Lyme disease, Babesia, Bartonella, Erhlichiosis, Rocky Mountain Spotted Fever, Anaplasmosis and many more... what do they all have in common? They all come from a few common denominators but one in particular stands out the most, TICKS! This disease is a true epidemic that doctors don't believe exists and for those that know it does, they can't even get insurance companies to approve the appropriate treatment plan needed to cure this disabling disease. This disease that has wrecked havoc on my life as well as many other innocent children and adults around our state. It is REAL, it is CHRONIC when not treated in time or not treated long enough and it is overlooked by many for fear of practices being shut down or licenses being revoked or suspended. My name is Alexis and I am living proof of this and it is not something to be taken lightly or brushed under the rug. Even though I, myself, have other tick borne viruses, bartonella and babesia, it all originated with Lyme. I suffer from all three! I am even worse off than when I first started because of years and years of short courses of ineffective treatment that insurance companies claim the CDC finds appropriate for such infections. It is now believed that I have had these infections for a decade. Stealing large periods of my life. a child growing up in an already harsh world. Some of you know that i have been out of school for the last quarter of my junior year, now you know the reason why. Lyme has taken over my life to such a degree that I can barely function on a daily basis. It forces me into such a high level of anxiety that I can't even the fathom the thought of attending school or hanging out with my friends and some days, I can't even handle being around my own family.
Lyme can mimic many diseases like asthma, anxiety disorders, anemia, MS, ALS, migraines, insomnia, heart palpitations, high blood pressure, tachycardia, bradycardia, arrhythmia's, dizziness, chronic fatigue syndrome, shortness of breath, vertigo, fibromyalgia and so very much more! It can even make you feel like you're having a heart attack, a feeling I wouldn't wish on anyone. I've been told by the told by my doctor and even the school nurse that I need to see a professional for my anxiety because the level to which I suffer is not normal. I was told I would need to see a psychiatrist to be put on medication. This is no longer an option for me! I tried one medication my doctor prescribed and it nearly sent me to the ER. My only saving grace was that it is now proved it wasn't only in my head. It is devastating to be told that you're not sick just because the test came out negative when you know something's wrong or your test is positive and we'll treat you but only for a month because insurance won't pay and they feel it is all the treatment you need to get well. Only leaving us to pay out of pocket for the duration of time it takes to be completely healed. Luckily, my mother Natasha found a Lyme specialist who believes every symptom that I've felt because my mother and my specialist have gone through the same thing. My specialist has given me 10 pills to take everyday for the last 3 or 4 months. Getting through the first month of this medicine routine was extremely difficult. So I'm just here to say that I believe each and every single Lyme patient out there. I know what you're going through and I wouldn't wish it on anybody. Even explaining it doesn't live up to what its like. Its one of those things where you have to have it to understand it.
About three months have passed since then and during last week's appointment, my doctor reviewed all of the symptoms I had been feeling at the first appointment and there were so many that I had forgotten how bad I felt. My anxiety level has improved to some degree but I am still uncomfortable in social settings. I continue to force myself little by little to return to the life I was used to and enjoyed before I got really sick. I will most likely miss the start of my senior year. I have been put on new medicine to fight the Lyme portion now while continuing to take medicine for it's co-infections and then I'll be going back to the specialist in November. I am writing this petition because I know I'm not the only one. I'm not the only one suffering and I'm not the only one that has seen an improvement with specific medications but now must regress because the treatment is being denied by insurance. An insurance company is making my medical decisions for me. They are going against the orders of my doctor and they are making decisions based on cost, length of treatment time and medical options of how to treat my infection when they are not medically certified to do so. I am asking all those that stand by me and my situation to sign this petition. I am asking all those that personally suffer or have loved ones that suffer to sign this petition and help make our voices heard! We need to legalize chronic Lyme and all of it;s con-infection's treatment plans! Please help make this happen! It worked for Massachusetts... let's stand together and make this happen here and help open the door for other states. To all my Lyme Warriors! Sign and share your stories to be taken to the top! For all those who stand by and watch loved ones suffer to no avail, please sign and share as well! Thank you for all that you do to help make this happen!