Help save May Ali's life and approve her continued treatment with life-saving drug Eculizumab

Reasons for signing

See why other supporters are signing, why this petition is important to them, and share your reason for signing (this will mean a lot to the starter of the petition).

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Laura Rittenhouse
6 years ago
This is amazingly great news. It's a big step in this individual case. But there are so many people with rare illnesses that are denied access to life saving drugs because the PBS simply has no mechanism for dealing with them. My husband is one such sufferer with a rare cancer that is responding to Keytruda at a cost of $7,200 every 3 weeks. If he had melanoma, that drug would be free on the PBS. He doesn't have melanoma so the government doesn't offer any financial assistance at all.

Sussan Ley, please take this example with Eculizumab and extend it to other life saving drugs for rare illnesses.

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Chris Duncan
6 years ago
I have just read the good news. Well done! People care. All the best.

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Rodney Marlow
6 years ago
I have two young children and May was a classmate of mine. She has a beautiful heart of which our society can not afford to lose.

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Stavroula Saniotis
6 years ago
No one should suffer or die if they can be helpedn no one should have to go through so much and suffer all rhis when help is available. This is not fair that certain people or decisions should affect a person's lufe and impact them in such a negative way.
We have the power to help May λ.Let's do so.

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Cheri Rodriguez Jones
6 years ago
I have used Eculizumab for another very rare disease so I know exactly what a miracle drug it is, and how amazing as well, the price is. But you cannot put a value on our lives. When you say no to covering Eculizumab, you are saying our lives are not worth it. That should not be happening in 2015.

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Stephanie Candiloro
6 years ago
restore faith in our health system.

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Michael Cook
6 years ago
I understand we (the tax payers) can't afford to subsidize all medicines but when someone's life actually depends on it, why even baulk? The worry of not knowing could be doing as much damage as the disease.

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J Nobbs
6 years ago
I am gobsmacked by the decision to extend by two weeks; due to expire at XMas of all dates!!! I am appalled. The political adviser responsible should be sacked and Minister Ley's electorate made aware of this story. We are less than a year from her facing the local polling booth.

Can a call be made to local media outlets in Farrer be made to highlight this story to the Ministers local constituents? As if I was resident, this story would have me looking for alternatives on polling day. Members are supposed to fight for the little people - not play God.

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Suzette Landels
6 years ago
To provide the above prescribed medical
treatment is the only humane option. It is unethical to be giving millions of dollars in overseas aid , while failing to provide for our own. It makes our overseas aid programmes look like strategies in political expedience rather than truly humanely motivated action.Forget the grand gestures in the international political arena; genuine charity starts at home! Let this brave lady live!

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Manon Bartusel
6 years ago
because every life counts.