Hidradenitis Suppurativa Research at St.Jude children's hospital

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Hidradenitis Suppurativa Research at St.Jude children's hospital

This petition had 170 supporters
sheranetta vaught started this petition to St. Jude Medical
Hello my name is Sheranetta Vaught,im 23 years old,and I have Hidradenitis Suppurativa. they say it is a very rare disease, but its becoming more common everyday. I have been suffering with this horrible disease every since I was about 5 or 6 years old. I suffered in silence not telling anyone but my immediate family until I was about 9/10 ,that's when I finally started seeking medical attention because the pain and the smell of the drainage started to be unbearable. I went to numerous Drs. And specialist no one knew what was wrong they often told me I was too overweight or that I didn't wash myself good. It was so very humiliating being told over and over again that I was too big or not clean enough as a little girl that crushed my self-esteem and made me not want to talk to or be around ppl because I felt like they could smell my sores . I never really had a childhood because of this disease,I was always sick and hurting. From a very young age I was often really depressed growing up. i contemplated suicide a couple of times because I felt like I was all alone in the world no one knew what I was going through and I never knew anyone else with my issue the Dr.s couldn't even tell me what the issue was we need research awareness and a cure please help us get what we deserve!!! Hidradenitis suppurativa (HS) is a chronic condition characterized by swollen, painful lesions, occurring in the armpit (axillae), groin, anal, and breast regions. is a progressive disease where single boil-like, pus-filled abscesses become hard lumps, then painful, deep-seated, often inflamed clusters of lesions with chronic seepage. Healing of affected areas is typically associated with progressive scarring (fibrosis). Formation of chronic epithelialized, sometimes interconnected, sinus tracts occur in severe disease. This often leads to the entrapment of perspiration and bacteria in the surrounding tissue, which causes the inflammation and infection. HS can be extremely painful and debilitating but is rarely life threatening; only occurring when the bacteria infection leads to an overwhelming systemic infection in an individual with a weakened immune system.

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