APPROVE ORKAMBI FOR AUSTRALIANS WITH CYSTIC FIBROSIS

Reasons for signing

See why other supporters are signing, why this petition is important to them, and share your reason for signing (this will mean a lot to the starter of the petition).

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Nathan Whitfield
3 years ago
I’ve taken this medication and it’s done great things I’ve been out of the hospital for about 3 years when I used to be in every year!

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Simon Chau
3 years ago
Cystic fibrosis is a terminal disease and the kids and adults suffer as much as cancer patients. They have the Right to Breathe also.

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Anne Sutton
3 years ago
I know what an amazing person Donita us and she deserves acces to this drug ❤️❤️

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Rebecca Radcliffe
3 years ago
I’m signing because this drug is vital to all CF warriors and there shouldn’t be any thought into making it available

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Kristi Davis-Downs
3 years ago
I have prayed for a miracle for a cure for my beautiful daughter since the day she was diagnosed, and I bet there are so many people on this thread who have done the same thing for their sons/daughters. My beautiful girl did not have the best start to life in her family environment and now I have been given a chance to have a new beginning with her. I want to say to the people making the decision whether Orkambi is available on the PBS, please do not sentence my daughter or any of these other people and other parents children to death. My daughter as well as any of the other brave CF Kids/Adults all deserve to have as much of a life as yo or I do. As a parent of a Cf’er I know that I and so many other parents have already worked so hard to keep their beatiful babies alive and as well as possible, please do not fail us and allow our kids a second chance. If it was your son or daughter you would want the same for your child. Cf Parents get up every morning super early to get their child’s medical routine done, please do not fail us and allow us to have some of the pain relieved that we face where we feel like our hearts are being teared apart and ripped out of us, because despite the extremely hard work we put in to keep our children breathing, we love to do it as it keeps our kids alive for another day until one day we cannot help them breathe anymore. I do not want to lose my baby girl and I know so many other parents here feel the same way, hence why they are here supporting this petition and writing their comments.

Please allow all the CF Children and Adults to have more time with their families and allow their smile to continue as we will happily do whatever is needed to keep them breathing if you give us a chance to allow them to breathe longer.

I pray you allow us this miracle.

From A Hopeful CF Mum who wants to spend more time with her daughter.

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Pip Phillips
3 years ago
I know someone with this illness

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Patrick Drive
3 years ago
Get it done!

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Helen Fisher
3 years ago
We need more funding to fight this delibating illness

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Kimberley Murray
3 years ago
We need orkambi

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Stevie-lea Carr
3 years ago
Everyone deserves to live their life to the dullest no matter if they are sick or not- 