Petitioning U.S. House of Representatives and 8 others

Calling for a Congressional investigation of the CDC, IDSA and ALDF

28,212
Supporters

We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. A number of legislators have personally been affected and have introduced legislation to address this problem. Here are just a few recent examples.

Massachusetts

Representative David Linsky: “The occurrence of Lyme disease has reached near epidemic proportions in Massachusetts. Virtually every family in Massachusetts has been affected by Lyme disease in some way. Lyme disease is a public health crisis in the Commonwealth.” Read more…

Connecticut, Rhode Island, New York

Senator Richard Blumenthal: "Today for me culminates more than a decade of work and probably a decade more, because I've seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease” Read more….

New Jersey, Pennsylvania

Congressman Chris Smith: "It seems everywhere I go, someone comes up to me to talk about how Lyme disease has severely impacted their lives or someone they know," Read more…

Virginia

Virginia Governor’s Task Force Chair Michael P Farris, Esq: "Doctors here in Virginia are committing malpractice by saying the ELISA test is sufficient." Read more…

Texas

Sen. Harris says he was severely affected by the disease, but “got a lucky break.” His doctor, constrained by a disciplinary board that limited antibiotic use for tick-borne illness to 1 month or less, arranged for 17 physicians to take turns writing prescriptions for Sen. Harris’s treatment. Read more…

Two HoustonTexas physicians tested their chronically ill patients for Lyme disease via CDC Western blot criteria finding all patients positive for the infection in a state where the prevalence of Lyme infected ticks is only about 1-2%. “No history of bull’s-eye rash or illness following tick bite was reported by these patients.” The CDC defines “Lyme disease” exclusively as a zoonotic illness. Congenital and gestational transfer cases have been disregarded for reasons not evident to us”. Read more…

Congenital Transmission of Lyme: 28 Peer-Reviewed Studies

After spending four years on this subject the following statement from a physician on the front lines treating the late stage Lyme epidemic for a quarter century rings true:

“In the fullness of time, the mainstream handling of chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.”

We have studies proving persistent infection after antibiotic treatment for micedogsponiesmonkeys, cowsiris biopsy, and ligamentous tissue but if you perform a simple Yahoo search for the following statement, “There is no convincing scientific evidence that chronic Lyme exists” you will find the top search results are connected to “elements of academic medicine” involved in the denial of the late stage Lyme epidemic.

Persistent Lyme infection: 273 Peer-Reviewed Studies

Circular reasoning: "Suppress all evidence and then proclaim there is no evidence"

“One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.” Read more…

The following CDC letter (Dec 1996) addressed to former Senator Alfonse D’Amato promising to inform the medical community that the CDC’s Lyme case definition was created for reporting purposes only and not intended for clinical diagnosis is yet another failure on the part of the CDC to follow up on their responsibilities. Countless numbers of Lyme patients have been denied treatment and insurance reimbursement as a result of the restrictive case definition.  Read more…

Jan 2004 testimony from Paul Mead, M.D., M.P.H. Medical Epidemiologist from the CDC’s Division of Vector-Borne Infectious Diseases:

“No surveillance case definition is 100% accurate. There will always be some patients with Lyme disease whose illness does not meet the national surveillance case definition.”  Read more…

Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies

There has been a combined effort on the part of the CDC, IDSA and ALDF to use the media for propagating the Lyme disease disinformation campaign following Chomsky's propaganda model. They have used Medscape, Family Practice News, The New England Journal of Medicine, The Lancet Infectious Diseases and now The American Heart Association to spread the disinformation. This deliberate campaign is aimed at purposely confusing our medical community to keep case numbers artificially low by omitting the late stage of the disease entirely as there is absolutely no medical training whatsoever for the later stages of this disease (Willful Ignorance) so patients are often ping ponged though the medical community for years or decades before obtaining a late stage Lyme diagnosis. Nine Steps to Deny an Epidemic on a National Level 101

Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Alan Steere’s research. Read more….

Letter to the editor of Clinical Infectious Diseases questioning the validity of Dr Gary Wormser’s research. Read more….

Dr Alan MacDonald’s letter to the editor of Clinical Infectious Diseases questioning the reality of the abstract by Lantos, Auwaerter, and Wormser: Read more…..

Agenda-driven bias:  “People with these types of agendas may be more likely to abuse meta-analysis due to personal bias”

NEJM editor: “No longer possible to believe much of clinical research published

When “evidence based medicine” has been spun to fit bias agendas and the patient voice has been intentionally ignored who investigates the dishonest science?

Email message sent to the editors of the publications listed above announcing this petition. Read more

It’s all about the VACCINE

It has become blatantly obvious that the CDC will go to great lengths to insure that Lyme disease remains within its narrow definition in order to fit the vaccine model. Chronic Lyme does not fit any vaccine model. 

The CDC has long known about the virulence and persistence of this spirochete focusing on a vaccine as the cure-all to this world wide epidemic. The late stage/chronic Lyme community has become collateral damage for a vaccine market in the course of a government sponsored initiative as Baxter’s phase III clinical trials are underway.

