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Please give Mary Gorman her right to life by funding her essential medication immediately and without any further delay

This petition had 8,497 supporters


Mary Gorman was diagnosed with Paroxysmal Nocturnal Haemoglobinuria (PNH) in October 2012. This is an ultra-rare and life threatening blood disorder which, without treatment, leads to a life expectancy of 5-10 years.  Mary has already suffered acute kidney damage since being diagnosed and has been forced into early retirement from her work in the HSE.

In January 2013 Mary was prescribed Eculizumab by her consultant in St. James' Hospital, the only known drug to effectively treat and successfully manage the symptoms of PNH and prolong life expectancy. Eculizumab has a very high success rate (85%) in managing PNH and improving life expectancy.

Already 10 people in Ireland with this illness, are fully funded by the HSE for the same medication since 2010.  Mary has been denied access to this drug to date as the HSE Senior Management Team has refused to fund it. Despite 35 years of dedicated service of providing care to others with illness, injury or disease, it now appears that the HSE is letting Mary die by not providing her with the necessary treatment to manage her blood condition.

Mary has been waiting over 22 months for the essential treatment for her condition.  Her health is deteriorating.  Time is not on her side.

Please sign this petition and share it with others.  We want this petition to impress upon on those who make decisions that they hold Mary's life in their hands.



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James Kelly needs your help with “The Irish Government, The Health Service Executive Leadership Team, The Minister for Health, Leo Varadkar: Please give Mary Gorman her right to life by funding her essential medication immediately and without any further delay”. Join James and 8,496 supporters today.