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My name is Gayle Corbin I have been diagnoised with several chronic severly debilitating diseases; Interstitial cystitis, Dysuria Syndrome, (feelings of pain or pressure around the bladder, pelvis and perineum). I.C. is a defect in the bladder epithelium that allows irritating substances in the urine to penetrate into the bladder. the body's immune system attacks the bladder, similar to other autoimmune conditions. I also have excruciating pain. I feel pain in the urethra, lower abdomen, lower back, and the pelvic and perineal areas. The disease has a profound impact on the quality of my life. I also have been diagnosed with Sever Fibromyalgia. Fibromyalgia is a common syndrome in which a person has long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues. Fibromyalgia has also been linked to fatigue, sleep problems, headaches, depression, and anxiety.


The cause of I.C. is unknown, though several theories have been put forward (these include autoimmune theory, nerve theory, mast cell theory, leaky lining theory, infection theory and a theory of production of a toxic substance in the urine. Other theories are neurologic, allergic, genetic and stress-psychological. Other research has shown that the impact of Sever I.C. on Quality of life is as severe as that of end stage renal disease and rheumatoid arthritis. I have had several bladder Distentions, Several Bladder Instillations, A Nerve Stimulator which wires send mild electric pulses to the sarcal nerve that suppose to regulate pain in the bladder which was very ineffective . Other treatments and medications traditional and experimental have failed and the pain is now disabling. Doctor and I talked about removing my bladder however he said there was a 50/50 chance it would or would not ease the symptoms and chronic pain after the removal of my bladder. I am struggling with IC and other pain syndromes Vulvodynia, Chronic Fatigue and Anxiety Disorder, and Pelvic Floor Dysfunction my discomfort is often more chronic, with duller levels of consistent pain that can worsen with sitting making riding in a car or even sitting in a chair for any period of time un-bearable.


50% of IC patients have excruciating pain while riding in a car.


63% of IC patients are unable to work full time


IC patients have suicidal thoughts 3-4 times above the national average


The quality of life of IC patients is worse than patients experiencing chronic renal failure and undergoing dialysis.


As a Patient with severely disabling symptoms, non responsive to more traditional treatments, requires pain-management services, psychologic, and gynecologic consultations. No operation can guarantee complete relief and it is my experience that I continue to experience incapacitating symptoms after undergoing a Cystectomy with urinary diversion better known as an Indiana Pouch Reservoir


With this type of surgery, a reservoir or pouch is made out of a portion of the large intestine (the ascending colon on the right side of the abdomen) and a portion of the ileum (the last segment of the small intestine). The ureters are repositioned to drain into this pouch. The urine flows freely in a downward direction from the kidneys into the pouch. A short piece of small intestine is then brought out through a small opening in the abdominal wall (a stoma). no external bag is needed, and the stoma is very small and can be covered with an adhesive bandage. Instead, a one-way valve is surgically created to keep the urine inside the pouch. Several times a day, every 2 hours, a small, thin catheter must be passed through the stoma and into the pouch to empty the urine. An adhesive bandage is worn over the stoma at all other times (when not actively emptying the pouch). I have had multiple complications including post-op wound infections, incision hernias, scar obstructing my ureter and causing kidney problems, and reoccurring urinary tract infections. Some of these problems have required reoperations. I also suffer with spasmodic pain requiring long-term pain meds, reoccurring fevers and psychologic trauma. My Doctor has tried everything within his power to correct these odd complications.


I live day-in and day-out with IC, a disease which—at its best is atypical and very confusing, and—at its worst, terribly cruel and grossly inhumane. I deal with sever mental and a combination of impairments that prevent me from performing my past work or any other type of work, and my conditions has last well over twelve continuous months 7 years to be exact. . My doctors menu of treatment options are very limited. I have reported reactions to medications that his other patients had never reported. SSA is refusing to consider reported pain, weakness, fatique, and other symptoms of my condition when evaluating my need for disability benefits. I have several SSA blue book disorders yet they continue to turn me down.


I have been turned down 5 times for conditions that are clearly written in the SSA Blue Book which does in fact qualify me for SSI benefits. SSA has yet to schedule a date for a judge hearing because they are saying that in 1978 & 1979 I served in the United States Army mind you I was born July 15th 1970 so that means I was in the armed services at 8 & 9 years old. They also said that I never worked a day in my life yet I have W-2’s for at least 10 years back. I have gone to a lawyer and they are more concerned with suing the SSA for the grave mistake and documents sent to me to confirm the decision and the hospital for over medicating me with morphine and almost killing me and they documented it in the medical records. I only want the benefits I’m Entitled to. Please help me get my benefits so I can afford the daily medical supplies and medication or a judge hearing, Please sign my petition LETS MAKE THEM LISTEN !!!!!


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