The CDC has aligned itself with institutions/researchers with a bias against persistent infection and has misused its authority by inappropriately allotting government funds to Mass General Hospital (Dr Alan Steere) and New York Medical College (Dr Gary Wormser) as identified in the following communications. Read more….

The Principle Investigators of the two previous Lyme vaccines: Allen C. Steere for SmithKlineBeecham's LymeRix and Gary Wormser for Connaught's vaccine (which never made it to market) have conceptualized a disease that would enable vaccine development. The one-size-fits-all Lyme treatment guideline (lead author: Gary Wormser) matches the conceptualized disease.

A preventive vaccine for Lyme disease would not satisfy the FDA if a chronic persistent infection and seronegative disease exist. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure.

Seronegativity in Lyme borreliosis: 103 Peer-Reviewed Studies

It remains questionable that a Lyme disease vaccine is practical for an infection that produces a lack of immunological memory (unlike Measles, Mumps etc.) so the Wormser study fabricating a six year strain-specific immunity makes perfect sense for the marketing/acceptance of such vaccine as identified in a letter to Editor in Chief, Ferric C. Fang, M.D. Infection and Immunity.  Read more…

The producers of the documentary, “Under Our Skin,” submitted a Freedom of Information Act (FOIA) request to investigate possible conflicts-of-interest of three Centers for Disease Control (CDC) employees who control public health policy for Lyme disease. (Barbara Johnson, Paul Mead and David Dennis) That request was finally fulfilled (May 2012) from the Department of Health and Human Services (five years later!). The information received is highly redacted with approximately half the information cut. What does the CDC know about Lyme disease that requires hiding from the public? The Centers for Disease Control has betrayed the public trust.

For more on the FOIA see Poughkeepsie Journal article # 1    article # 2 By Mary Beth Pfeiffer

Mary Beth Pfeiffer of the Poughkeepsie Journal highlighted the worst conflicts of interests between federal officials and a core group of researchers receiving government grants in the “ties that bind” page. Read more…

Who is responsible for the “highly pathogenic” clone of the Lyme disease bacteria, (Borrelia burgdorferi) found in Europe and North America as reported by the journal Emerging Infectious Diseases? Read more…

The following list establishes who knew what and when identifying their contribution to the disinformation campaign aimed at denying persistent Borrelia infection.

When subpoenas are issued CDC officials cannot claim conflicts of scheduling issues and must attend to testify under oath regarding the mishandling of Lyme disease.

Congressional Investigation Subpoena List

1. CDC Officials

DAVID DENNIS (1) (2) (3), C. Ben Beard, Barbara Johnson (1), Paul Mead (1), Joseph Breen

    Former NIH Lyme Program Officers

Phillip Baker, Edward McSweegan (1)(2)

2. IDSA Lyme Treatment Guideline Authors  (1) (2) (3) (4)

Gary P Wormser (1), Raymond J. Dattwyler (1), Eugene D. Shapiro,         

John J Halperin (1), Allen C. Steere (1), Mark S Klempner (1),  

Peter J. KrauseJohan S. Bakken, Franc Strle, Gerold Stanek,                 

Linda Bockenstedt (1), Durland Fish (1) (2), J. Stephen DumlerRobert B. Nadelman

    Academic Medicine

Paul Auwaerter, Arthur Weinstein (1)

3. The American Lyme Disease Foundation

Phillip Baker, (1) (2) Executive Director

Please call your legislator and respectfully urge immediate action from the U.S. Senate and U.S. House of Representatives to fully investigate the facts surrounding the failures of leadership and management deficiencies by requesting a Congressional investigation of the CDC, IDSA and ALDF (Find your Senator) (Find your Representative)

Yolanda Foster on Lyme disease, one of the "Real Housewives of Beverly Hills

Dr Alan MacDonald on Alzheimer's and Lyme disease, “The Biology of Lyme Disease: An Expert's Perspective

Remarks: World Wide Lyme Rally & Protest Kenneth B. Liegner, M.D.

Lyme disease testing flaws and conflicts of interests

The Barry Marshall affect on chronic disease

Inconvenient truths

Bullying of Lyme patients

List of abbreviations

CDC: Centers for Disease Control
IDSA: Infectious Disease Society of America
ALDF: American Lyme Disease Foundation

Carl Tuttle
Hudson, NH03051

Website: New Hampshire Lyme Misdiagnosis 

Letter to the Editor, The Lancet Infectious Diseases Published May 2012

The Tuttle family was featured on New Hampshire Chronicle’s “Living with Lyme” with the program archived on their site in six small segments for viewing on the computer

Part 1Part 2Part 3Part 4Part 5Part 6

Letter to
U.S. House of Representatives
U.S. Senate
New Hampshire State House
and 6 others
New Hampshire State Senate
New Hampshire Governor
United States Senator for Connecticut The US Senate
Comptroller General of the United States Gene L. Dodaro (Comptroller General of the United States)
Congressional Relations GAO The US Senate
U.S. Congressman Paul A. Gosar The US Senate
We are experiencing a health crisis here in New Hampshire and across the country with the growing epidemic of Lyme disease. One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement. The following petition exposes an ongoing effort to deny the late stage Lyme epidemic.