Petitioning Minister for Health, Welsh Assembly Government Mark Drakeford AM and 3 others

Tell Cardiff and Vale University health board to pay urgent healthcare costs – 5 years of malpractice

My name is Lisa and my brother Nick and I are campaigning for the payment of £15,000 including expenses for a German hospital bill along with a request for further funding after serious UK medical neglect.

I had a routine surgery due to a prolapsed disc in 2007 in Cardiff that caused a rare surgical complication of massive loss of cerebral spinal fluid (CSF) I was left at home for a month with terrible pain and leaking CSF which formed a rare, giant, tense pseudomeningocele at the base of my spine (protruding sack of spinal fluid).  I eventually underwent a life-saving repair of my spinal cord membranes to stop the leakage of CSF.  I have never neurologically recovered from this complication as I have chronic nerve pain in my brain and cervical spine and I have zero quality of life. Prior to this, I was a post graduate student at Oxford University. 

For 5 years I was left to suffer without adequate medical care or a clear diagnosis. I was experiencing daily seizures-like tremors and a retroflexed cranial head position. I was forced to leave the country in October 2012 and seek medical treatment from a German Professor of Neurosurgery. He identified a tethered cord syndrome, ubiquitous Leptomeningitis, Aseptic Meningitis, Arachnoiditis and high CSF pressure. I underwent 3 complex spinal procedures. (See videos)

An operation to de-tether the spinal cord is done in the UK but this procedure wasn’t offered to me and I was left to suffer unnecessarily.

He also diagnosed cranial nerve damage but I have to seek a further specialist for this treatment.

The Cardiff and Vale University Health Board have refused to pay for this treatment despite appealing their decision. They claim that the operations were not urgent and that there was no case of 'undue delay.' The Health Board have repeatedly blocked my access to medical treatment for over 5 years now.  

As UK citizens we are entitled to medical treatment from an EU country (see letter below). By blocking this access to treatment, the health board are breaching my human rights. Please see information below regarding our rights to EU treatment.

Please see the video evidence and sign this petition agreeing that 5 years of torturous pain requires urgent treatment and a 5 year delay in treatment is definitely a case of 'undue delay'. 

Please sign our petition so that I can be granted the £15,000 including expenses for an operation that should have been carried out in the UK. Plus support our campaign for further funding to treat my debilitating brain and cervical spine symptoms.

Thank you for your support. This injustice could really happen to anyone suffering from a surgical complication. 

Letter to
Minister for Health, Welsh Assembly Government Mark Drakeford AM
Director of Public Health, Cardiff and Vale UHB Dr Sharon Hopkins
Chief Executive, Cardiff and Vale UHB Adam Cairns
and 1 other
Secretary of State, Health Jeremy Hunt MP
I am writing to you to pay the German hospital costs plus expenses after UK medical negligence for Lisa Llewellyn's surgery of a tethered cord syndrome and high CSF pressure. This should have been diagnosed and treated in the UK after 5 years of trying to reach a definitive diagnosis.

From viewing the video evidence of Lisa's seizures plus the endoscopic videos of the diagnosis and surgery in Germany, I see plenty of evidence of 'undue delay.'

Further treatment should be funded to treat Lisa's cranial nerve condition immediately.

An operation to de-tether the spinal cord is undertaken in the UK and Lisa should have been offered this surgery here.

You have a moral duty to abide by the standards of the World Health Organisation.

“The highest attainable standard of health is one of the fundamental rights of every human being.”

Lisa's human rights to a quality of life via article 2 have been abused too many times.

Put an end to Lisa and her family's terrible suffering now!