Petition Closed
Petitioning The Council of State and Territorial Epidemiologists and the CDC

Make Primary Amoebic Meningoencephalitis a nationally notifiable disease


Primary Amoebic Meningoencephalitis (amebic meningitis) is far too under-reported and misdiagnosed in the United States as well as throughout the world. This is primarily because it is not a NATIONALLY NOTIFIABLE DISEASE."PAM" is 99% fatal 100% preventable and has no known cure. With proper diagnosis it can be proven that this is not as "RARE" as people would lead you to believe. As a nationally notifiable disease it would bring more awareness to the issue which ultimately means more money and grants for one day finding a cure. A nationally notifiable disease means a disease required by law to be reported to official health authorities and that for every child that dies due to "PAM" each and every state is required to report the death. Currently in the United States, Florida is the only state that is required to report this. That said there are a few other states that offer the information on their own. For more information on "PAM" and the amoeba that causes it please visit www.KyleLewisAmoebaAwareness.org .

Letter to
The Council of State and Territorial Epidemiologists and the CDC
I just signed the following petition addressed to: The Council of State and Territorial Epidemiologists and Center of Disease Control.

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Primary Amoebic Meningoencephalitis (amebic meningitis) is far too under-reported and misdiagnosed in the United States as well as throughout the world. This is primarily because it is not a NATIONALLY NOTIFIABLE DISEASE."PAM" is 99% fatal 100% preventable and has no known cure. With proper diagnosis it can be proven that this is not as "RARE" as people would lead you to believe. As a nationally notifiable disease it would bring more awareness to the issue which ultimately means more money and grants for one day finding a cure. A nationally notifiable disease means a disease required by law to be reported to official health authorities and that for every child that dies due to "PAM" each and every state is required to report the death. Currently in the United States, Florida is the only state that is required to report this. That said there are a few other states that offer the information on their own. For more information on "PAM" and the amoeba that causes it please visit www.KyleLewisAmoebaAwareness.org .
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Sincerely,