Funding to find a cure for DIPG

Funding to find a cure for DIPG

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Donna kelly Byrne started this petition to Taoiseach Leo Varadkar (Taoiseach) and

  DIPG is a highly aggressive brain tumour found in the brainstem which controls vital functions (including breathing, the ability to walk or swallow) while losing no cognitive function. It is inoperable and incurable with a 100% mortality rate. It accounts for 10% of all childhood central nervous system tumours and 80% of brain tumour deaths in children. It occurs equally across gender and at any age in childhood, although typically between 5 - 10 years old;

We lost our beautiful soul Richard in November 2018 after he battled hard for a year to fight this demon of a cancer.He was only 12yrs old..... No child should have to endure radiotherapy and chemotherapy and at the end there is still no good outcome,only extra time to make memories.

There is at present no cure for DIPG. Current research is dedicated to both finding a cure and better treatments to improve the longevity and quality of life for those children diagnosed with DIPG; but there is not enough funding to research it more.We need help to fund the research, how many more children have to lose their lives to this horrendous disease before someone sits up and listens and realises our future, our children are dying before our eyes. 

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