens (Chief Executive of NHS England) to allow me access to the medication (Bedrocan) I need.

Thank you for your support.
Jacob Barrow

 

 



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